Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.36367/ntqr.8.2021.202-210 |
Resumo: | The reconstruction of the therapeutic itinerary is a technology applied in the practice of qualitative research. This study intended to analyze the social vulnerability of adults with sickle cell disease, through the reconstruction of therapeutic itineraries. It is a hereditary, chronic disease, highly prevalent in Brazil, which can cause a series of complications throughout the life of the affected individual. In the survey, seven adults (five women and two men) with sickle cell disease were interviewed. The participants, selected intentionally, had in common a clinical and laboratory history of severe sickle cell disease (SS). The collected data were submitted to content analysis, in the thematic modality, applying the categories previously indicated: (a) Income, work and education; (b) Family, social and loving interactions; (c) Patient’s support groups. The results of the study show that the reconstruction of therapeutic itineraries make it possible to understand the various types of social vulnerability in the lives of these people, in the state of Alagoas, showing the differences and similarities in the ways of coping. The link between social vulnerability and receiving little information about the disease when having a medical appointment either/ both in school and work was also observed/ considered in this study. The inclusion of these individuals in social groups — social media, particularly — brought benefits such as source of knowledge, as well as a channel of communication with other people with a similar diagnosis. Therefore, therapeutic itinerary is an important tool for being aware and evaluate this analytical dimension of vulnerability and its linking with self-care regarding to health; identify the need for more effective actions aimed at educational, economic, social and cultural opportunities, and favor the affirmation of the experience brought by people with sickle cell disease. |
id |
RCAP_e3dbde3d6d77dfab463f763aea14eeb6 |
---|---|
oai_identifier_str |
oai:ojs.publi.ludomedia.org:article/407 |
network_acronym_str |
RCAP |
network_name_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository_id_str |
7160 |
spelling |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell DiseaseItinerário Terapêutico e Vulnerabilidade Social em Adultos com Doença FalciformeItinerário TerapêuticoPesquisa QualitativaDoença FalciformeVulnerabilidade SocialTherapeutic ItineraryQualitative ResearchSickle Cell DiseaseSocial VulnerabilityThe reconstruction of the therapeutic itinerary is a technology applied in the practice of qualitative research. This study intended to analyze the social vulnerability of adults with sickle cell disease, through the reconstruction of therapeutic itineraries. It is a hereditary, chronic disease, highly prevalent in Brazil, which can cause a series of complications throughout the life of the affected individual. In the survey, seven adults (five women and two men) with sickle cell disease were interviewed. The participants, selected intentionally, had in common a clinical and laboratory history of severe sickle cell disease (SS). The collected data were submitted to content analysis, in the thematic modality, applying the categories previously indicated: (a) Income, work and education; (b) Family, social and loving interactions; (c) Patient’s support groups. The results of the study show that the reconstruction of therapeutic itineraries make it possible to understand the various types of social vulnerability in the lives of these people, in the state of Alagoas, showing the differences and similarities in the ways of coping. The link between social vulnerability and receiving little information about the disease when having a medical appointment either/ both in school and work was also observed/ considered in this study. The inclusion of these individuals in social groups — social media, particularly — brought benefits such as source of knowledge, as well as a channel of communication with other people with a similar diagnosis. Therefore, therapeutic itinerary is an important tool for being aware and evaluate this analytical dimension of vulnerability and its linking with self-care regarding to health; identify the need for more effective actions aimed at educational, economic, social and cultural opportunities, and favor the affirmation of the experience brought by people with sickle cell disease.A reconstituição do itinerário terapêutico é uma tecnologia utilizada na prática da pesquisa qualitativa. Este estudo buscou analisar a vulnerabilidade social de pessoas adultas com doença falciforme (DF), por meio da reconstrução de itinerários terapêuticos. Trata-se de uma enfermidade hereditária, crônica, de alta prevalência no Brasil, que pode causar uma série de complicações ao longo da vida do indivíduo acometido. Na pesquisa foram entrevistados sete adultos (cinco mulheres e dois homens), com doença falciforme. Os participantes, selecionados de forma intencional, apresentaram em comum um histórico clínico e laboratorial de DF do tipo grave (SS). O material foi submetido à análise de conteúdo, na modalidade temática, utilizando as categorias indicadas previamente: (a) Renda, trabalho e escolaridade; (b) Interações familiar, social e amorosa; (c) Associação de pacientes e Internet. Os resultados da pesquisa demonstraram que a reconstituição de itinerários terapêuticos possibilita a compreensão dos variados modos da vulnerabilidade social na vida dessas pessoas, no estado de Alagoas, apresentando as diferenças e as similaridades nas formas de seu enfrentamento. Observou-se a vulnerabilidade social associada à precária comunicação sobre a doença, no ato da consulta médica, na escola e no trabalho. A inserção desses indivíduos em grupos de convivência, a exemplo das mídias sociais, trouxe benefícios como fonte de conhecimento, bem como canal de comunicação com outras pessoas com diagnóstico semelhante. Portanto, a reconstrução de itinerários terapêuticos mostrou-se uma importante ferramenta para: conhecer e avaliar esta dimensão analítica da vulnerabilidade e sua relação com o autocuidado em saúde; identificar a necessidade de ações mais efetivas visando oportunidades educacional, econômica, social e cultural; e favorecer a afirmação da experiência trazida pelas pessoas com doença falciforme.Ludomedia2021-07-08info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.36367/ntqr.8.2021.202-210https://doi.org/10.36367/ntqr.8.2021.202-210New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 202-210New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 202-210New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 202-2102184-777010.36367/ntqr.8.2021reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://publi.ludomedia.org/index.php/ntqr/article/view/407https://publi.ludomedia.org/index.php/ntqr/article/view/407/403Rosana Brandão VilelaLorena Cardoso CaldasBrunna Correia SantosAlexia Carneiro de AlmeidaMaria Alexsandra SilvaSidney José Santosinfo:eu-repo/semantics/openAccess2023-08-13T09:13:11Zoai:ojs.publi.ludomedia.org:article/407Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:48:15.996811Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease Itinerário Terapêutico e Vulnerabilidade Social em Adultos com Doença Falciforme |
title |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
spellingShingle |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease Rosana Brandão Vilela Itinerário Terapêutico Pesquisa Qualitativa Doença Falciforme Vulnerabilidade Social Therapeutic Itinerary Qualitative Research Sickle Cell Disease Social Vulnerability |
title_short |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
title_full |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
title_fullStr |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
title_full_unstemmed |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
title_sort |
Therapeutic Itinerary and Social Vulnerability in Adults with Sickle Cell Disease |
author |
Rosana Brandão Vilela |
author_facet |
Rosana Brandão Vilela Lorena Cardoso Caldas Brunna Correia Santos Alexia Carneiro de Almeida Maria Alexsandra Silva Sidney José Santos |
author_role |
author |
author2 |
Lorena Cardoso Caldas Brunna Correia Santos Alexia Carneiro de Almeida Maria Alexsandra Silva Sidney José Santos |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Rosana Brandão Vilela Lorena Cardoso Caldas Brunna Correia Santos Alexia Carneiro de Almeida Maria Alexsandra Silva Sidney José Santos |
dc.subject.por.fl_str_mv |
Itinerário Terapêutico Pesquisa Qualitativa Doença Falciforme Vulnerabilidade Social Therapeutic Itinerary Qualitative Research Sickle Cell Disease Social Vulnerability |
topic |
Itinerário Terapêutico Pesquisa Qualitativa Doença Falciforme Vulnerabilidade Social Therapeutic Itinerary Qualitative Research Sickle Cell Disease Social Vulnerability |
description |
The reconstruction of the therapeutic itinerary is a technology applied in the practice of qualitative research. This study intended to analyze the social vulnerability of adults with sickle cell disease, through the reconstruction of therapeutic itineraries. It is a hereditary, chronic disease, highly prevalent in Brazil, which can cause a series of complications throughout the life of the affected individual. In the survey, seven adults (five women and two men) with sickle cell disease were interviewed. The participants, selected intentionally, had in common a clinical and laboratory history of severe sickle cell disease (SS). The collected data were submitted to content analysis, in the thematic modality, applying the categories previously indicated: (a) Income, work and education; (b) Family, social and loving interactions; (c) Patient’s support groups. The results of the study show that the reconstruction of therapeutic itineraries make it possible to understand the various types of social vulnerability in the lives of these people, in the state of Alagoas, showing the differences and similarities in the ways of coping. The link between social vulnerability and receiving little information about the disease when having a medical appointment either/ both in school and work was also observed/ considered in this study. The inclusion of these individuals in social groups — social media, particularly — brought benefits such as source of knowledge, as well as a channel of communication with other people with a similar diagnosis. Therefore, therapeutic itinerary is an important tool for being aware and evaluate this analytical dimension of vulnerability and its linking with self-care regarding to health; identify the need for more effective actions aimed at educational, economic, social and cultural opportunities, and favor the affirmation of the experience brought by people with sickle cell disease. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-07-08 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.36367/ntqr.8.2021.202-210 https://doi.org/10.36367/ntqr.8.2021.202-210 |
url |
https://doi.org/10.36367/ntqr.8.2021.202-210 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://publi.ludomedia.org/index.php/ntqr/article/view/407 https://publi.ludomedia.org/index.php/ntqr/article/view/407/403 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Ludomedia |
publisher.none.fl_str_mv |
Ludomedia |
dc.source.none.fl_str_mv |
New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 202-210 New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 202-210 New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 202-210 2184-7770 10.36367/ntqr.8.2021 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
|
_version_ |
1799130348988137472 |