Effects of palliative care for coping at the end of life: a family approach

Detalhes bibliográficos
Autor(a) principal: Toapanta Toapanta, Paulina Marisol
Data de Publicação: 2022
Outros Autores: Quenorán Almeida, Verónica Sofía
Tipo de documento: Artigo
Idioma: spa
Título da fonte: Sapienza (Curitiba)
Texto Completo: https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586
Resumo: Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience.
id SAPIENZA_bb235a63767007f29b78689acbab14e9
oai_identifier_str oai:ojs2.journals.sapienzaeditorial.com:article/586
network_acronym_str SAPIENZA
network_name_str Sapienza (Curitiba)
repository_id_str
spelling Effects of palliative care for coping at the end of life: a family approachEfectos de los cuidados paliativos para el afrontamiento al final de la vida: un enfoque familiarEfeitos dos cuidados paliativos no enfrentamento do fim da vida: uma abordagem familiarcuidados paliativos, fim de vida, cuidador informalpalliative care, end of life, informal caregivercuidados paliativos, final de la vida, cuidador informal.Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience.Introducción: Los cuidados paliativos al final de la vida tienen como objetivo principal proporcionar una buena muerte a través del alivio del sufrimiento físico, emocional y espiritual. Objetivo: determinar los efectos de los cuidados paliativos para el afrontamiento al final de la vida. Método: investigación cualitativa, descriptiva, retrospectiva con enfoque fenomenológico, en una muestra de 10 cuidadores familiares de pacientes que padecieron enfermedades terminales con algún tiempo de fase paliativa y que actualmente hayan fallecido. La técnica de recolección de información fue la entrevista. Resultados: los resultados demuestran que el cuidador informal está presto a cumplir su rol, lo asume como una experiencia positiva, pero también fue evidente la falta de información, entrenamiento y reconocimiento de necesidades. Conclusiones: Las actividades realizadas por el cuidador fueron efectivas para afrontar la fase final de vida del paciente en fase paliativa, pues, pese a que fueron empíricos, el rol fue asumido como una experiencia positiva y satisfactoria. Introdução: Os cuidados paliativos em fim de vida têm como principal objetivo proporcionar uma boa morte através do alívio do sofrimento físico, emocional e espiritual. Objetivo: determinar os efeitos dos cuidados paliativos para o enfrentamento no final da vida. Método: pesquisa qualitativa, descritiva, retrospectiva com abordagem fenomenológica, em uma amostra de 10 cuidadores familiares de pacientes que sofreram de doenças terminais com algum tempo em fase paliativa e que já faleceram. A técnica de coleta de dados foi a entrevista. Resultados: os resultados mostram que o cuidador informal está pronto para cumprir o seu papel, assume-o como uma experiência positiva, mas também ficou evidente a falta de informação, formação e reconhecimento das necessidades. Conclusões: As atividades realizadas pelo cuidador foram eficazes no enfrentamento da fase final de vida do paciente em fase paliativa pois, apesar de serem empíricas, o papel foi assumido como uma experiência positiva e satisfatória.Sapienza Grupo Editorial2022-12-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/58610.51798/sijis.v3i8.586Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 No. 8 (2022): Current affairs in Health Sciences III; 259-271Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 Núm. 8 (2022): Actualidad en Ciencias de la Salud III; 259-271Sapienza: International Journal of Interdisciplinary Studies; v. 3 n. 8 (2022): Atualidades em Ciências da Saúde III; 259-2712675-978010.51798/sijis.v3i8reponame:Sapienza (Curitiba)instname:Sapienza Grupo Editorialinstacron:SAPIENZAspahttps://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586/414Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeidahttps://creativecommons.org/licenses/by-nc-nd/4.0info:eu-repo/semantics/openAccessToapanta Toapanta, Paulina Marisol Quenorán Almeida, Verónica Sofía 2023-01-02T19:52:14Zoai:ojs2.journals.sapienzaeditorial.com:article/586Revistahttps://journals.sapienzaeditorial.com/index.php/SIJISPRIhttps://journals.sapienzaeditorial.com/index.php/SIJIS/oaieditor@sapienzaeditorial.com2675-97802675-9780opendoar:2023-01-12T16:43:06.011035Sapienza (Curitiba) - Sapienza Grupo Editorialfalse
dc.title.none.fl_str_mv Effects of palliative care for coping at the end of life: a family approach
Efectos de los cuidados paliativos para el afrontamiento al final de la vida: un enfoque familiar
Efeitos dos cuidados paliativos no enfrentamento do fim da vida: uma abordagem familiar
title Effects of palliative care for coping at the end of life: a family approach
spellingShingle Effects of palliative care for coping at the end of life: a family approach
Toapanta Toapanta, Paulina Marisol
cuidados paliativos, fim de vida, cuidador informal
palliative care, end of life, informal caregiver
cuidados paliativos, final de la vida, cuidador informal.
title_short Effects of palliative care for coping at the end of life: a family approach
title_full Effects of palliative care for coping at the end of life: a family approach
title_fullStr Effects of palliative care for coping at the end of life: a family approach
title_full_unstemmed Effects of palliative care for coping at the end of life: a family approach
title_sort Effects of palliative care for coping at the end of life: a family approach
author Toapanta Toapanta, Paulina Marisol
author_facet Toapanta Toapanta, Paulina Marisol
Quenorán Almeida, Verónica Sofía
author_role author
author2 Quenorán Almeida, Verónica Sofía
author2_role author
dc.contributor.author.fl_str_mv Toapanta Toapanta, Paulina Marisol
Quenorán Almeida, Verónica Sofía
dc.subject.por.fl_str_mv cuidados paliativos, fim de vida, cuidador informal
palliative care, end of life, informal caregiver
cuidados paliativos, final de la vida, cuidador informal.
topic cuidados paliativos, fim de vida, cuidador informal
palliative care, end of life, informal caregiver
cuidados paliativos, final de la vida, cuidador informal.
description Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience.
publishDate 2022
dc.date.none.fl_str_mv 2022-12-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586
10.51798/sijis.v3i8.586
url https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586
identifier_str_mv 10.51798/sijis.v3i8.586
dc.language.iso.fl_str_mv spa
language spa
dc.relation.none.fl_str_mv https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586/414
dc.rights.driver.fl_str_mv Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeida
https://creativecommons.org/licenses/by-nc-nd/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeida
https://creativecommons.org/licenses/by-nc-nd/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Sapienza Grupo Editorial
publisher.none.fl_str_mv Sapienza Grupo Editorial
dc.source.none.fl_str_mv Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 No. 8 (2022): Current affairs in Health Sciences III; 259-271
Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 Núm. 8 (2022): Actualidad en Ciencias de la Salud III; 259-271
Sapienza: International Journal of Interdisciplinary Studies; v. 3 n. 8 (2022): Atualidades em Ciências da Saúde III; 259-271
2675-9780
10.51798/sijis.v3i8
reponame:Sapienza (Curitiba)
instname:Sapienza Grupo Editorial
instacron:SAPIENZA
instname_str Sapienza Grupo Editorial
instacron_str SAPIENZA
institution SAPIENZA
reponame_str Sapienza (Curitiba)
collection Sapienza (Curitiba)
repository.name.fl_str_mv Sapienza (Curitiba) - Sapienza Grupo Editorial
repository.mail.fl_str_mv editor@sapienzaeditorial.com
_version_ 1797051609181585408