Autism in Brazil: a systematic review of family challenges and coping strategies
Autor(a) principal: | |
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Data de Publicação: | 2015 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Jornal de Pediatria (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572015000200111 |
Resumo: | OBJECTIVE: To describe the challenges faced by families caring for children with autism spectrum disorder (ASD) in Brazil and the coping strategies employed. SOURCES: Systematic review of articles published until September of 2013, without language restrictions, using quality appraisal (AMSTAR and CASP/Oxford instruments). SUMMARY OF THE FINDINGS: The literature shows parental emotional overload as one of the main challenges faced by families, especially mothers. The main stressors were diagnostic postponement, difficulty dealing with the diagnosis and associated symptoms, and poor access to health services and social support. The predominant coping strategies found included information exchange between affected families and integrated healthcare network for patient and family support. CONCLUSION: ASD exerts strong influence on family dynamics, resulting in caregiver overload, especially in mothers. The Brazilian Unified Health System needs to provide comprehensive, continuous, and coordinated care to strengthen the patient-family dyad and promote the full development and societal inclusion of children with ASD. |
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Autism in Brazil: a systematic review of family challenges and coping strategies Autistic disorderAutismFamily relationsCaregiversBrazilian Unified Health System OBJECTIVE: To describe the challenges faced by families caring for children with autism spectrum disorder (ASD) in Brazil and the coping strategies employed. SOURCES: Systematic review of articles published until September of 2013, without language restrictions, using quality appraisal (AMSTAR and CASP/Oxford instruments). SUMMARY OF THE FINDINGS: The literature shows parental emotional overload as one of the main challenges faced by families, especially mothers. The main stressors were diagnostic postponement, difficulty dealing with the diagnosis and associated symptoms, and poor access to health services and social support. The predominant coping strategies found included information exchange between affected families and integrated healthcare network for patient and family support. CONCLUSION: ASD exerts strong influence on family dynamics, resulting in caregiver overload, especially in mothers. The Brazilian Unified Health System needs to provide comprehensive, continuous, and coordinated care to strengthen the patient-family dyad and promote the full development and societal inclusion of children with ASD. Sociedade Brasileira de Pediatria2015-04-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572015000200111Jornal de Pediatria v.91 n.2 2015reponame:Jornal de Pediatria (Online)instname:Sociedade Brasileira de Pediatria (SBP)instacron:SBPE10.1016/j.jped.2014.08.009info:eu-repo/semantics/openAccessGomes,Paulyane T.M.Lima,Leonardo H.L.Bueno,Mayza K.G.Araújo,Liubiana A.Souza,Nathan M.eng2015-08-04T00:00:00Zoai:scielo:S0021-75572015000200111Revistahttp://www.jped.com.br/https://old.scielo.br/oai/scielo-oai.php||jped@jped.com.br1678-47820021-7557opendoar:2015-08-04T00:00Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP)false |
dc.title.none.fl_str_mv |
Autism in Brazil: a systematic review of family challenges and coping strategies |
title |
Autism in Brazil: a systematic review of family challenges and coping strategies |
spellingShingle |
Autism in Brazil: a systematic review of family challenges and coping strategies Gomes,Paulyane T.M. Autistic disorder Autism Family relations Caregivers Brazilian Unified Health System |
title_short |
Autism in Brazil: a systematic review of family challenges and coping strategies |
title_full |
Autism in Brazil: a systematic review of family challenges and coping strategies |
title_fullStr |
Autism in Brazil: a systematic review of family challenges and coping strategies |
title_full_unstemmed |
Autism in Brazil: a systematic review of family challenges and coping strategies |
title_sort |
Autism in Brazil: a systematic review of family challenges and coping strategies |
author |
Gomes,Paulyane T.M. |
author_facet |
Gomes,Paulyane T.M. Lima,Leonardo H.L. Bueno,Mayza K.G. Araújo,Liubiana A. Souza,Nathan M. |
author_role |
author |
author2 |
Lima,Leonardo H.L. Bueno,Mayza K.G. Araújo,Liubiana A. Souza,Nathan M. |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Gomes,Paulyane T.M. Lima,Leonardo H.L. Bueno,Mayza K.G. Araújo,Liubiana A. Souza,Nathan M. |
dc.subject.por.fl_str_mv |
Autistic disorder Autism Family relations Caregivers Brazilian Unified Health System |
topic |
Autistic disorder Autism Family relations Caregivers Brazilian Unified Health System |
description |
OBJECTIVE: To describe the challenges faced by families caring for children with autism spectrum disorder (ASD) in Brazil and the coping strategies employed. SOURCES: Systematic review of articles published until September of 2013, without language restrictions, using quality appraisal (AMSTAR and CASP/Oxford instruments). SUMMARY OF THE FINDINGS: The literature shows parental emotional overload as one of the main challenges faced by families, especially mothers. The main stressors were diagnostic postponement, difficulty dealing with the diagnosis and associated symptoms, and poor access to health services and social support. The predominant coping strategies found included information exchange between affected families and integrated healthcare network for patient and family support. CONCLUSION: ASD exerts strong influence on family dynamics, resulting in caregiver overload, especially in mothers. The Brazilian Unified Health System needs to provide comprehensive, continuous, and coordinated care to strengthen the patient-family dyad and promote the full development and societal inclusion of children with ASD. |
publishDate |
2015 |
dc.date.none.fl_str_mv |
2015-04-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572015000200111 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0021-75572015000200111 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1016/j.jped.2014.08.009 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Sociedade Brasileira de Pediatria |
publisher.none.fl_str_mv |
Sociedade Brasileira de Pediatria |
dc.source.none.fl_str_mv |
Jornal de Pediatria v.91 n.2 2015 reponame:Jornal de Pediatria (Online) instname:Sociedade Brasileira de Pediatria (SBP) instacron:SBPE |
instname_str |
Sociedade Brasileira de Pediatria (SBP) |
instacron_str |
SBPE |
institution |
SBPE |
reponame_str |
Jornal de Pediatria (Online) |
collection |
Jornal de Pediatria (Online) |
repository.name.fl_str_mv |
Jornal de Pediatria (Online) - Sociedade Brasileira de Pediatria (SBP) |
repository.mail.fl_str_mv |
||jped@jped.com.br |
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1752122320070115328 |