Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.26/46990 |
Resumo: | Purpose This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. Design and Methods The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic disease and/or chronic disorder. Participants were recruited from the day hospital and/or outpatient services of four hospitals in Northern Portugal, the majority being mothers (87.3%) aged between 31 and 50 years (86.9%). The questionnaire was administered online through the REDCap platform. The hierarchical factor model of the Pediatric Quality of Life Inventory™ Family Impact Module proposed by Varni and colleagues was tested. Results Confirmatory Factor Analysis indicated good model fit, with the following indices (χ2/gL = 2.19; comparative fit index [CFI] = 0.90; root mean square error of approximation [RMSEA] = 0.07 immune cell [IC] 90% = 0.06−0.07). Internal consistency values were high (parent quality of life subtotal, α = .96; family functioning subtotal, α = .92; total score, α = .96). Practice Implications The European Portuguese version of the PedsQL™ FIM is a reliable and valid measurement tool for nurses to assess the impact of the child/adolescent chronic conditions on family's quality of life and to develop interventions to improve their well-being. |
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Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact moduleChronic conditionNursingParentsPsychometric testingQuality of lifePurpose This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. Design and Methods The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic disease and/or chronic disorder. Participants were recruited from the day hospital and/or outpatient services of four hospitals in Northern Portugal, the majority being mothers (87.3%) aged between 31 and 50 years (86.9%). The questionnaire was administered online through the REDCap platform. The hierarchical factor model of the Pediatric Quality of Life Inventory™ Family Impact Module proposed by Varni and colleagues was tested. Results Confirmatory Factor Analysis indicated good model fit, with the following indices (χ2/gL = 2.19; comparative fit index [CFI] = 0.90; root mean square error of approximation [RMSEA] = 0.07 immune cell [IC] 90% = 0.06−0.07). Internal consistency values were high (parent quality of life subtotal, α = .96; family functioning subtotal, α = .92; total score, α = .96). Practice Implications The European Portuguese version of the PedsQL™ FIM is a reliable and valid measurement tool for nurses to assess the impact of the child/adolescent chronic conditions on family's quality of life and to develop interventions to improve their well-being.WileyRepositório ComumLima, LigiaLemos, SaraBarbieri-Figueiredo, M. C.Martins, TeresaAndrade, Luísa2023-10-03T10:42:44Z20232023-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.26/46990engLima, L., Lemos, S., Barbieri-Figueiredo, M. D. C., Martins, T., & Andrade, L. (2023). Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module. Journal for Specialists in Pediatric Nursing, e12406. https://doi.org/10.1111/jspn.1240610.1111/jspn.124061539-0136info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-12T07:46:45Zoai:comum.rcaap.pt:10400.26/46990Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:33:25.976111Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
title |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
spellingShingle |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module Lima, Ligia Chronic condition Nursing Parents Psychometric testing Quality of life |
title_short |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
title_full |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
title_fullStr |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
title_full_unstemmed |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
title_sort |
Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module |
author |
Lima, Ligia |
author_facet |
Lima, Ligia Lemos, Sara Barbieri-Figueiredo, M. C. Martins, Teresa Andrade, Luísa |
author_role |
author |
author2 |
Lemos, Sara Barbieri-Figueiredo, M. C. Martins, Teresa Andrade, Luísa |
author2_role |
author author author author |
dc.contributor.none.fl_str_mv |
Repositório Comum |
dc.contributor.author.fl_str_mv |
Lima, Ligia Lemos, Sara Barbieri-Figueiredo, M. C. Martins, Teresa Andrade, Luísa |
dc.subject.por.fl_str_mv |
Chronic condition Nursing Parents Psychometric testing Quality of life |
topic |
Chronic condition Nursing Parents Psychometric testing Quality of life |
description |
Purpose This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. Design and Methods The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic disease and/or chronic disorder. Participants were recruited from the day hospital and/or outpatient services of four hospitals in Northern Portugal, the majority being mothers (87.3%) aged between 31 and 50 years (86.9%). The questionnaire was administered online through the REDCap platform. The hierarchical factor model of the Pediatric Quality of Life Inventory™ Family Impact Module proposed by Varni and colleagues was tested. Results Confirmatory Factor Analysis indicated good model fit, with the following indices (χ2/gL = 2.19; comparative fit index [CFI] = 0.90; root mean square error of approximation [RMSEA] = 0.07 immune cell [IC] 90% = 0.06−0.07). Internal consistency values were high (parent quality of life subtotal, α = .96; family functioning subtotal, α = .92; total score, α = .96). Practice Implications The European Portuguese version of the PedsQL™ FIM is a reliable and valid measurement tool for nurses to assess the impact of the child/adolescent chronic conditions on family's quality of life and to develop interventions to improve their well-being. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-10-03T10:42:44Z 2023 2023-01-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.26/46990 |
url |
http://hdl.handle.net/10400.26/46990 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Lima, L., Lemos, S., Barbieri-Figueiredo, M. D. C., Martins, T., & Andrade, L. (2023). Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module. Journal for Specialists in Pediatric Nursing, e12406. https://doi.org/10.1111/jspn.12406 10.1111/jspn.12406 1539-0136 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Wiley |
publisher.none.fl_str_mv |
Wiley |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799133599345147904 |