FAIR environmental and health registry (FAIREHR)
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2023 |
| Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10362/155498 |
Resumo: | Funding Information: Most co-authors were financialy supported with their respective inistitution. Some of the co-authors were financialy supportrd by the “Safe and Efficient Chemistry by Design (SafeChem)” project (grant no. DIA 2018/11) funded by the Swedish Foundation for Strategic Environmental Research, and by the PARC project (grant no. 101057014) funded under the European Union’s Horizon Europe Research and Innovation program. Publisher Copyright: Copyright © 2023 Zare Jeddi, Galea, Viegas, Fantke, Louro, Theunis, Govarts, Denys, Fillol, Rambaud, Kolossa-Gehring, Santonen, van der Voet, Ghosh, Costa, Teixeira, Verhagen, Duca, Van Nieuwenhuyse, Jones, Sams, Sepai, Tranfo, Bakker, Palmen, van Klaveren, Scheepers, Paini, Canova, von Goetz, Katsonouri, Karakitsios, Sarigiannis, Bessems, Machera, Harrad and Hopf. |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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FAIR environmental and health registry (FAIREHR)supporting the science to policy interface and life science research, development and innovationdata-driven decision makingenvironmental medicineexposure scienceexposure-disease continuummetadataopen sciencepreregistrationreal-world dataPharmacology, Toxicology and Pharmaceutics (miscellaneous)ToxicologySDG 3 - Good Health and Well-beingSDG 12 - Responsible Consumption and ProductionFunding Information: Most co-authors were financialy supported with their respective inistitution. Some of the co-authors were financialy supportrd by the “Safe and Efficient Chemistry by Design (SafeChem)” project (grant no. DIA 2018/11) funded by the Swedish Foundation for Strategic Environmental Research, and by the PARC project (grant no. 101057014) funded under the European Union’s Horizon Europe Research and Innovation program. Publisher Copyright: Copyright © 2023 Zare Jeddi, Galea, Viegas, Fantke, Louro, Theunis, Govarts, Denys, Fillol, Rambaud, Kolossa-Gehring, Santonen, van der Voet, Ghosh, Costa, Teixeira, Verhagen, Duca, Van Nieuwenhuyse, Jones, Sams, Sepai, Tranfo, Bakker, Palmen, van Klaveren, Scheepers, Paini, Canova, von Goetz, Katsonouri, Karakitsios, Sarigiannis, Bessems, Machera, Harrad and Hopf.The environmental impact on health is an inevitable by-product of human activity. Environmental health sciences is a multidisciplinary field addressing complex issues on how people are exposed to hazardous chemicals that can potentially affect adversely the health of present and future generations. Exposure sciences and environmental epidemiology are becoming increasingly data-driven and their efficiency and effectiveness can significantly improve by implementing the FAIR (findable, accessible, interoperable, reusable) principles for scientific data management and stewardship. This will enable data integration, interoperability and (re)use while also facilitating the use of new and powerful analytical tools such as artificial intelligence and machine learning in the benefit of public health policy, and research, development and innovation (RDI). Early research planning is critical to ensuring data is FAIR at the outset. This entails a well-informed and planned strategy concerning the identification of appropriate data and metadata to be gathered, along with established procedures for their collection, documentation, and management. Furthermore, suitable approaches must be implemented to evaluate and ensure the quality of the data. Therefore, the ‘Europe Regional Chapter of the International Society of Exposure Science’ (ISES Europe) human biomonitoring working group (ISES Europe HBM WG) proposes the development of a FAIR Environment and health registry (FAIREHR) (hereafter FAIREHR). FAIR Environment and health registry offers preregistration of studies on exposure sciences and environmental epidemiology using HBM (as a starting point) across all areas of environmental and occupational health globally. The registry is proposed to receive a dedicated web-based interface, to be electronically searchable and to be available to all relevant data providers, users and stakeholders. Planned Human biomonitoring studies would ideally be registered before formal recruitment of study participants. The resulting FAIREHR would contain public records of metadata such as study design, data management, an audit trail of major changes to planned methods, details of when the study will be completed, and links to resulting publications and data repositories when provided by the authors. The FAIREHR would function as an integrated platform designed to cater to the needs of scientists, companies, publishers, and policymakers by providing user-friendly features. The implementation of FAIREHR is expected to yield significant benefits in terms of enabling more effective utilization of human biomonitoring (HBM) data.Comprehensive Health Research Centre (CHRC) - Pólo ENSPEscola Nacional de Saúde Pública (ENSP)Centro de Investigação em Saúde Pública (CISP/PHRC)NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNZare Jeddi, MaryamGalea, Karen S.Viegas, SusanaFantke, PeterLouro, HenriquetaTheunis, JanGovarts, EvaDenys, SébastienFillol, ClémenceRambaud, LoïcKolossa-Gehring, MarikeSantonen, Tiinavan der Voet, HilkoGhosh, ManosijCosta, CarlaTeixeira, João PauloVerhagen, HansDuca, Radu CorneliuVan Nieuwenhuyse, AnJones, KateSams, CraigSepai, OvnairTranfo, GiovannaBakker, MartinePalmen, Nicolevan Klaveren, JacobScheepers, Paul T.J.Paini, AliciaCanova, Cristinavon Goetz, NatalieKatsonouri, AndromachiKarakitsios, SpyrosSarigiannis, Dimosthenis A.Bessems, JosMachera, KyriakiHarrad, StuartHopf, Nancy B.2023-07-18T22:16:27Z20232023-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/155498eng2673-3080PURE: 66670842https://doi.org/10.3389/ftox.2023.1116707info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-05-22T18:13:07Zoai:run.unl.pt:10362/155498Portal AgregadorONGhttps://www.rcaap.pt/oai/openairemluisa.alvim@gmail.comopendoar:71602024-05-22T18:13:07Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
FAIR environmental and health registry (FAIREHR) supporting the science to policy interface and life science research, development and innovation |
| title |
FAIR environmental and health registry (FAIREHR) |
| spellingShingle |
FAIR environmental and health registry (FAIREHR) Zare Jeddi, Maryam data-driven decision making environmental medicine exposure science exposure-disease continuum metadata open science preregistration real-world data Pharmacology, Toxicology and Pharmaceutics (miscellaneous) Toxicology SDG 3 - Good Health and Well-being SDG 12 - Responsible Consumption and Production |
| title_short |
FAIR environmental and health registry (FAIREHR) |
| title_full |
FAIR environmental and health registry (FAIREHR) |
| title_fullStr |
FAIR environmental and health registry (FAIREHR) |
| title_full_unstemmed |
FAIR environmental and health registry (FAIREHR) |
| title_sort |
FAIR environmental and health registry (FAIREHR) |
| author |
Zare Jeddi, Maryam |
| author_facet |
Zare Jeddi, Maryam Galea, Karen S. Viegas, Susana Fantke, Peter Louro, Henriqueta Theunis, Jan Govarts, Eva Denys, Sébastien Fillol, Clémence Rambaud, Loïc Kolossa-Gehring, Marike Santonen, Tiina van der Voet, Hilko Ghosh, Manosij Costa, Carla Teixeira, João Paulo Verhagen, Hans Duca, Radu Corneliu Van Nieuwenhuyse, An Jones, Kate Sams, Craig Sepai, Ovnair Tranfo, Giovanna Bakker, Martine Palmen, Nicole van Klaveren, Jacob Scheepers, Paul T.J. Paini, Alicia Canova, Cristina von Goetz, Natalie Katsonouri, Andromachi Karakitsios, Spyros Sarigiannis, Dimosthenis A. Bessems, Jos Machera, Kyriaki Harrad, Stuart Hopf, Nancy B. |
| author_role |
author |
| author2 |
Galea, Karen S. Viegas, Susana Fantke, Peter Louro, Henriqueta Theunis, Jan Govarts, Eva Denys, Sébastien Fillol, Clémence Rambaud, Loïc Kolossa-Gehring, Marike Santonen, Tiina van der Voet, Hilko Ghosh, Manosij Costa, Carla Teixeira, João Paulo Verhagen, Hans Duca, Radu Corneliu Van Nieuwenhuyse, An Jones, Kate Sams, Craig Sepai, Ovnair Tranfo, Giovanna Bakker, Martine Palmen, Nicole van Klaveren, Jacob Scheepers, Paul T.J. Paini, Alicia Canova, Cristina von Goetz, Natalie Katsonouri, Andromachi Karakitsios, Spyros Sarigiannis, Dimosthenis A. Bessems, Jos Machera, Kyriaki Harrad, Stuart Hopf, Nancy B. |
| author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Comprehensive Health Research Centre (CHRC) - Pólo ENSP Escola Nacional de Saúde Pública (ENSP) Centro de Investigação em Saúde Pública (CISP/PHRC) NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) RUN |
| dc.contributor.author.fl_str_mv |
Zare Jeddi, Maryam Galea, Karen S. Viegas, Susana Fantke, Peter Louro, Henriqueta Theunis, Jan Govarts, Eva Denys, Sébastien Fillol, Clémence Rambaud, Loïc Kolossa-Gehring, Marike Santonen, Tiina van der Voet, Hilko Ghosh, Manosij Costa, Carla Teixeira, João Paulo Verhagen, Hans Duca, Radu Corneliu Van Nieuwenhuyse, An Jones, Kate Sams, Craig Sepai, Ovnair Tranfo, Giovanna Bakker, Martine Palmen, Nicole van Klaveren, Jacob Scheepers, Paul T.J. Paini, Alicia Canova, Cristina von Goetz, Natalie Katsonouri, Andromachi Karakitsios, Spyros Sarigiannis, Dimosthenis A. Bessems, Jos Machera, Kyriaki Harrad, Stuart Hopf, Nancy B. |
| dc.subject.por.fl_str_mv |
data-driven decision making environmental medicine exposure science exposure-disease continuum metadata open science preregistration real-world data Pharmacology, Toxicology and Pharmaceutics (miscellaneous) Toxicology SDG 3 - Good Health and Well-being SDG 12 - Responsible Consumption and Production |
| topic |
data-driven decision making environmental medicine exposure science exposure-disease continuum metadata open science preregistration real-world data Pharmacology, Toxicology and Pharmaceutics (miscellaneous) Toxicology SDG 3 - Good Health and Well-being SDG 12 - Responsible Consumption and Production |
| description |
Funding Information: Most co-authors were financialy supported with their respective inistitution. Some of the co-authors were financialy supportrd by the “Safe and Efficient Chemistry by Design (SafeChem)” project (grant no. DIA 2018/11) funded by the Swedish Foundation for Strategic Environmental Research, and by the PARC project (grant no. 101057014) funded under the European Union’s Horizon Europe Research and Innovation program. Publisher Copyright: Copyright © 2023 Zare Jeddi, Galea, Viegas, Fantke, Louro, Theunis, Govarts, Denys, Fillol, Rambaud, Kolossa-Gehring, Santonen, van der Voet, Ghosh, Costa, Teixeira, Verhagen, Duca, Van Nieuwenhuyse, Jones, Sams, Sepai, Tranfo, Bakker, Palmen, van Klaveren, Scheepers, Paini, Canova, von Goetz, Katsonouri, Karakitsios, Sarigiannis, Bessems, Machera, Harrad and Hopf. |
| publishDate |
2023 |
| dc.date.none.fl_str_mv |
2023-07-18T22:16:27Z 2023 2023-01-01T00:00:00Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
| format |
article |
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publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/155498 |
| url |
http://hdl.handle.net/10362/155498 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
2673-3080 PURE: 66670842 https://doi.org/10.3389/ftox.2023.1116707 |
| dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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mluisa.alvim@gmail.com |
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1817545946278395904 |