The InfAct proposal for a sustainable European health information infrastructure on population health
| Autor(a) principal: | |
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| Data de Publicação: | 2022 |
| Outros Autores: | , , , , , , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10362/140467 |
Resumo: | © 2022. The Author(s). |
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The InfAct proposal for a sustainable European health information infrastructure on population healththe Distributed Infrastructure on Population Health (DIPoH)Health Information ManagementHealth PolicyPublic Health, Environmental and Occupational HealthSDG 3 - Good Health and Well-beingSDG 9 - Industry, Innovation, and InfrastructureSDG 11 - Sustainable Cities and Communities© 2022. The Author(s).BACKGROUND: In Europe, data on population health is fragmented, difficult to access, project-based and prone to health information inequalities in terms of availability, accessibility and especially in quality between and within countries. This situation is further exacerbated and exposed by the recent COVID-19 pandemic. The Joint Action on Health Information (InfAct) that builds on previous works of the BRIDGE Health project, carried out collaborative action to set up a sustainable infrastructure for health information in the European Union (EU). The aim of this paper is to present InfAct's proposal for a sustainable research infrastructure, the Distributed Infrastructure on Population Health (DIPoH), which includes the setup of a Health Information Portal on population health to be maintained beyond InfAct's time span. METHODS: The strategy for the proposal was based on three components: scientific initiatives and proposals to improve Health Information Systems (HIS), exploration of technical acceptability and feasibility, and finally obtaining high-level political support.. The technical exploration (Technical Dialogues-TD) was assumed by technical experts proposed by the countries, and political guidance was provided by the Assembly of Members (AoM), which gathered representatives from Ministries of Health and Science of EU/EEA countries. The results from the AoM and the TD were integrated in the sustainability plan compiling all the major outputs of InfAct. RESULTS: The InfAct sustainability plan was organized in three main sections: a proposal of a new research infrastructure on population health (the DIPoH), new health information tools and innovative proposals for HIS, and a comprehensive capacity building programme. These activities were carried out in InfAct and are being further developed in the Population Health Information Research Infrastructure (PHIRI). PHIRI is a practical rollout of DIPoH facilitating and generating the best available evidence for research on health and wellbeing of populations as impacted by COVID-19. CONCLUSIONS: The sustainability plan received wide support from Member States and was recognized to have an added value at EU level. Nevertheless, there were several aspects which still need to be considered for the near future such as: (i) a commitment of stable financial and political support by Member States (MSs), (ii) the availability of resources at regional, national and European level to deal with innovations, and (iii) a more direct involvement from EU and international institutions such as the European Centre for Disease Prevention and Control (ECDC), the World Health Organization (WHO) and the Organisation for Economic Cooperation and Development OECD for providing support and sustainable contributions.Instituto de Higiene e Medicina Tropical (IHMT)RUNSarmiento-Suárez, RodrigoPadron-Monedero, AliciaBogaert, PetronilleAbboud, LindaVan Oyen, HermanTolonen, HannaTijhuis, MarikenSeeling, StefanieHaneef, RomanaZaletel, MetkaPalmieri, LuigiGallay, AnneLapão, Luís VelezNogueira, PauloZiese, ThomasVukovic, JakovBeja, AndréSaso, MiriamNoguer-Zambrano, Isabel2022-06-21T22:25:17Z2022-05-172022-05-17T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/140467eng0778-7367PURE: 44520927https://doi.org/10.1186/s13690-022-00844-zinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T05:17:34Zoai:run.unl.pt:10362/140467Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:49:40.111170Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
The InfAct proposal for a sustainable European health information infrastructure on population health the Distributed Infrastructure on Population Health (DIPoH) |
| title |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| spellingShingle |
The InfAct proposal for a sustainable European health information infrastructure on population health Sarmiento-Suárez, Rodrigo Health Information Management Health Policy Public Health, Environmental and Occupational Health SDG 3 - Good Health and Well-being SDG 9 - Industry, Innovation, and Infrastructure SDG 11 - Sustainable Cities and Communities |
| title_short |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| title_full |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| title_fullStr |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| title_full_unstemmed |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| title_sort |
The InfAct proposal for a sustainable European health information infrastructure on population health |
| author |
Sarmiento-Suárez, Rodrigo |
| author_facet |
Sarmiento-Suárez, Rodrigo Padron-Monedero, Alicia Bogaert, Petronille Abboud, Linda Van Oyen, Herman Tolonen, Hanna Tijhuis, Mariken Seeling, Stefanie Haneef, Romana Zaletel, Metka Palmieri, Luigi Gallay, Anne Lapão, Luís Velez Nogueira, Paulo Ziese, Thomas Vukovic, Jakov Beja, André Saso, Miriam Noguer-Zambrano, Isabel |
| author_role |
author |
| author2 |
Padron-Monedero, Alicia Bogaert, Petronille Abboud, Linda Van Oyen, Herman Tolonen, Hanna Tijhuis, Mariken Seeling, Stefanie Haneef, Romana Zaletel, Metka Palmieri, Luigi Gallay, Anne Lapão, Luís Velez Nogueira, Paulo Ziese, Thomas Vukovic, Jakov Beja, André Saso, Miriam Noguer-Zambrano, Isabel |
| author2_role |
author author author author author author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Instituto de Higiene e Medicina Tropical (IHMT) RUN |
| dc.contributor.author.fl_str_mv |
Sarmiento-Suárez, Rodrigo Padron-Monedero, Alicia Bogaert, Petronille Abboud, Linda Van Oyen, Herman Tolonen, Hanna Tijhuis, Mariken Seeling, Stefanie Haneef, Romana Zaletel, Metka Palmieri, Luigi Gallay, Anne Lapão, Luís Velez Nogueira, Paulo Ziese, Thomas Vukovic, Jakov Beja, André Saso, Miriam Noguer-Zambrano, Isabel |
| dc.subject.por.fl_str_mv |
Health Information Management Health Policy Public Health, Environmental and Occupational Health SDG 3 - Good Health and Well-being SDG 9 - Industry, Innovation, and Infrastructure SDG 11 - Sustainable Cities and Communities |
| topic |
Health Information Management Health Policy Public Health, Environmental and Occupational Health SDG 3 - Good Health and Well-being SDG 9 - Industry, Innovation, and Infrastructure SDG 11 - Sustainable Cities and Communities |
| description |
© 2022. The Author(s). |
| publishDate |
2022 |
| dc.date.none.fl_str_mv |
2022-06-21T22:25:17Z 2022-05-17 2022-05-17T00:00:00Z |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
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http://hdl.handle.net/10362/140467 |
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http://hdl.handle.net/10362/140467 |
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eng |
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eng |
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0778-7367 PURE: 44520927 https://doi.org/10.1186/s13690-022-00844-z |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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