Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study

Detalhes bibliográficos
Autor(a) principal: DEPS,Tahyná Duda
Data de Publicação: 2020
Outros Autores: CARNEIRO,Natalia Cristina Ruy, NICOLAU,Belinda, PORDEUS,Isabela Almeida, BORGES-OLIVEIRA,Ana Cristina
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Brazilian Oral Research
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1806-83242020000100278
Resumo: Abstract The purpose of the present study was to compare the perceptions of the parents/ caregivers of young people with and without Mucopolysaccharidosis (MPS) with regards to their oral health-related quality of life (OHRQoL). A cross-sectional study was conducted with 29 individuals with MPS and 29 normotypic individuals aged three to 21 years and their parents/caregivers. All parents/caregivers of young people with MPS in follow-up at two reference hospitals in the city of Belo Horizonte, southeastern Brazil, were invited to participate in the study. Individuals without MPS were recruited from the pediatric clinics of both hospitals. Parents/caregivers answered a structured questionnaire addressing the sociodemographic characteristics, behavioral habits and medical and dental history of the children as well as the Brazilian short-form version of the Parental-Caregiver (P-CPQ). The individuals with and without MPS were examined for malocclusion, dental caries and oral hygiene by an examiner who had undergone training and calibration exercises. Mean age of the subjects was 12.1 years (± 4.2). Comparing total P-CPQ scores and scores on the oral symptoms, functional limitations and wellbeing domains, the parents/caregivers individuos with MPS reported a statistically significant greater negative impact on OS domain than their counterparts. Regarding the clinical variables, malocclusion was also associated a greater negative impact on OHRQoL of young people with MPS when compared to those of young people without MPS. Our findings show the great negative impact caused by the malocclusion of young people with MPS.
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spelling Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional studyMucopolysaccharidosisRare DiseasesQuality of LifeOral HealthDental Care for DisabledAbstract The purpose of the present study was to compare the perceptions of the parents/ caregivers of young people with and without Mucopolysaccharidosis (MPS) with regards to their oral health-related quality of life (OHRQoL). A cross-sectional study was conducted with 29 individuals with MPS and 29 normotypic individuals aged three to 21 years and their parents/caregivers. All parents/caregivers of young people with MPS in follow-up at two reference hospitals in the city of Belo Horizonte, southeastern Brazil, were invited to participate in the study. Individuals without MPS were recruited from the pediatric clinics of both hospitals. Parents/caregivers answered a structured questionnaire addressing the sociodemographic characteristics, behavioral habits and medical and dental history of the children as well as the Brazilian short-form version of the Parental-Caregiver (P-CPQ). The individuals with and without MPS were examined for malocclusion, dental caries and oral hygiene by an examiner who had undergone training and calibration exercises. Mean age of the subjects was 12.1 years (± 4.2). Comparing total P-CPQ scores and scores on the oral symptoms, functional limitations and wellbeing domains, the parents/caregivers individuos with MPS reported a statistically significant greater negative impact on OS domain than their counterparts. Regarding the clinical variables, malocclusion was also associated a greater negative impact on OHRQoL of young people with MPS when compared to those of young people without MPS. Our findings show the great negative impact caused by the malocclusion of young people with MPS.Sociedade Brasileira de Pesquisa Odontológica - SBPqO2020-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S1806-83242020000100278Brazilian Oral Research v.34 2020reponame:Brazilian Oral Researchinstname:Sociedade Brasileira de Pesquisa Odontológica (SBPqO)instacron:SBPQO10.1590/1807-3107bor-2020.vol34.0109info:eu-repo/semantics/openAccessDEPS,Tahyná DudaCARNEIRO,Natalia Cristina RuyNICOLAU,BelindaPORDEUS,Isabela AlmeidaBORGES-OLIVEIRA,Ana Cristinaeng2020-08-26T00:00:00Zoai:scielo:S1806-83242020000100278Revistahttps://www.scielo.br/j/bor/https://old.scielo.br/oai/scielo-oai.phppob@edu.usp.br||bor@sbpqo.org.br1807-31071806-8324opendoar:2020-08-26T00:00Brazilian Oral Research - Sociedade Brasileira de Pesquisa Odontológica (SBPqO)false
dc.title.none.fl_str_mv Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
title Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
spellingShingle Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
DEPS,Tahyná Duda
Mucopolysaccharidosis
Rare Diseases
Quality of Life
Oral Health
Dental Care for Disabled
title_short Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
title_full Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
title_fullStr Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
title_full_unstemmed Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
title_sort Oral health-related quality of life of young people with mucopolysaccharidosis: a paired cross-sectional study
author DEPS,Tahyná Duda
author_facet DEPS,Tahyná Duda
CARNEIRO,Natalia Cristina Ruy
NICOLAU,Belinda
PORDEUS,Isabela Almeida
BORGES-OLIVEIRA,Ana Cristina
author_role author
author2 CARNEIRO,Natalia Cristina Ruy
NICOLAU,Belinda
PORDEUS,Isabela Almeida
BORGES-OLIVEIRA,Ana Cristina
author2_role author
author
author
author
dc.contributor.author.fl_str_mv DEPS,Tahyná Duda
CARNEIRO,Natalia Cristina Ruy
NICOLAU,Belinda
PORDEUS,Isabela Almeida
BORGES-OLIVEIRA,Ana Cristina
dc.subject.por.fl_str_mv Mucopolysaccharidosis
Rare Diseases
Quality of Life
Oral Health
Dental Care for Disabled
topic Mucopolysaccharidosis
Rare Diseases
Quality of Life
Oral Health
Dental Care for Disabled
description Abstract The purpose of the present study was to compare the perceptions of the parents/ caregivers of young people with and without Mucopolysaccharidosis (MPS) with regards to their oral health-related quality of life (OHRQoL). A cross-sectional study was conducted with 29 individuals with MPS and 29 normotypic individuals aged three to 21 years and their parents/caregivers. All parents/caregivers of young people with MPS in follow-up at two reference hospitals in the city of Belo Horizonte, southeastern Brazil, were invited to participate in the study. Individuals without MPS were recruited from the pediatric clinics of both hospitals. Parents/caregivers answered a structured questionnaire addressing the sociodemographic characteristics, behavioral habits and medical and dental history of the children as well as the Brazilian short-form version of the Parental-Caregiver (P-CPQ). The individuals with and without MPS were examined for malocclusion, dental caries and oral hygiene by an examiner who had undergone training and calibration exercises. Mean age of the subjects was 12.1 years (± 4.2). Comparing total P-CPQ scores and scores on the oral symptoms, functional limitations and wellbeing domains, the parents/caregivers individuos with MPS reported a statistically significant greater negative impact on OS domain than their counterparts. Regarding the clinical variables, malocclusion was also associated a greater negative impact on OHRQoL of young people with MPS when compared to those of young people without MPS. Our findings show the great negative impact caused by the malocclusion of young people with MPS.
publishDate 2020
dc.date.none.fl_str_mv 2020-01-01
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dc.language.iso.fl_str_mv eng
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dc.relation.none.fl_str_mv 10.1590/1807-3107bor-2020.vol34.0109
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dc.publisher.none.fl_str_mv Sociedade Brasileira de Pesquisa Odontológica - SBPqO
publisher.none.fl_str_mv Sociedade Brasileira de Pesquisa Odontológica - SBPqO
dc.source.none.fl_str_mv Brazilian Oral Research v.34 2020
reponame:Brazilian Oral Research
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reponame_str Brazilian Oral Research
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repository.name.fl_str_mv Brazilian Oral Research - Sociedade Brasileira de Pesquisa Odontológica (SBPqO)
repository.mail.fl_str_mv pob@edu.usp.br||bor@sbpqo.org.br
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