Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva
Autor(a) principal: | |
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Data de Publicação: | 2011 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFSCAR |
Texto Completo: | https://repositorio.ufscar.br/handle/ufscar/3231 |
Resumo: | This work scoped to comprehend the experience of the cochlear implant user auditive deficient child‟s family, more precisely to understand its role, identify the changes into the everyday life, describe the strategies which are in between the cohabiting with the auditive deficiency in the childhood, and, to acknowledge the structure, the development and the family functionality. This research is about a qualitative work having the Symbolic Interactionism and a The Grounded Theory as theoretical and methodological references respectively. To obtain the data we used genogram, ecomap and consented interview semistructured. Nine families participated in the study, reaching a total of 32 participants. The data analysis permitted us build up seven thematic categories: In seeing an idealized future pulling down, Seizing to the hope of implanting, Battling for results, Facing hard moments, Recognizing that she doesn t face it all alone, Learning to overcome, and Having the life rescued by the cochlear implant, which compose the phenomenon: MOBILIZING TO RESCUE THE FAMILY LIFE THROUGH THE COCHLEAR IMPLANT, by which we comprehend this experience. We learnt that the implant altered the path of their lives and it permitted the family resignify the deafness. It is like a passport which makes possible to the child to live in the world with less difficulties, more independency and autonomy, and with more chances of a personal, social, academic and professional future of success like any other child. The results show us that it is indispensible to make the family participate actively into the child‟s linguistic development and let the communication skill be worked, for its role as protagonist in the process of rehabilitation and constant stimulation showed us to be evident. We expect that this work may help and conduct the professionals involved in the area to care for the families of auditive deficient children, specially the implanted ones, taking into account the familiar perspective in its professional practice. And we make an invitation to the Nursing Field to approach those families into the reality and to the complexity of the experience of the cochlear implant in the childhood, in order to appropriate the knowledge of this issue, act and exercise their practices. |
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Vieira, Sheila de SouzaDupas, Gisellehttp://lattes.cnpq.br/9461883918498554http://lattes.cnpq.br/5466081448977540ffd3cf0b-c079-4863-8f36-11a5422767452016-06-02T19:48:18Z2011-04-252016-06-02T19:48:18Z2011-02-25VIEIRA, Sheila de Souza. Mobilizing to rescue the life through the cochlear implant: the experience of the cochlear implant user auditive deficient child s family. 2011. 207 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011.https://repositorio.ufscar.br/handle/ufscar/3231This work scoped to comprehend the experience of the cochlear implant user auditive deficient child‟s family, more precisely to understand its role, identify the changes into the everyday life, describe the strategies which are in between the cohabiting with the auditive deficiency in the childhood, and, to acknowledge the structure, the development and the family functionality. This research is about a qualitative work having the Symbolic Interactionism and a The Grounded Theory as theoretical and methodological references respectively. To obtain the data we used genogram, ecomap and consented interview semistructured. Nine families participated in the study, reaching a total of 32 participants. The data analysis permitted us build up seven thematic categories: In seeing an idealized future pulling down, Seizing to the hope of implanting, Battling for results, Facing hard moments, Recognizing that she doesn t face it all alone, Learning to overcome, and Having the life rescued by the cochlear implant, which compose the phenomenon: MOBILIZING TO RESCUE THE FAMILY LIFE THROUGH THE COCHLEAR IMPLANT, by which we comprehend this experience. We learnt that the implant altered the path of their lives and it permitted the family resignify the deafness. It is like a passport which makes possible to the child to live in the world with less difficulties, more independency and autonomy, and with more chances of a personal, social, academic and professional future of success like any other child. The results show us that it is indispensible to make the family participate actively into the child‟s linguistic development and let the communication skill be worked, for its role as protagonist in the process of rehabilitation and constant stimulation showed us to be evident. We expect that this work may help and conduct the professionals involved in the area to care for the families of auditive deficient children, specially the implanted ones, taking into account the familiar perspective in its professional practice. And we make an invitation to the Nursing Field to approach those families into the reality and to the complexity of the experience of the cochlear implant in the childhood, in order to appropriate the knowledge of this issue, act and exercise their practices.Este trabalho objetivou compreender a experiência da família da criança com deficiência auditiva usuária de implante coclear, mais especificamente entender seu papel, identificar as mudanças e dificuldades na vida diária, descrever as estratégias de enfrentamento e os elementos facilitadores, conhecer os sentimentos que permeiam conviver com a deficiência auditiva na infância, e, conhecer a estrutura, o desenvolvimento e funcionamento familiar. Trata-se de uma pesquisa qualitativa, tendo o Interacionismo Simbólico e a Teoria Fundamentada nos Dados, como referenciais teórico e metodológico respectivamente. Os instrumentos de coleta de dados foram: genograma, ecomapa e entrevista consentida semiestruturada. Participaram do estudo nove famílias, num total de 32 participantes. A análise dos dados permitiu construir sete categorias temáticas: Vendo desmoronar um futuro idealizado, Agarrando-se à esperança de implantar, Batalhando por resultados, Enfrentando momentos difíceis, Reconhecendo que não enfrenta sozinha, Aprendendo a superar, e Tendo a vida resgatada pelo implante, que compõem o fenômeno: MOBILIZANDO-SE PARA RESGATAR A VIDA DA FAMÍLIA ATRAVÉS DO IMPLANTE COCLEAR, pelo qual compreendemos esta experiência. Apreendeu-se que o implante altera o rumo de suas vidas e permite à família ressignificar a surdez. Ele se constitui como um passaporte que torna possível à criança viver no mundo com menos dificuldades, mais independência e autonomia, e com mais chances de um futuro pessoal, social, acadêmico, e profissional, de sucesso como qualquer outra. Os resultados mostram que é imprescindível conscientizar a família a participar ativamente do desenvolvimento linguístico da criança, e trabalhar as habilidades de comunicação, porque seu papel como principal ator no processo de reabilitação e constante estimulação se mostrou evidente. Esperamos que este trabalho auxilie e norteie os profissionais envolvidos na área a cuidar das famílias de crianças com deficiência auditiva, especialmente as usuárias de implante coclear, levando em conta a perspectiva familiar em sua prática profissional. E fazemos um convite à Enfermagem a se aproximar da realidade dessas famílias e da complexidade da experiência do implante coclear na infância, a se apropriar do conhecimento dessa temática a fim de atuar e exercer suas práticas.Universidade Federal de Minas Geraisapplication/pdfporUniversidade Federal de São CarlosPrograma de Pós-Graduação em Enfermagem - PPGEnfUFSCarBRFamíliaCriançaImplante coclearDeficiência auditivaSurdezFamilyChildrenHearing lossDeafnessCochlear implantationNursingCIENCIAS DA SAUDE::ENFERMAGEMMobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditivaMobilizing to rescue the life through the cochlear implant: the experience of the cochlear implant user auditive deficient child s familyinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesis-1-10ad349b9-e9a9-4098-87d7-46f200f6610finfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINAL3553.pdfapplication/pdf2032974https://repositorio.ufscar.br/bitstream/ufscar/3231/1/3553.pdf0253b5fc458ea723d36e0f2078cde2e2MD51THUMBNAIL3553.pdf.jpg3553.pdf.jpgIM Thumbnailimage/jpeg6361https://repositorio.ufscar.br/bitstream/ufscar/3231/2/3553.pdf.jpg07228488861f26730ed9e4b5ab7b8667MD52ufscar/32312023-09-18 18:30:54.178oai:repositorio.ufscar.br:ufscar/3231Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222023-09-18T18:30:54Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false |
dc.title.por.fl_str_mv |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
dc.title.alternative.eng.fl_str_mv |
Mobilizing to rescue the life through the cochlear implant: the experience of the cochlear implant user auditive deficient child s family |
title |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
spellingShingle |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva Vieira, Sheila de Souza Família Criança Implante coclear Deficiência auditiva Surdez Family Children Hearing loss Deafness Cochlear implantation Nursing CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
title_full |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
title_fullStr |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
title_full_unstemmed |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
title_sort |
Mobilizando-se para resgatar a vida através do implante coclear: a experiência da família da criança com deficiência auditiva |
author |
Vieira, Sheila de Souza |
author_facet |
Vieira, Sheila de Souza |
author_role |
author |
dc.contributor.authorlattes.por.fl_str_mv |
http://lattes.cnpq.br/5466081448977540 |
dc.contributor.author.fl_str_mv |
Vieira, Sheila de Souza |
dc.contributor.advisor1.fl_str_mv |
Dupas, Giselle |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/9461883918498554 |
dc.contributor.authorID.fl_str_mv |
ffd3cf0b-c079-4863-8f36-11a542276745 |
contributor_str_mv |
Dupas, Giselle |
dc.subject.por.fl_str_mv |
Família Criança Implante coclear Deficiência auditiva Surdez |
topic |
Família Criança Implante coclear Deficiência auditiva Surdez Family Children Hearing loss Deafness Cochlear implantation Nursing CIENCIAS DA SAUDE::ENFERMAGEM |
dc.subject.eng.fl_str_mv |
Family Children Hearing loss Deafness Cochlear implantation Nursing |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::ENFERMAGEM |
description |
This work scoped to comprehend the experience of the cochlear implant user auditive deficient child‟s family, more precisely to understand its role, identify the changes into the everyday life, describe the strategies which are in between the cohabiting with the auditive deficiency in the childhood, and, to acknowledge the structure, the development and the family functionality. This research is about a qualitative work having the Symbolic Interactionism and a The Grounded Theory as theoretical and methodological references respectively. To obtain the data we used genogram, ecomap and consented interview semistructured. Nine families participated in the study, reaching a total of 32 participants. The data analysis permitted us build up seven thematic categories: In seeing an idealized future pulling down, Seizing to the hope of implanting, Battling for results, Facing hard moments, Recognizing that she doesn t face it all alone, Learning to overcome, and Having the life rescued by the cochlear implant, which compose the phenomenon: MOBILIZING TO RESCUE THE FAMILY LIFE THROUGH THE COCHLEAR IMPLANT, by which we comprehend this experience. We learnt that the implant altered the path of their lives and it permitted the family resignify the deafness. It is like a passport which makes possible to the child to live in the world with less difficulties, more independency and autonomy, and with more chances of a personal, social, academic and professional future of success like any other child. The results show us that it is indispensible to make the family participate actively into the child‟s linguistic development and let the communication skill be worked, for its role as protagonist in the process of rehabilitation and constant stimulation showed us to be evident. We expect that this work may help and conduct the professionals involved in the area to care for the families of auditive deficient children, specially the implanted ones, taking into account the familiar perspective in its professional practice. And we make an invitation to the Nursing Field to approach those families into the reality and to the complexity of the experience of the cochlear implant in the childhood, in order to appropriate the knowledge of this issue, act and exercise their practices. |
publishDate |
2011 |
dc.date.available.fl_str_mv |
2011-04-25 2016-06-02T19:48:18Z |
dc.date.issued.fl_str_mv |
2011-02-25 |
dc.date.accessioned.fl_str_mv |
2016-06-02T19:48:18Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
format |
masterThesis |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
VIEIRA, Sheila de Souza. Mobilizing to rescue the life through the cochlear implant: the experience of the cochlear implant user auditive deficient child s family. 2011. 207 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufscar.br/handle/ufscar/3231 |
identifier_str_mv |
VIEIRA, Sheila de Souza. Mobilizing to rescue the life through the cochlear implant: the experience of the cochlear implant user auditive deficient child s family. 2011. 207 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011. |
url |
https://repositorio.ufscar.br/handle/ufscar/3231 |
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Universidade Federal de São Carlos |
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BR |
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