The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.17/4644 |
Resumo: | During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies. |
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The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNETHCC DAUTOIMCOVID-19 / epidemiology*ComorbidityHumansConnective Tissue Diseases / epidemiology*Connective Tissue Diseases / therapyDelivery of Health Care / organization & administration*Pandemics*SARS-CoV-2*During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.Nature Publishing GroupRepositório do Centro Hospitalar Universitário de Lisboa Central, EPETalarico, RAguilera, SAlexander, TAmoura, ZAntunes, AArnaud, LAvcin, TBeretta, LBombardieri, SBurmester, GCannizzo, SCavagna, LChaigne, BCornet, ACostedoat-Chalumeau, NDoria, AFerraris, AFischer-Betz, RFonseca, JFrank, CGaglioti, AGaletti, IGrunert, JGuimarães, VHachulla, EHoussiau, FIaccarino, LKrieg, TLimper, MMalfait, FMariette, XMarinello, DMartin, TMatthews, LMatucci-Cerinic, MMeyer, AMontecucco, CMouthon, LMüller-Ladner, URednic, SRomão, VSchneider, MSmith, VSulli, ATamirou, FTaruscio, DTaulaigo, ATerol, ETincani, ATicciati, STurchetti, Gvan Hagen, Pvan Laar, JVieira, Ade Vries-Bouwstra, JCutolo, MMosca, M2023-08-17T14:29:52Z2021-032021-03-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.17/4644engNat Rev Rheumatol . 2021 Mar;17(3):177-184.10.1038/s41584-020-00565-zinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-08-20T06:20:45Zoai:repositorio.chlc.min-saude.pt:10400.17/4644Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:27:23.080259Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
title |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
spellingShingle |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET Talarico, R HCC DAUTOIM COVID-19 / epidemiology* Comorbidity Humans Connective Tissue Diseases / epidemiology* Connective Tissue Diseases / therapy Delivery of Health Care / organization & administration* Pandemics* SARS-CoV-2* |
title_short |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
title_full |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
title_fullStr |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
title_full_unstemmed |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
title_sort |
The Impact of COVID-19 on Rare and Complex Connective Tissue Diseases: the Experience of ERN ReCONNET |
author |
Talarico, R |
author_facet |
Talarico, R Aguilera, S Alexander, T Amoura, Z Antunes, A Arnaud, L Avcin, T Beretta, L Bombardieri, S Burmester, G Cannizzo, S Cavagna, L Chaigne, B Cornet, A Costedoat-Chalumeau, N Doria, A Ferraris, A Fischer-Betz, R Fonseca, J Frank, C Gaglioti, A Galetti, I Grunert, J Guimarães, V Hachulla, E Houssiau, F Iaccarino, L Krieg, T Limper, M Malfait, F Mariette, X Marinello, D Martin, T Matthews, L Matucci-Cerinic, M Meyer, A Montecucco, C Mouthon, L Müller-Ladner, U Rednic, S Romão, V Schneider, M Smith, V Sulli, A Tamirou, F Taruscio, D Taulaigo, A Terol, E Tincani, A Ticciati, S Turchetti, G van Hagen, P van Laar, J Vieira, A de Vries-Bouwstra, J Cutolo, M Mosca, M |
author_role |
author |
author2 |
Aguilera, S Alexander, T Amoura, Z Antunes, A Arnaud, L Avcin, T Beretta, L Bombardieri, S Burmester, G Cannizzo, S Cavagna, L Chaigne, B Cornet, A Costedoat-Chalumeau, N Doria, A Ferraris, A Fischer-Betz, R Fonseca, J Frank, C Gaglioti, A Galetti, I Grunert, J Guimarães, V Hachulla, E Houssiau, F Iaccarino, L Krieg, T Limper, M Malfait, F Mariette, X Marinello, D Martin, T Matthews, L Matucci-Cerinic, M Meyer, A Montecucco, C Mouthon, L Müller-Ladner, U Rednic, S Romão, V Schneider, M Smith, V Sulli, A Tamirou, F Taruscio, D Taulaigo, A Terol, E Tincani, A Ticciati, S Turchetti, G van Hagen, P van Laar, J Vieira, A de Vries-Bouwstra, J Cutolo, M Mosca, M |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório do Centro Hospitalar Universitário de Lisboa Central, EPE |
dc.contributor.author.fl_str_mv |
Talarico, R Aguilera, S Alexander, T Amoura, Z Antunes, A Arnaud, L Avcin, T Beretta, L Bombardieri, S Burmester, G Cannizzo, S Cavagna, L Chaigne, B Cornet, A Costedoat-Chalumeau, N Doria, A Ferraris, A Fischer-Betz, R Fonseca, J Frank, C Gaglioti, A Galetti, I Grunert, J Guimarães, V Hachulla, E Houssiau, F Iaccarino, L Krieg, T Limper, M Malfait, F Mariette, X Marinello, D Martin, T Matthews, L Matucci-Cerinic, M Meyer, A Montecucco, C Mouthon, L Müller-Ladner, U Rednic, S Romão, V Schneider, M Smith, V Sulli, A Tamirou, F Taruscio, D Taulaigo, A Terol, E Tincani, A Ticciati, S Turchetti, G van Hagen, P van Laar, J Vieira, A de Vries-Bouwstra, J Cutolo, M Mosca, M |
dc.subject.por.fl_str_mv |
HCC DAUTOIM COVID-19 / epidemiology* Comorbidity Humans Connective Tissue Diseases / epidemiology* Connective Tissue Diseases / therapy Delivery of Health Care / organization & administration* Pandemics* SARS-CoV-2* |
topic |
HCC DAUTOIM COVID-19 / epidemiology* Comorbidity Humans Connective Tissue Diseases / epidemiology* Connective Tissue Diseases / therapy Delivery of Health Care / organization & administration* Pandemics* SARS-CoV-2* |
description |
During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-03 2021-03-01T00:00:00Z 2023-08-17T14:29:52Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.17/4644 |
url |
http://hdl.handle.net/10400.17/4644 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Nat Rev Rheumatol . 2021 Mar;17(3):177-184. 10.1038/s41584-020-00565-z |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Nature Publishing Group |
publisher.none.fl_str_mv |
Nature Publishing Group |
dc.source.none.fl_str_mv |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799133541851725824 |