Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.34624/jshd.v5i1.28483 |
Resumo: | Objective: To contribute to the translation of the self-administered ALSFRS-R - European Portuguese version (ALSFRS-R: EP), and to analyse its reliability to enable its use by ALS patients in Portugal. Methods: The study was developed in 3 phases. Phase 1: Translation and cultural adaptation of the self-administered ALFRS-R; Phase 2: Content validation by study participants; Phase 3: Exploratory factor analysis (EFA), analysis of its internal consistency and test-retest reliability. Results: According to a panel of experts (N=6), a CVI of 100% were obtained for all ALSFRS-R: EP items. A sample of 18 people with ALS (13 male) fulfilled the test and evaluated its items regarding its clarity, comprehension, difficulty, and relevance, obtaining values varying from 8.6 and 8.9, 8.7 and 8.9, 8.5 and 8.8, and 8.5 and 8.9, respectively. The EFA revealed three factors representing the following domains: (1) bulbar function; (2) fine and gross motor function; and (3) respiratory function. The instrument total score and its subscales presented good internal consistency (Cronbach'sα: ranging from 0.72 to 0.92 in the test; from 0.70 to 0.95 in the retest) and good to excellent test-retest reliability (Kendall tau: ranging from 0.58 to 0.99). Considering the scale total score for the test, no statistical differences were observed between females and males nor between bulbar ALS and medullar ALS. The correlation between the total score and age showed to be significant and negative (-0.53). Conclusions: The Self-Administered ALSFRS-R: EP version was successfully translated, validated, and presented good to excellent reliability results, with similar EFA structure to other studies. It will allow its use by European Portuguese ALS patients, enabling their health professionals to monitor the disease progression at home. |
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Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European PortugueseObjective: To contribute to the translation of the self-administered ALSFRS-R - European Portuguese version (ALSFRS-R: EP), and to analyse its reliability to enable its use by ALS patients in Portugal. Methods: The study was developed in 3 phases. Phase 1: Translation and cultural adaptation of the self-administered ALFRS-R; Phase 2: Content validation by study participants; Phase 3: Exploratory factor analysis (EFA), analysis of its internal consistency and test-retest reliability. Results: According to a panel of experts (N=6), a CVI of 100% were obtained for all ALSFRS-R: EP items. A sample of 18 people with ALS (13 male) fulfilled the test and evaluated its items regarding its clarity, comprehension, difficulty, and relevance, obtaining values varying from 8.6 and 8.9, 8.7 and 8.9, 8.5 and 8.8, and 8.5 and 8.9, respectively. The EFA revealed three factors representing the following domains: (1) bulbar function; (2) fine and gross motor function; and (3) respiratory function. The instrument total score and its subscales presented good internal consistency (Cronbach'sα: ranging from 0.72 to 0.92 in the test; from 0.70 to 0.95 in the retest) and good to excellent test-retest reliability (Kendall tau: ranging from 0.58 to 0.99). Considering the scale total score for the test, no statistical differences were observed between females and males nor between bulbar ALS and medullar ALS. The correlation between the total score and age showed to be significant and negative (-0.53). Conclusions: The Self-Administered ALSFRS-R: EP version was successfully translated, validated, and presented good to excellent reliability results, with similar EFA structure to other studies. It will allow its use by European Portuguese ALS patients, enabling their health professionals to monitor the disease progression at home.University of Aveiro (UA) and Hospital Center of Baixo Vouga (CHBV)2023-04-28info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.34624/jshd.v5i1.28483https://doi.org/10.34624/jshd.v5i1.28483Journal of Statistics on Health Decision; Vol 5 No 1 (2023); e28483Journal of Statistics on Health Decision; vol. 5 n.º 1 (2023); e284832184-5794reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttps://proa.ua.pt/index.php/jshd/article/view/28483https://proa.ua.pt/index.php/jshd/article/view/28483/21916Copyright (c) 2023 Maria da Assunção Coelho Matos, Isabel Maria Monteiro Costa, Raquel Carmo Portinha, Beatriz Costa Afonso, Katia Coimbra Barbosa, Carla Sofia Lima Gouveia, Pedro Miguel Ferreira Sa-Coutohttp://creativecommons.org/licenses/by-nc-nd/4.0info:eu-repo/semantics/openAccessMatos, Maria da Assunção CoelhoCosta, Isabel Maria MonteiroPortinha, Raquel CarmoAfonso, Beatriz CostaBarbosa, Katia CoimbraGouveia, Carla Sofia LimaSa-Couto, Pedro Miguel Ferreira2023-05-04T22:30:12Zoai:proa.ua.pt:article/28483Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T17:50:52.132242Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
title |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
spellingShingle |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese Matos, Maria da Assunção Coelho |
title_short |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
title_full |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
title_fullStr |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
title_full_unstemmed |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
title_sort |
Contribution to the translation and reliability analysis of the Self-Administered Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised, for European Portuguese |
author |
Matos, Maria da Assunção Coelho |
author_facet |
Matos, Maria da Assunção Coelho Costa, Isabel Maria Monteiro Portinha, Raquel Carmo Afonso, Beatriz Costa Barbosa, Katia Coimbra Gouveia, Carla Sofia Lima Sa-Couto, Pedro Miguel Ferreira |
author_role |
author |
author2 |
Costa, Isabel Maria Monteiro Portinha, Raquel Carmo Afonso, Beatriz Costa Barbosa, Katia Coimbra Gouveia, Carla Sofia Lima Sa-Couto, Pedro Miguel Ferreira |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Matos, Maria da Assunção Coelho Costa, Isabel Maria Monteiro Portinha, Raquel Carmo Afonso, Beatriz Costa Barbosa, Katia Coimbra Gouveia, Carla Sofia Lima Sa-Couto, Pedro Miguel Ferreira |
description |
Objective: To contribute to the translation of the self-administered ALSFRS-R - European Portuguese version (ALSFRS-R: EP), and to analyse its reliability to enable its use by ALS patients in Portugal. Methods: The study was developed in 3 phases. Phase 1: Translation and cultural adaptation of the self-administered ALFRS-R; Phase 2: Content validation by study participants; Phase 3: Exploratory factor analysis (EFA), analysis of its internal consistency and test-retest reliability. Results: According to a panel of experts (N=6), a CVI of 100% were obtained for all ALSFRS-R: EP items. A sample of 18 people with ALS (13 male) fulfilled the test and evaluated its items regarding its clarity, comprehension, difficulty, and relevance, obtaining values varying from 8.6 and 8.9, 8.7 and 8.9, 8.5 and 8.8, and 8.5 and 8.9, respectively. The EFA revealed three factors representing the following domains: (1) bulbar function; (2) fine and gross motor function; and (3) respiratory function. The instrument total score and its subscales presented good internal consistency (Cronbach'sα: ranging from 0.72 to 0.92 in the test; from 0.70 to 0.95 in the retest) and good to excellent test-retest reliability (Kendall tau: ranging from 0.58 to 0.99). Considering the scale total score for the test, no statistical differences were observed between females and males nor between bulbar ALS and medullar ALS. The correlation between the total score and age showed to be significant and negative (-0.53). Conclusions: The Self-Administered ALSFRS-R: EP version was successfully translated, validated, and presented good to excellent reliability results, with similar EFA structure to other studies. It will allow its use by European Portuguese ALS patients, enabling their health professionals to monitor the disease progression at home. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-04-28 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.34624/jshd.v5i1.28483 https://doi.org/10.34624/jshd.v5i1.28483 |
url |
https://doi.org/10.34624/jshd.v5i1.28483 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://proa.ua.pt/index.php/jshd/article/view/28483 https://proa.ua.pt/index.php/jshd/article/view/28483/21916 |
dc.rights.driver.fl_str_mv |
http://creativecommons.org/licenses/by-nc-nd/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
http://creativecommons.org/licenses/by-nc-nd/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
University of Aveiro (UA) and Hospital Center of Baixo Vouga (CHBV) |
publisher.none.fl_str_mv |
University of Aveiro (UA) and Hospital Center of Baixo Vouga (CHBV) |
dc.source.none.fl_str_mv |
Journal of Statistics on Health Decision; Vol 5 No 1 (2023); e28483 Journal of Statistics on Health Decision; vol. 5 n.º 1 (2023); e28483 2184-5794 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799131587601760256 |