Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers

Detalhes bibliográficos
Autor(a) principal: Freitas, Maria João
Data de Publicação: 2024
Outros Autores: Remondes-Costa, Sónia, Veiga, Elisa, Macedo, Gerly, Teixeira, Ricardo João, Leite, Manuela
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.14/44122
Resumo: Oncological disease in the palliative stage is a huge challenge for patients and their family caregivers (FCs) due to the fact that it confronts them with death, as well as physical, psychological, and existential suffering. Meaning of Life Therapy (MLT) is a brief structured psycho-existential intervention aiming to help patients in a meaning-making life review process, promoting end-of-life adaptation. The Life Letter (LL) resulting from MLT is an element that facilitates communication between the patient and their caregivers. The goal of this study was to understand the impact of MLT on the grieving processes of eight FCs and to study their perceptions of the role of the LL on grief through semi-structured interviews. The results of our qualitative analysis indicate that MLT was perceived by the FCs as a positive experience despite the conspiracy of silence being identified as a drawback. The LL was interpreted as a communicational element, promoting emotional closeness with the cancer patients and serving as a valuable tool in the FCs’ adaptation to loss. Our research findings show that the needs of FCs, especially after experiencing the loss of their relative, are dynamic and specific. This is why it is urgent to develop interventions that consider the idiosyncrasies of end-of-life cancer patients and their FCs in order to avoid frustrated farewells, lonely deaths, and maladaptive grieving processes. This is the direction in which MLT should evolve.
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spelling Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregiversCancerFamily caregiversGrievingMeaning of life therapyPalliative careOncological disease in the palliative stage is a huge challenge for patients and their family caregivers (FCs) due to the fact that it confronts them with death, as well as physical, psychological, and existential suffering. Meaning of Life Therapy (MLT) is a brief structured psycho-existential intervention aiming to help patients in a meaning-making life review process, promoting end-of-life adaptation. The Life Letter (LL) resulting from MLT is an element that facilitates communication between the patient and their caregivers. The goal of this study was to understand the impact of MLT on the grieving processes of eight FCs and to study their perceptions of the role of the LL on grief through semi-structured interviews. The results of our qualitative analysis indicate that MLT was perceived by the FCs as a positive experience despite the conspiracy of silence being identified as a drawback. The LL was interpreted as a communicational element, promoting emotional closeness with the cancer patients and serving as a valuable tool in the FCs’ adaptation to loss. Our research findings show that the needs of FCs, especially after experiencing the loss of their relative, are dynamic and specific. This is why it is urgent to develop interventions that consider the idiosyncrasies of end-of-life cancer patients and their FCs in order to avoid frustrated farewells, lonely deaths, and maladaptive grieving processes. This is the direction in which MLT should evolve.Veritati - Repositório Institucional da Universidade Católica PortuguesaFreitas, Maria JoãoRemondes-Costa, SóniaVeiga, ElisaMacedo, GerlyTeixeira, Ricardo JoãoLeite, Manuela2024-03-04T11:51:10Z2024-022024-02-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.14/44122eng2227-903210.3390/healthcare1204047185185678520PMC1088766838391846info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-12T01:38:40Zoai:repositorio.ucp.pt:10400.14/44122Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:13:23.063121Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
title Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
spellingShingle Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
Freitas, Maria João
Cancer
Family caregivers
Grieving
Meaning of life therapy
Palliative care
title_short Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
title_full Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
title_fullStr Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
title_full_unstemmed Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
title_sort Life beyond loss: a retrospective analysis of the impact of meaning of life therapy on the grieving process of cancer patients’ family caregivers
author Freitas, Maria João
author_facet Freitas, Maria João
Remondes-Costa, Sónia
Veiga, Elisa
Macedo, Gerly
Teixeira, Ricardo João
Leite, Manuela
author_role author
author2 Remondes-Costa, Sónia
Veiga, Elisa
Macedo, Gerly
Teixeira, Ricardo João
Leite, Manuela
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Veritati - Repositório Institucional da Universidade Católica Portuguesa
dc.contributor.author.fl_str_mv Freitas, Maria João
Remondes-Costa, Sónia
Veiga, Elisa
Macedo, Gerly
Teixeira, Ricardo João
Leite, Manuela
dc.subject.por.fl_str_mv Cancer
Family caregivers
Grieving
Meaning of life therapy
Palliative care
topic Cancer
Family caregivers
Grieving
Meaning of life therapy
Palliative care
description Oncological disease in the palliative stage is a huge challenge for patients and their family caregivers (FCs) due to the fact that it confronts them with death, as well as physical, psychological, and existential suffering. Meaning of Life Therapy (MLT) is a brief structured psycho-existential intervention aiming to help patients in a meaning-making life review process, promoting end-of-life adaptation. The Life Letter (LL) resulting from MLT is an element that facilitates communication between the patient and their caregivers. The goal of this study was to understand the impact of MLT on the grieving processes of eight FCs and to study their perceptions of the role of the LL on grief through semi-structured interviews. The results of our qualitative analysis indicate that MLT was perceived by the FCs as a positive experience despite the conspiracy of silence being identified as a drawback. The LL was interpreted as a communicational element, promoting emotional closeness with the cancer patients and serving as a valuable tool in the FCs’ adaptation to loss. Our research findings show that the needs of FCs, especially after experiencing the loss of their relative, are dynamic and specific. This is why it is urgent to develop interventions that consider the idiosyncrasies of end-of-life cancer patients and their FCs in order to avoid frustrated farewells, lonely deaths, and maladaptive grieving processes. This is the direction in which MLT should evolve.
publishDate 2024
dc.date.none.fl_str_mv 2024-03-04T11:51:10Z
2024-02
2024-02-01T00:00:00Z
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10.3390/healthcare12040471
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