Impact of dementia on informal care : a systematic review of family caregivers' perceptions

Detalhes bibliográficos
Autor(a) principal: Lindeza, Patricia
Data de Publicação: 2020
Outros Autores: Rodrigues, Mário, João, Costa, Guerreiro, Manuela, Rosa, Mário Miguel
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/44615
Resumo: This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
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spelling Impact of dementia on informal care : a systematic review of family caregivers' perceptionsThis is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.Introduction: Caregivers play a major role in providing all the support and care in daily activities for their relatives with dementia. To fully describe the influence of dementia caregiving on family caregivers’ life, we conducted a systematic review including caregivers’ perceptions about the positive and negative aspects of caring and the expressed factors. Materials and methods: We conducted a systematic review including articles from January 1998 to July 2020. Qualitative studies reporting family caregivers’ perceptions about their experiences and the effects/impact of dementia caregiving were eligible. Two authors extracted the data independently, and the analysis focused on the positive and negative aspects of dementia caregiving in caregivers’ life. Results: Eighty-one studies with 3347 participants were included in this review. The positive aspects of caregiving in caregivers’ life encompass personal accomplishment and strengthening relationships, which were enhanced by good medical counselling/formal care support and family/friends support. The negative aspects included emotional and social aspects experienced by caregivers. Other factors such as inappropriate medical/formal care support, illness progression and the costs of dementia contributed to negative appraisal. Discussion and implications: The findings provide insights into the holistic experience of caring for a person with dementia revelling the major positive and negative aspects underlying the caregiver role. The evidence emphasises the need ‘to focus on positive aspects’ and targeted interventions aimed at reducing the negative impact of caregiving, which has serious consequences on caregivers’ quality of life. A multicomplex intervention for dementia informal caregiving should be developed, committing the society to promote mental health, address these community needs and improve the quality of life of the person with dementia and their family caregivers.This review was funded by the 'Fundação para a Ciência e Tecnologia (FCT)' Portugal and Merck Sharp & Dohme Portugal (grant number PDE/BDE/120498/2016).BMJ Publishing Group Ltd.Repositório da Universidade de LisboaLindeza, PatriciaRodrigues, MárioJoão, CostaGuerreiro, ManuelaRosa, Mário Miguel2020-10-20T11:23:53Z2020-10-142020-10-14T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/44615engBMJ Supportive & Palliative Care 14 October 2020, 0:1-132045-435X10.1136/bmjspcare-2020-0022422045-4368info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:45:47Zoai:repositorio.ul.pt:10451/44615Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:57:09.289758Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Impact of dementia on informal care : a systematic review of family caregivers' perceptions
title Impact of dementia on informal care : a systematic review of family caregivers' perceptions
spellingShingle Impact of dementia on informal care : a systematic review of family caregivers' perceptions
Lindeza, Patricia
title_short Impact of dementia on informal care : a systematic review of family caregivers' perceptions
title_full Impact of dementia on informal care : a systematic review of family caregivers' perceptions
title_fullStr Impact of dementia on informal care : a systematic review of family caregivers' perceptions
title_full_unstemmed Impact of dementia on informal care : a systematic review of family caregivers' perceptions
title_sort Impact of dementia on informal care : a systematic review of family caregivers' perceptions
author Lindeza, Patricia
author_facet Lindeza, Patricia
Rodrigues, Mário
João, Costa
Guerreiro, Manuela
Rosa, Mário Miguel
author_role author
author2 Rodrigues, Mário
João, Costa
Guerreiro, Manuela
Rosa, Mário Miguel
author2_role author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Lindeza, Patricia
Rodrigues, Mário
João, Costa
Guerreiro, Manuela
Rosa, Mário Miguel
description This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
publishDate 2020
dc.date.none.fl_str_mv 2020-10-20T11:23:53Z
2020-10-14
2020-10-14T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/44615
url http://hdl.handle.net/10451/44615
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv BMJ Supportive & Palliative Care 14 October 2020, 0:1-13
2045-435X
10.1136/bmjspcare-2020-002242
2045-4368
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BMJ Publishing Group Ltd.
publisher.none.fl_str_mv BMJ Publishing Group Ltd.
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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