MoveONParkinson: a mixed methods study for the development of an innovative motivational solution for personalized exercise to support PD management

• Autor(a) principal: Rebola, Ana Beatriz Alves
• Data de Publicação: 2023
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
• Texto Completo: http://hdl.handle.net/10400.26/44326
• topic: Parkinson’s Disease; Mobile Health; Exercise Self-efficacy; Exercise Adherence; Self-management; Doença de Parkinson; Mobile Health; Autoeficácia para o Exercício; Adesão ao Exercício; Autogestão

Introduction: Despite the effectiveness of physiotherapy and exercise to improve symptoms and delay disease progression, many people with Parkinson’s Disease (PwPD) do not exercise regularly. The development of the ONParkinson platform was grounded on the evidence supporting self-management technologies on PD, following the results of a survey to PwPD, their caregivers and health professionals in triad. MoveONParkinson project is focused on the platform’s exercise module, aiming to develop an innovative motivational solution for personalised exercise to promote sustained exercise adherence and PD’s more effective management. Methods: The main stages of MoveONParkinson were based on the IDEAS framework, and the features of the platform were grounded by the Social Cognitive Theory, addressing behavioural, personal and socioenvironmental influences, along with exercise self-efficacy and self-management skills to instil behaviour change. A mixed methods convergent design, using quantitative (questionnaires and System Usability Scale) and qualitative (semi-structured and thinking aloud interviews) methods were used to evaluate the Web Platform’s usability and gather feedback and assess the acceptability of the Mobile and Web interfaces, which features were drawn on recommendations for improving the exercise module of the initial prototype. Results: 28 individuals were included: 20 physiotherapists (mean age=34.50±10.4) and 8 PwPD (mean age=65.75±8.63; mean H&Y=2.0±0.76). Physiotherapists awarded the Web Platform a “Good” usability score (mean SUS=79.50±12.40; 95%CI=73.70 to 85.30) and recommended modifying features to be less time consuming and adding hybrid exercise programs. The Web and Mobile interfaces were considered valuable resources to support PD management, by promoting sustained exercise adherence through personalized exercise prescription while addressing motivation and enhancing exercise self-efficacy. Conclusions: The Web Platform’s usability scores and user’s feedback suggesting high acceptability of the digital solution make ground for evaluating its efficacy on enhancing exercise adherence trough a pilot study and subsequently its effectiveness on managing PD symptoms and improving PwPD’s quality of life.