Implementing a data integration infrastructure for healthcare data: A case study

Detalhes bibliográficos
Autor(a) principal: Mira, Miguel Pratas Ferreira
Data de Publicação: 2023
Tipo de documento: Dissertação
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10071/29144
Resumo: In this master thesis, the challenges and opportunities in health data integration are addressed, focusing on data from patients with a history of cardiovascular disease diagnosed with COVID-19. The main objective of this research was to develop a comprehensive approach for integrating health data from a Portuguese hospital into a common shared repository within the scope of a European Project. For this purpose, the characteristics and specificities of the hospital and target database data were analyzed, ensuring the privacy and security of all the information used. In addition, an ETL architecture was developed to perform the hospital's data extraction, transformation and loading to the target database. The research methodology involved a literature review that identified gaps in current practices, including interoperability between healthcare systems, standardization of formats and terminologies, privacy issues, and technical and organizational challenges. The success of the ETL process and the completeness of the target database were evaluated using appropriate metrics, demonstrating the effectiveness of this process. This work contributes to the research field of health data integration by addressing the challenges and opportunities in health data management and analysis in patients with a history of cardiovascular disease diagnosed with COVID- 19. The developed ETL architecture and ETL process evaluation confirm the feasibility of the proposed approach. The results highlight the importance of data privacy, interoperability, and advanced data analysis techniques in healthcare.
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spelling Implementing a data integration infrastructure for healthcare data: A case studyDados médicos -- Medical dataData integrationData warehouseCOVID-19Doença cardiovascular -- Cardiovascular diseaseIntegração de dadosIn this master thesis, the challenges and opportunities in health data integration are addressed, focusing on data from patients with a history of cardiovascular disease diagnosed with COVID-19. The main objective of this research was to develop a comprehensive approach for integrating health data from a Portuguese hospital into a common shared repository within the scope of a European Project. For this purpose, the characteristics and specificities of the hospital and target database data were analyzed, ensuring the privacy and security of all the information used. In addition, an ETL architecture was developed to perform the hospital's data extraction, transformation and loading to the target database. The research methodology involved a literature review that identified gaps in current practices, including interoperability between healthcare systems, standardization of formats and terminologies, privacy issues, and technical and organizational challenges. The success of the ETL process and the completeness of the target database were evaluated using appropriate metrics, demonstrating the effectiveness of this process. This work contributes to the research field of health data integration by addressing the challenges and opportunities in health data management and analysis in patients with a history of cardiovascular disease diagnosed with COVID- 19. The developed ETL architecture and ETL process evaluation confirm the feasibility of the proposed approach. The results highlight the importance of data privacy, interoperability, and advanced data analysis techniques in healthcare.Nesta tese de mestrado são abordados os desafios e oportunidades na integração de dados de saúde, com foco em pacientes com histórico de doenças cardiovasculares diagnosticados com COVID-19. O objetivo principal desta pesquisa foi desenvolver uma abordagem abrangente para a integração de dados de saúde de um hospital português num repositório comum compartilhado, no âmbito de um Projeto europeu. Para o efeito, foram analisadas as características e especificidades dos dados disponibilizados pelo hospital, bem como da base de dados de destino, garantindo a privacidade da informação utilizada. Além disso, foi desenvolvida uma arquitetura ETL para realizar o processo de extração, transformação e carregamento dos dados do hospital para a base de dados de destino. A metodologia de pesquisa envolveu uma revisão bibliográfica que identificou lacunas nas práticas atuais, incluindo a interoperabilidade entre sistemas de saúde, padronização de formatos e terminologias, questões de privacidade, bem como desafios técnicos e organizacionais. O sucesso do processo ETL e a completude da base de dados de destino foram avaliados por meio de métricas apropriadas, demonstrando a eficácia desse processo. Este trabalho contribui para o campo de pesquisa da integração de dados de saúde, abordando os desafios e oportunidades na gestão e análise de dados de saúde em pacientes com histórico de doenças cardiovasculares diagnosticados com COVID-19. A arquitetura ETL desenvolvida e a avaliação do processo ETL confirmam a viabilidade da abordagem proposta. Os resultados destacam a importância da privacidade dos dados, interoperabilidade e técnicas avançadas de análise de dados na área da saúde.2023-08-07T10:36:31Z2023-07-21T00:00:00Z2023-07-212023-06info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfhttp://hdl.handle.net/10071/29144TID:203336100engMira, Miguel Pratas Ferreirainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-07-07T03:55:05Zoai:repositorio.iscte-iul.pt:10071/29144Portal AgregadorONGhttps://www.rcaap.pt/oai/openairemluisa.alvim@gmail.comopendoar:71602024-07-07T03:55:05Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Implementing a data integration infrastructure for healthcare data: A case study
title Implementing a data integration infrastructure for healthcare data: A case study
spellingShingle Implementing a data integration infrastructure for healthcare data: A case study
Mira, Miguel Pratas Ferreira
Dados médicos -- Medical data
Data integration
Data warehouse
COVID-19
Doença cardiovascular -- Cardiovascular disease
Integração de dados
title_short Implementing a data integration infrastructure for healthcare data: A case study
title_full Implementing a data integration infrastructure for healthcare data: A case study
title_fullStr Implementing a data integration infrastructure for healthcare data: A case study
title_full_unstemmed Implementing a data integration infrastructure for healthcare data: A case study
title_sort Implementing a data integration infrastructure for healthcare data: A case study
author Mira, Miguel Pratas Ferreira
author_facet Mira, Miguel Pratas Ferreira
author_role author
dc.contributor.author.fl_str_mv Mira, Miguel Pratas Ferreira
dc.subject.por.fl_str_mv Dados médicos -- Medical data
Data integration
Data warehouse
COVID-19
Doença cardiovascular -- Cardiovascular disease
Integração de dados
topic Dados médicos -- Medical data
Data integration
Data warehouse
COVID-19
Doença cardiovascular -- Cardiovascular disease
Integração de dados
description In this master thesis, the challenges and opportunities in health data integration are addressed, focusing on data from patients with a history of cardiovascular disease diagnosed with COVID-19. The main objective of this research was to develop a comprehensive approach for integrating health data from a Portuguese hospital into a common shared repository within the scope of a European Project. For this purpose, the characteristics and specificities of the hospital and target database data were analyzed, ensuring the privacy and security of all the information used. In addition, an ETL architecture was developed to perform the hospital's data extraction, transformation and loading to the target database. The research methodology involved a literature review that identified gaps in current practices, including interoperability between healthcare systems, standardization of formats and terminologies, privacy issues, and technical and organizational challenges. The success of the ETL process and the completeness of the target database were evaluated using appropriate metrics, demonstrating the effectiveness of this process. This work contributes to the research field of health data integration by addressing the challenges and opportunities in health data management and analysis in patients with a history of cardiovascular disease diagnosed with COVID- 19. The developed ETL architecture and ETL process evaluation confirm the feasibility of the proposed approach. The results highlight the importance of data privacy, interoperability, and advanced data analysis techniques in healthcare.
publishDate 2023
dc.date.none.fl_str_mv 2023-08-07T10:36:31Z
2023-07-21T00:00:00Z
2023-07-21
2023-06
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10071/29144
TID:203336100
url http://hdl.handle.net/10071/29144
identifier_str_mv TID:203336100
dc.language.iso.fl_str_mv eng
language eng
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv mluisa.alvim@gmail.com
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