The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , |
Tipo de documento: | preprint |
Idioma: | por |
Título da fonte: | SciELO Preprints |
Texto Completo: | https://preprints.scielo.org/index.php/scielo/preprint/view/1786 |
Resumo: | Introduction: Prolonged home oxygen therapy presents physical, emotional and psychosocial barriers for users and caregivers. Objective: To know the perception of caregivers about caring for a patient using the PDO. Method: Qualitative study, using semi-structured interviews conducted with 14 caregivers of users of prolonged home oxygen therapy, followed up in a specialized outpatient clinic in a city in the interior of Brazil. The interviews were assessed using the “Bardin Content Analysis”. The Caregiver Burden Scale was applied to measure the subjective impact of chronic diseases on caregivers' lives. Results: Participants have an average age of 63 years, 11 of whom are female, literate, with an average daily care time of 19 hours and an average of 2.7 years dedicated to care. The Caregiver Burden Scale's most overburdened category was the environment. From the content analysis, four categories emerged: “Strengths of care”; “Care challenges”; "Emotional, social and daily changes as a result of care" and "Changes in the caregiver's family relationship". Conclusion: It is important to plan comprehensive health actions that can minimize the negative effects resulting from the work overload experienced by caregivers and improve patients' adherence to treatment. |
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The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen TherapyA Percepção dos Cuidadores de Pacientes com Doença Pulmonar Obstrutiva Crônica em uso de Oxigenoterapia Domiciliar Prolongadaoxigenoterapiacuidadorespesquisa qualitativaanálise de conteúdooxygen therapycaregiversqualitative researchcontent analysisIntroduction: Prolonged home oxygen therapy presents physical, emotional and psychosocial barriers for users and caregivers. Objective: To know the perception of caregivers about caring for a patient using the PDO. Method: Qualitative study, using semi-structured interviews conducted with 14 caregivers of users of prolonged home oxygen therapy, followed up in a specialized outpatient clinic in a city in the interior of Brazil. The interviews were assessed using the “Bardin Content Analysis”. The Caregiver Burden Scale was applied to measure the subjective impact of chronic diseases on caregivers' lives. Results: Participants have an average age of 63 years, 11 of whom are female, literate, with an average daily care time of 19 hours and an average of 2.7 years dedicated to care. The Caregiver Burden Scale's most overburdened category was the environment. From the content analysis, four categories emerged: “Strengths of care”; “Care challenges”; "Emotional, social and daily changes as a result of care" and "Changes in the caregiver's family relationship". Conclusion: It is important to plan comprehensive health actions that can minimize the negative effects resulting from the work overload experienced by caregivers and improve patients' adherence to treatment.Introdução: A oxigenoterapia domiciliar prolongada apresenta barreiras físicas, emocionais e psicossociais para os usuários e cuidadores. Objetivo: Conhecer a percepção dos cuidadores sobre o cuidado com um paciente em uso da ODP. Método: Estudo qualitativo, utilizando entrevistas semiestruturadas realizadas com 14 cuidadores de usuários de oxigenoterapia domiciliar prolongada, acompanhados em ambulatório especializado de uma cidade do interior do Brasil. As entrevistas foram avaliadas pela “Análise do Conteúdo de Bardin”. Foi aplicada a escala Caregiver Burden Scale para medir o impacto subjetivo das doenças crônicas na vida dos cuidadores. Resultados: Os participantes possuem idade média de 63 anos, sendo 11 do sexo feminino, alfabetizados, com tempo médio de cuidado diário prestado de 19 horas e média de 2,7 anos dedicados ao cuidado. A categoria mais sobrecarregada da Caregiver Burden Scale foi o ambiente. A partir da análise de conteúdo, surgiram quatro categorias: “Fortalezas do cuidado”; “Desafios do cuidado”; “Alterações emocionais, sociais e cotidianas como resultados do cuidado” e “Alterações na relação familiar do cuidador”. Conclusão: É importante o planejamento de ações integrais de saúde que possam minimizar os efeitos negativos resultantes da sobrecarga de trabalho vivenciada pelos cuidadores e melhorar a aderência dos pacientes ao tratamento.SciELO PreprintsSciELO PreprintsSciELO Preprints2021-03-02info:eu-repo/semantics/preprintinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://preprints.scielo.org/index.php/scielo/preprint/view/178610.1590/SciELOPreprints.1786porhttps://preprints.scielo.org/index.php/scielo/article/view/1786/3155Copyright (c) 2021 Aldair Weber, Giovana Hass Bueno, Ilda de Godoyhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessBueno, Giovana HassWeber, AldairGodoy, Ilda dereponame:SciELO Preprintsinstname:SciELOinstacron:SCI2021-01-28T13:59:52Zoai:ops.preprints.scielo.org:preprint/1786Servidor de preprintshttps://preprints.scielo.org/index.php/scieloONGhttps://preprints.scielo.org/index.php/scielo/oaiscielo.submission@scielo.orgopendoar:2021-01-28T13:59:52SciELO Preprints - SciELOfalse |
dc.title.none.fl_str_mv |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy A Percepção dos Cuidadores de Pacientes com Doença Pulmonar Obstrutiva Crônica em uso de Oxigenoterapia Domiciliar Prolongada |
title |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
spellingShingle |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy Bueno, Giovana Hass oxigenoterapia cuidadores pesquisa qualitativa análise de conteúdo oxygen therapy caregivers qualitative research content analysis |
title_short |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
title_full |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
title_fullStr |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
title_full_unstemmed |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
title_sort |
The Perception of Caregivers of Patients with Chronic Obstructive Pulmonary Disease using Extended Home Oxygen Therapy |
author |
Bueno, Giovana Hass |
author_facet |
Bueno, Giovana Hass Weber, Aldair Godoy, Ilda de |
author_role |
author |
author2 |
Weber, Aldair Godoy, Ilda de |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Bueno, Giovana Hass Weber, Aldair Godoy, Ilda de |
dc.subject.por.fl_str_mv |
oxigenoterapia cuidadores pesquisa qualitativa análise de conteúdo oxygen therapy caregivers qualitative research content analysis |
topic |
oxigenoterapia cuidadores pesquisa qualitativa análise de conteúdo oxygen therapy caregivers qualitative research content analysis |
description |
Introduction: Prolonged home oxygen therapy presents physical, emotional and psychosocial barriers for users and caregivers. Objective: To know the perception of caregivers about caring for a patient using the PDO. Method: Qualitative study, using semi-structured interviews conducted with 14 caregivers of users of prolonged home oxygen therapy, followed up in a specialized outpatient clinic in a city in the interior of Brazil. The interviews were assessed using the “Bardin Content Analysis”. The Caregiver Burden Scale was applied to measure the subjective impact of chronic diseases on caregivers' lives. Results: Participants have an average age of 63 years, 11 of whom are female, literate, with an average daily care time of 19 hours and an average of 2.7 years dedicated to care. The Caregiver Burden Scale's most overburdened category was the environment. From the content analysis, four categories emerged: “Strengths of care”; “Care challenges”; "Emotional, social and daily changes as a result of care" and "Changes in the caregiver's family relationship". Conclusion: It is important to plan comprehensive health actions that can minimize the negative effects resulting from the work overload experienced by caregivers and improve patients' adherence to treatment. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-03-02 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/preprint info:eu-repo/semantics/publishedVersion |
format |
preprint |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://preprints.scielo.org/index.php/scielo/preprint/view/1786 10.1590/SciELOPreprints.1786 |
url |
https://preprints.scielo.org/index.php/scielo/preprint/view/1786 |
identifier_str_mv |
10.1590/SciELOPreprints.1786 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://preprints.scielo.org/index.php/scielo/article/view/1786/3155 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2021 Aldair Weber, Giovana Hass Bueno, Ilda de Godoy https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2021 Aldair Weber, Giovana Hass Bueno, Ilda de Godoy https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
SciELO Preprints SciELO Preprints SciELO Preprints |
publisher.none.fl_str_mv |
SciELO Preprints SciELO Preprints SciELO Preprints |
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SCI |
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SciELO Preprints |
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SciELO Preprints |
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SciELO Preprints - SciELO |
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