Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth.
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10316/31476 https://doi.org/10.1177/1367493512473856 |
Resumo: | The present study examined psychological adjustment in parents of infants with congenital anomalies, focusing on the interval from the disclosure of the diagnosis to six months after the infant’s birth, and considering the effects of the parent’s gender and the timing of diagnosis (pre- vs. postnatal). Within-group diversity was also examined, by identifying distinct patterns of individual adjustment over time. Parents of 43 infants (43 mothers and 36 fathers) with a pre- or postnatal diagnosis of a congenital anomaly answered questionnaires assessing psychological distress and quality of life, one month after the disclosure of the diagnosis and six months after the infant’s birth. Results showed a significant reduction in psychological distress and a significant increase in Physical quality of life over time, for both parents, regardless of the timing of diagnosis. Fifty-seven per cent of parents presented a pattern of recovery from diagnosis to six months post-birth, and 26.6% presented a pattern of resilience. However, 15.2% of parents showed chronic adjustment difficulties. Findings suggest that most parents tend to adjust to their infant’s CA, although some experienced difficulties and should be targeted for specialised counselling. Both members of the couple should be acknowledged, as both experience similar patterns of adjustment. |
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Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth.Adaptação parentalDiagnóstico de Anomalia CongénitaThe present study examined psychological adjustment in parents of infants with congenital anomalies, focusing on the interval from the disclosure of the diagnosis to six months after the infant’s birth, and considering the effects of the parent’s gender and the timing of diagnosis (pre- vs. postnatal). Within-group diversity was also examined, by identifying distinct patterns of individual adjustment over time. Parents of 43 infants (43 mothers and 36 fathers) with a pre- or postnatal diagnosis of a congenital anomaly answered questionnaires assessing psychological distress and quality of life, one month after the disclosure of the diagnosis and six months after the infant’s birth. Results showed a significant reduction in psychological distress and a significant increase in Physical quality of life over time, for both parents, regardless of the timing of diagnosis. Fifty-seven per cent of parents presented a pattern of recovery from diagnosis to six months post-birth, and 26.6% presented a pattern of resilience. However, 15.2% of parents showed chronic adjustment difficulties. Findings suggest that most parents tend to adjust to their infant’s CA, although some experienced difficulties and should be targeted for specialised counselling. Both members of the couple should be acknowledged, as both experience similar patterns of adjustment.SAGE2014-06info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/31476http://hdl.handle.net/10316/31476https://doi.org/10.1177/1367493512473856enghttp://chc.sagepub.com/content/18/2/111.abstractFonseca, AnaNazaré, BárbaraCanavarro, Maria Cristinainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2020-05-29T13:23:22Zoai:estudogeral.uc.pt:10316/31476Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:48:29.903958Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
title |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
spellingShingle |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. Fonseca, Ana Adaptação parental Diagnóstico de Anomalia Congénita |
title_short |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
title_full |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
title_fullStr |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
title_full_unstemmed |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
title_sort |
Parenting an infant with a congenital anomaly: An exploratory study on patterns of adjustment from diagnosis to six months post-birth. |
author |
Fonseca, Ana |
author_facet |
Fonseca, Ana Nazaré, Bárbara Canavarro, Maria Cristina |
author_role |
author |
author2 |
Nazaré, Bárbara Canavarro, Maria Cristina |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Fonseca, Ana Nazaré, Bárbara Canavarro, Maria Cristina |
dc.subject.por.fl_str_mv |
Adaptação parental Diagnóstico de Anomalia Congénita |
topic |
Adaptação parental Diagnóstico de Anomalia Congénita |
description |
The present study examined psychological adjustment in parents of infants with congenital anomalies, focusing on the interval from the disclosure of the diagnosis to six months after the infant’s birth, and considering the effects of the parent’s gender and the timing of diagnosis (pre- vs. postnatal). Within-group diversity was also examined, by identifying distinct patterns of individual adjustment over time. Parents of 43 infants (43 mothers and 36 fathers) with a pre- or postnatal diagnosis of a congenital anomaly answered questionnaires assessing psychological distress and quality of life, one month after the disclosure of the diagnosis and six months after the infant’s birth. Results showed a significant reduction in psychological distress and a significant increase in Physical quality of life over time, for both parents, regardless of the timing of diagnosis. Fifty-seven per cent of parents presented a pattern of recovery from diagnosis to six months post-birth, and 26.6% presented a pattern of resilience. However, 15.2% of parents showed chronic adjustment difficulties. Findings suggest that most parents tend to adjust to their infant’s CA, although some experienced difficulties and should be targeted for specialised counselling. Both members of the couple should be acknowledged, as both experience similar patterns of adjustment. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-06 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10316/31476 http://hdl.handle.net/10316/31476 https://doi.org/10.1177/1367493512473856 |
url |
http://hdl.handle.net/10316/31476 https://doi.org/10.1177/1367493512473856 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
http://chc.sagepub.com/content/18/2/111.abstract |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.publisher.none.fl_str_mv |
SAGE |
publisher.none.fl_str_mv |
SAGE |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799133763741941760 |