Effects of palliative care for coping at the end of life: a family approach
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Data de Publicação: | 2022 |
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Tipo de documento: | Artigo |
Idioma: | spa |
Título da fonte: | Sapienza (Curitiba) |
Texto Completo: | https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586 |
Resumo: | Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience. |
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Effects of palliative care for coping at the end of life: a family approachEfectos de los cuidados paliativos para el afrontamiento al final de la vida: un enfoque familiarEfeitos dos cuidados paliativos no enfrentamento do fim da vida: uma abordagem familiarcuidados paliativos, fim de vida, cuidador informalpalliative care, end of life, informal caregivercuidados paliativos, final de la vida, cuidador informal.Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience.Introducción: Los cuidados paliativos al final de la vida tienen como objetivo principal proporcionar una buena muerte a través del alivio del sufrimiento físico, emocional y espiritual. Objetivo: determinar los efectos de los cuidados paliativos para el afrontamiento al final de la vida. Método: investigación cualitativa, descriptiva, retrospectiva con enfoque fenomenológico, en una muestra de 10 cuidadores familiares de pacientes que padecieron enfermedades terminales con algún tiempo de fase paliativa y que actualmente hayan fallecido. La técnica de recolección de información fue la entrevista. Resultados: los resultados demuestran que el cuidador informal está presto a cumplir su rol, lo asume como una experiencia positiva, pero también fue evidente la falta de información, entrenamiento y reconocimiento de necesidades. Conclusiones: Las actividades realizadas por el cuidador fueron efectivas para afrontar la fase final de vida del paciente en fase paliativa, pues, pese a que fueron empíricos, el rol fue asumido como una experiencia positiva y satisfactoria. Introdução: Os cuidados paliativos em fim de vida têm como principal objetivo proporcionar uma boa morte através do alívio do sofrimento físico, emocional e espiritual. Objetivo: determinar os efeitos dos cuidados paliativos para o enfrentamento no final da vida. Método: pesquisa qualitativa, descritiva, retrospectiva com abordagem fenomenológica, em uma amostra de 10 cuidadores familiares de pacientes que sofreram de doenças terminais com algum tempo em fase paliativa e que já faleceram. A técnica de coleta de dados foi a entrevista. Resultados: os resultados mostram que o cuidador informal está pronto para cumprir o seu papel, assume-o como uma experiência positiva, mas também ficou evidente a falta de informação, formação e reconhecimento das necessidades. Conclusões: As atividades realizadas pelo cuidador foram eficazes no enfrentamento da fase final de vida do paciente em fase paliativa pois, apesar de serem empíricas, o papel foi assumido como uma experiência positiva e satisfatória.Sapienza Grupo Editorial2022-12-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/58610.51798/sijis.v3i8.586Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 No. 8 (2022): Current affairs in Health Sciences III; 259-271Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 Núm. 8 (2022): Actualidad en Ciencias de la Salud III; 259-271Sapienza: International Journal of Interdisciplinary Studies; v. 3 n. 8 (2022): Atualidades em Ciências da Saúde III; 259-2712675-978010.51798/sijis.v3i8reponame:Sapienza (Curitiba)instname:Sapienza Grupo Editorialinstacron:SAPIENZAspahttps://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586/414Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeidahttps://creativecommons.org/licenses/by-nc-nd/4.0info:eu-repo/semantics/openAccessToapanta Toapanta, Paulina Marisol Quenorán Almeida, Verónica Sofía 2023-01-02T19:52:14Zoai:ojs2.journals.sapienzaeditorial.com:article/586Revistahttps://journals.sapienzaeditorial.com/index.php/SIJISPRIhttps://journals.sapienzaeditorial.com/index.php/SIJIS/oaieditor@sapienzaeditorial.com2675-97802675-9780opendoar:2023-01-12T16:43:06.011035Sapienza (Curitiba) - Sapienza Grupo Editorialfalse |
dc.title.none.fl_str_mv |
Effects of palliative care for coping at the end of life: a family approach Efectos de los cuidados paliativos para el afrontamiento al final de la vida: un enfoque familiar Efeitos dos cuidados paliativos no enfrentamento do fim da vida: uma abordagem familiar |
title |
Effects of palliative care for coping at the end of life: a family approach |
spellingShingle |
Effects of palliative care for coping at the end of life: a family approach Toapanta Toapanta, Paulina Marisol cuidados paliativos, fim de vida, cuidador informal palliative care, end of life, informal caregiver cuidados paliativos, final de la vida, cuidador informal. |
title_short |
Effects of palliative care for coping at the end of life: a family approach |
title_full |
Effects of palliative care for coping at the end of life: a family approach |
title_fullStr |
Effects of palliative care for coping at the end of life: a family approach |
title_full_unstemmed |
Effects of palliative care for coping at the end of life: a family approach |
title_sort |
Effects of palliative care for coping at the end of life: a family approach |
author |
Toapanta Toapanta, Paulina Marisol |
author_facet |
Toapanta Toapanta, Paulina Marisol Quenorán Almeida, Verónica Sofía |
author_role |
author |
author2 |
Quenorán Almeida, Verónica Sofía |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Toapanta Toapanta, Paulina Marisol Quenorán Almeida, Verónica Sofía |
dc.subject.por.fl_str_mv |
cuidados paliativos, fim de vida, cuidador informal palliative care, end of life, informal caregiver cuidados paliativos, final de la vida, cuidador informal. |
topic |
cuidados paliativos, fim de vida, cuidador informal palliative care, end of life, informal caregiver cuidados paliativos, final de la vida, cuidador informal. |
description |
Introduction: Palliative care at the end of life has as its main objective to provide a good death through the relief of physical, emotional and spiritual suffering. Objective: to determine the effects of palliative care for coping at the end of life. Method: qualitative, descriptive, retrospective research with a phenomenological approach, in a sample of 10 family caregivers of patients who suffered from terminal illnesses with sometime in the palliative phase and who have currently died. The data collection technique was the interview. Results: the results show that the informal caregiver is ready to fulfill his role, he assumes it as a positive experience, but the lack of information, training and recognition of needs was also evident. Conclusions: The activities carried out by the caregiver were effective in coping with the final phase of life of the patient in the palliative phase because, despite the fact that they were empirical, the role was assumed as a positive and satisfactory experience. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-12-30 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586 10.51798/sijis.v3i8.586 |
url |
https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586 |
identifier_str_mv |
10.51798/sijis.v3i8.586 |
dc.language.iso.fl_str_mv |
spa |
language |
spa |
dc.relation.none.fl_str_mv |
https://journals.sapienzaeditorial.com/index.php/SIJIS/article/view/586/414 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeida https://creativecommons.org/licenses/by-nc-nd/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2022 Paulina Marisol Toapanta Toapanta, Verónica Sofía Quenorán Almeida https://creativecommons.org/licenses/by-nc-nd/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Sapienza Grupo Editorial |
publisher.none.fl_str_mv |
Sapienza Grupo Editorial |
dc.source.none.fl_str_mv |
Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 No. 8 (2022): Current affairs in Health Sciences III; 259-271 Sapienza: International Journal of Interdisciplinary Studies; Vol. 3 Núm. 8 (2022): Actualidad en Ciencias de la Salud III; 259-271 Sapienza: International Journal of Interdisciplinary Studies; v. 3 n. 8 (2022): Atualidades em Ciências da Saúde III; 259-271 2675-9780 10.51798/sijis.v3i8 reponame:Sapienza (Curitiba) instname:Sapienza Grupo Editorial instacron:SAPIENZA |
instname_str |
Sapienza Grupo Editorial |
instacron_str |
SAPIENZA |
institution |
SAPIENZA |
reponame_str |
Sapienza (Curitiba) |
collection |
Sapienza (Curitiba) |
repository.name.fl_str_mv |
Sapienza (Curitiba) - Sapienza Grupo Editorial |
repository.mail.fl_str_mv |
editor@sapienzaeditorial.com |
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1797051609181585408 |