The child with HIV/AIDS: Truth Disclosure

Detalhes bibliográficos
Autor(a) principal: Galvão, Dulce Maria Pereira Garcia
Data de Publicação: 2014
Outros Autores: Rebelo, Cristiana, Almeida, Daniela, Vale, Mafalda
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://repositorio.esenfc.pt/?url=JU9rAciF
Resumo: Introduction: HIV/AIDS diagnosis disclosure to children brings health benefits and less psychological damage; however, parents avoid it because of HIV-related stigma (WHO, 2011). Objective: To identify key aspects, strategies and consequences of parents' disclosure to the child with HIV/AIDS. Methods: Systematic review of studies published between January/2002 and July/2013 which, regardless of their research methodology, included parents' disclosure to the child with HIV/AIDS, according to the WHO definition, and full-text papers found in EBSCO and in CINAHL, MEDLINE, MedicLatina, Academic Search Complete and Psychology and Behavioral Sciences Collection databases. Search keywords were: child, family, parents, mother, father, HIV/AIDS, diagnosis disclosure and its corresponding terms in Portuguese and Spanish. Studies on disclosure to children with a diagnosis other than HIV/ AIDS were excluded. A total of 1791 papers were found: 20 were selected and 9 were used. Results: Disclosure should be previously prepared. It is a responsibility of the parents/caregivers. Parents fear that their child will react to stigmatization and discrimination. Factors such as the child's age, the parents' level of education, the country's development, reluctance to take medication, and the use of antiretroviral schemes were considered. Diagnosis is partially disclosed or disclosed in a single moment, using simple explanations. It enables higher adherence to therapeutics and responsibility. Stigmatization, social isolation and discrimination are negative consequences. Conclusions: Nurses should help parents/caregivers dealing with this process. There should be a relationship of trust and preparation as to how and when diagnosis should be disclosed.
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spelling The child with HIV/AIDS: Truth DisclosureChild. Family. Parents. HIV/AIDS. Diagnosis disclosureIntroduction: HIV/AIDS diagnosis disclosure to children brings health benefits and less psychological damage; however, parents avoid it because of HIV-related stigma (WHO, 2011). Objective: To identify key aspects, strategies and consequences of parents' disclosure to the child with HIV/AIDS. Methods: Systematic review of studies published between January/2002 and July/2013 which, regardless of their research methodology, included parents' disclosure to the child with HIV/AIDS, according to the WHO definition, and full-text papers found in EBSCO and in CINAHL, MEDLINE, MedicLatina, Academic Search Complete and Psychology and Behavioral Sciences Collection databases. Search keywords were: child, family, parents, mother, father, HIV/AIDS, diagnosis disclosure and its corresponding terms in Portuguese and Spanish. Studies on disclosure to children with a diagnosis other than HIV/ AIDS were excluded. A total of 1791 papers were found: 20 were selected and 9 were used. Results: Disclosure should be previously prepared. It is a responsibility of the parents/caregivers. Parents fear that their child will react to stigmatization and discrimination. Factors such as the child's age, the parents' level of education, the country's development, reluctance to take medication, and the use of antiretroviral schemes were considered. Diagnosis is partially disclosed or disclosed in a single moment, using simple explanations. It enables higher adherence to therapeutics and responsibility. Stigmatization, social isolation and discrimination are negative consequences. Conclusions: Nurses should help parents/caregivers dealing with this process. There should be a relationship of trust and preparation as to how and when diagnosis should be disclosed.2014-05-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://repositorio.esenfc.pt/?url=JU9rAciFenghttp://repositorio.esenfc.pt/?url=JU9rAciFGalvão, Dulce Maria Pereira GarciaRebelo, CristianaAlmeida, DanielaVale, Mafaldainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2014-11-16T00:00:00Zoai:repositorio.esenfc.pt:4783Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T02:11:25.944288Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv The child with HIV/AIDS: Truth Disclosure
title The child with HIV/AIDS: Truth Disclosure
spellingShingle The child with HIV/AIDS: Truth Disclosure
Galvão, Dulce Maria Pereira Garcia
Child. Family. Parents. HIV/AIDS. Diagnosis disclosure
title_short The child with HIV/AIDS: Truth Disclosure
title_full The child with HIV/AIDS: Truth Disclosure
title_fullStr The child with HIV/AIDS: Truth Disclosure
title_full_unstemmed The child with HIV/AIDS: Truth Disclosure
title_sort The child with HIV/AIDS: Truth Disclosure
author Galvão, Dulce Maria Pereira Garcia
author_facet Galvão, Dulce Maria Pereira Garcia
Rebelo, Cristiana
Almeida, Daniela
Vale, Mafalda
author_role author
author2 Rebelo, Cristiana
Almeida, Daniela
Vale, Mafalda
author2_role author
author
author
dc.contributor.author.fl_str_mv Galvão, Dulce Maria Pereira Garcia
Rebelo, Cristiana
Almeida, Daniela
Vale, Mafalda
dc.subject.por.fl_str_mv Child. Family. Parents. HIV/AIDS. Diagnosis disclosure
topic Child. Family. Parents. HIV/AIDS. Diagnosis disclosure
description Introduction: HIV/AIDS diagnosis disclosure to children brings health benefits and less psychological damage; however, parents avoid it because of HIV-related stigma (WHO, 2011). Objective: To identify key aspects, strategies and consequences of parents' disclosure to the child with HIV/AIDS. Methods: Systematic review of studies published between January/2002 and July/2013 which, regardless of their research methodology, included parents' disclosure to the child with HIV/AIDS, according to the WHO definition, and full-text papers found in EBSCO and in CINAHL, MEDLINE, MedicLatina, Academic Search Complete and Psychology and Behavioral Sciences Collection databases. Search keywords were: child, family, parents, mother, father, HIV/AIDS, diagnosis disclosure and its corresponding terms in Portuguese and Spanish. Studies on disclosure to children with a diagnosis other than HIV/ AIDS were excluded. A total of 1791 papers were found: 20 were selected and 9 were used. Results: Disclosure should be previously prepared. It is a responsibility of the parents/caregivers. Parents fear that their child will react to stigmatization and discrimination. Factors such as the child's age, the parents' level of education, the country's development, reluctance to take medication, and the use of antiretroviral schemes were considered. Diagnosis is partially disclosed or disclosed in a single moment, using simple explanations. It enables higher adherence to therapeutics and responsibility. Stigmatization, social isolation and discrimination are negative consequences. Conclusions: Nurses should help parents/caregivers dealing with this process. There should be a relationship of trust and preparation as to how and when diagnosis should be disclosed.
publishDate 2014
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