A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers
Autor(a) principal: | |
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Data de Publicação: | 2024 |
Outros Autores: | , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.14/43477 |
Resumo: | Background: People with Parkinson’s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered. Aim: The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve palliative care for people with Parkinson’s disease and their caregivers. Design:A systematic review method was adopted to determine the strength of evidence, supported by feedback from an expert panel, to generate the ‘do’, ‘do not do’ and ‘do not know’ recommendations for palliative care. Data sources: Searches were conducted via OVID to access CINAHL, MEDLINE, EMBASE and the Cochrane Library from 01/01/2006 to 31/05/2021. An additional search was conducted in December 2022. The search was limited to articles that included empirical studies of approaches to enabling palliative care. Results: A total of 62 studies met inclusion criteria. There is evidence that education about palliative care and movement disorders is essential. palliative care should be multi-disciplinary, individualised and coordinated. Proactive involvement and support of caregivers throughout the illness is recommended. Limited data provide referral indicators for palliative care integration. Discussions about advance care planning should be held early.Conclusions: Consideration of palliative care integration based on symptom burden and personal preferences, coordination and continuity of care are needed to maintain the quality of life of people with Parkinson’s disease and their caregivers. |
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A systematic practice review: providing palliative care for people with Parkinson's disease and their caregiversParkinson’s diseaseClinical guidelinePalliative careCaregiversQuality of lifeBackground: People with Parkinson’s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered. Aim: The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve palliative care for people with Parkinson’s disease and their caregivers. Design:A systematic review method was adopted to determine the strength of evidence, supported by feedback from an expert panel, to generate the ‘do’, ‘do not do’ and ‘do not know’ recommendations for palliative care. Data sources: Searches were conducted via OVID to access CINAHL, MEDLINE, EMBASE and the Cochrane Library from 01/01/2006 to 31/05/2021. An additional search was conducted in December 2022. The search was limited to articles that included empirical studies of approaches to enabling palliative care. Results: A total of 62 studies met inclusion criteria. There is evidence that education about palliative care and movement disorders is essential. palliative care should be multi-disciplinary, individualised and coordinated. Proactive involvement and support of caregivers throughout the illness is recommended. Limited data provide referral indicators for palliative care integration. Discussions about advance care planning should be held early.Conclusions: Consideration of palliative care integration based on symptom burden and personal preferences, coordination and continuity of care are needed to maintain the quality of life of people with Parkinson’s disease and their caregivers.Veritati - Repositório Institucional da Universidade Católica PortuguesaGaron, MichelaWeck, ChristianeRosqvist, KristinaOdin, PerSchrag, AnetteKrikmann, ÜllePedrosa, David JAntonini, AngeloLorenzo, StefanPereira, Sandra MartinsPaal, Piret2024-01-03T18:53:10Z2024-01-012024-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.14/43477eng0269-216310.1177/0269216323121440885178871745001145481700003info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-02-20T01:32:33Zoai:repositorio.ucp.pt:10400.14/43477Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T01:30:52.568785Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
title |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
spellingShingle |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers Garon, Michela Parkinson’s disease Clinical guideline Palliative care Caregivers Quality of life |
title_short |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
title_full |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
title_fullStr |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
title_full_unstemmed |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
title_sort |
A systematic practice review: providing palliative care for people with Parkinson's disease and their caregivers |
author |
Garon, Michela |
author_facet |
Garon, Michela Weck, Christiane Rosqvist, Kristina Odin, Per Schrag, Anette Krikmann, Ülle Pedrosa, David J Antonini, Angelo Lorenzo, Stefan Pereira, Sandra Martins Paal, Piret |
author_role |
author |
author2 |
Weck, Christiane Rosqvist, Kristina Odin, Per Schrag, Anette Krikmann, Ülle Pedrosa, David J Antonini, Angelo Lorenzo, Stefan Pereira, Sandra Martins Paal, Piret |
author2_role |
author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Veritati - Repositório Institucional da Universidade Católica Portuguesa |
dc.contributor.author.fl_str_mv |
Garon, Michela Weck, Christiane Rosqvist, Kristina Odin, Per Schrag, Anette Krikmann, Ülle Pedrosa, David J Antonini, Angelo Lorenzo, Stefan Pereira, Sandra Martins Paal, Piret |
dc.subject.por.fl_str_mv |
Parkinson’s disease Clinical guideline Palliative care Caregivers Quality of life |
topic |
Parkinson’s disease Clinical guideline Palliative care Caregivers Quality of life |
description |
Background: People with Parkinson’s disease has significant and increasing physical, psychosocial and spiritual needs, as well as problems with coordination and continuity of care. Despite the benefits that palliative care could offer, there is no consensus on how it should be delivered. Aim: The aim of this study is to provide a pragmatic overview of the evidence to make clinical recommendations to improve palliative care for people with Parkinson’s disease and their caregivers. Design:A systematic review method was adopted to determine the strength of evidence, supported by feedback from an expert panel, to generate the ‘do’, ‘do not do’ and ‘do not know’ recommendations for palliative care. Data sources: Searches were conducted via OVID to access CINAHL, MEDLINE, EMBASE and the Cochrane Library from 01/01/2006 to 31/05/2021. An additional search was conducted in December 2022. The search was limited to articles that included empirical studies of approaches to enabling palliative care. Results: A total of 62 studies met inclusion criteria. There is evidence that education about palliative care and movement disorders is essential. palliative care should be multi-disciplinary, individualised and coordinated. Proactive involvement and support of caregivers throughout the illness is recommended. Limited data provide referral indicators for palliative care integration. Discussions about advance care planning should be held early.Conclusions: Consideration of palliative care integration based on symptom burden and personal preferences, coordination and continuity of care are needed to maintain the quality of life of people with Parkinson’s disease and their caregivers. |
publishDate |
2024 |
dc.date.none.fl_str_mv |
2024-01-03T18:53:10Z 2024-01-01 2024-01-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.14/43477 |
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http://hdl.handle.net/10400.14/43477 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
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0269-2163 10.1177/02692163231214408 85178871745 001145481700003 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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