CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , |
Tipo de documento: | preprint |
Idioma: | por |
Título da fonte: | SciELO Preprints |
Texto Completo: | https://preprints.scielo.org/index.php/scielo/preprint/view/5753 |
Resumo: | Introduction: Caregivers of end-of-life patients are exposed to great emotional overload and suffering. This study aims to investigate signs of psychological distress (depression, anxiety and anguish) and the presence of well-being in caregivers of patients at the end of life hospitalized in an oncology palliative care ward. Methods: This is a cross-sectional descriptive study, which included a non-probabilistic sample of 90 main caregivers of individuals hospitalized in the palliative care sector of a cancer reference hospital. The subjects were assessed for the presence of well-being using the Well-Being Assessment Questionnaire (GCQ); the presence of anguish (distress) through the Distress Thermometer; and anxiety and depression by the Anxiety and Depression Scale. Statistical correlations were made between the variables. Results: Female caregivers who lived with the patient had lower levels of well-being. Anxious symptoms were present in 76%, with higher scores in caregivers with less education, who lived with the patient and who cared for other people. Depressive symptoms were present in 55%, with a higher rate in caregivers who lived with the patient. Women and caregivers who performed rotation had a higher distress score. Well-being was inversely proportional to depression, distress and anxiety. Conclusion: This analysis showed higher rates of depression, anxiety and anguish among caregivers, as well as lower well-being. The improvement in well-being can alleviate anxiety, depressive and anguish symptoms. Strategies to improve communication and welcoming in the hospital environment can promote well-being and reduce the symptoms of psychic illness in caregivers of patients at the end of life. |
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CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARECUIDADORES DE PACIENTES COM CÂNCER NO FINAL DA VIDA: SOFRIMENTO PSÍQUICO E REDUÇÃO DE BEM-ESTARcuidadorcuidados paliativosbem-estaransiedadedepressãocaregiverpalliative carewell-beinganxietydepressionIntroduction: Caregivers of end-of-life patients are exposed to great emotional overload and suffering. This study aims to investigate signs of psychological distress (depression, anxiety and anguish) and the presence of well-being in caregivers of patients at the end of life hospitalized in an oncology palliative care ward. Methods: This is a cross-sectional descriptive study, which included a non-probabilistic sample of 90 main caregivers of individuals hospitalized in the palliative care sector of a cancer reference hospital. The subjects were assessed for the presence of well-being using the Well-Being Assessment Questionnaire (GCQ); the presence of anguish (distress) through the Distress Thermometer; and anxiety and depression by the Anxiety and Depression Scale. Statistical correlations were made between the variables. Results: Female caregivers who lived with the patient had lower levels of well-being. Anxious symptoms were present in 76%, with higher scores in caregivers with less education, who lived with the patient and who cared for other people. Depressive symptoms were present in 55%, with a higher rate in caregivers who lived with the patient. Women and caregivers who performed rotation had a higher distress score. Well-being was inversely proportional to depression, distress and anxiety. Conclusion: This analysis showed higher rates of depression, anxiety and anguish among caregivers, as well as lower well-being. The improvement in well-being can alleviate anxiety, depressive and anguish symptoms. Strategies to improve communication and welcoming in the hospital environment can promote well-being and reduce the symptoms of psychic illness in caregivers of patients at the end of life.Introdução: Cuidadores de pacientes em fim de vida estão expostos a grande sobrecarga emocional e sofrimento. Esse estudo objetiva investigar sinais de sofrimento psíquico (depressão, ansiedade e angústia) e presença de bem-estar em cuidadores de pacientes no fim da vida hospitalizados em enfermaria de cuidados paliativos oncológicos. Métodos: Trata-se de estudo descritivo transversal, o qual contou com uma amostra não probabilística de 90 cuidadores principais de indivíduos hospitalizados no setor de cuidados paliativos de um hospital referência em câncer. Os sujeitos foram avaliados quanto à presença de bem-estar por meio do Questionário de Avaliação do Bem-Estar (GCQ); a presença de angústia (distress) através do Termômetro de Distress; e ansiedade e depressão pela Escala de Depressão e Ansiedade. Foram feitas correlações estatísticas entre as variáveis. Resultados: Cuidadores do gênero feminino e que residiam com o paciente apresentaram menores índices de bem-estar. Sintomas ansiosos estiveram presentes em 76%, com maiores escores em cuidadores com menor escolaridade, que residiam com o paciente e que cuidavam de outras pessoas. Sintomas depressivos apresentaram-se em 55%, com maior índice em cuidadores que residiam com o paciente. Mulheres e cuidadores que realizavam rodízio apresentaram maior escore de angústia. Bem-estar foi inversamente proporcional a depressão, angústia e ansiedade. Conclusão: A partir desta análise demonstrou-se maiores índices de depressão, ansiedade e angústia entre cuidadores, assim como menor bem-estar. A melhora no bem-estar pode aliviar sintomas ansiosos, depressivos e angústia. Estratégias para a melhoria da comunicação e acolhimento no ambiente hospitalar podem promover bem-estar e redução dos sintomas de adoecimento psíquico de cuidadores de pacientes no final da vida.SciELO PreprintsSciELO PreprintsSciELO Preprints2023-03-22info:eu-repo/semantics/preprintinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://preprints.scielo.org/index.php/scielo/preprint/view/575310.1590/SciELOPreprints.5753porhttps://preprints.scielo.org/index.php/scielo/article/view/5753/11115Copyright (c) 2023 Luis Eduardo Oliveira Ribeiro, João Batista Santos Garcia, Gabriel Santana Machado, Maurilene Bacelarhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRibeiro, Luis Eduardo OliveiraGarcia, João Batista SantosMachado, Gabriel SantanaBacelar, Maurilenereponame:SciELO Preprintsinstname:Scientific Electronic Library Online (SCIELO)instacron:SCI2023-03-19T21:32:15Zoai:ops.preprints.scielo.org:preprint/5753Servidor de preprintshttps://preprints.scielo.org/index.php/scieloONGhttps://preprints.scielo.org/index.php/scielo/oaiscielo.submission@scielo.orgopendoar:2023-03-19T21:32:15SciELO Preprints - Scientific Electronic Library Online (SCIELO)false |
dc.title.none.fl_str_mv |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE CUIDADORES DE PACIENTES COM CÂNCER NO FINAL DA VIDA: SOFRIMENTO PSÍQUICO E REDUÇÃO DE BEM-ESTAR |
title |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
spellingShingle |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE Ribeiro, Luis Eduardo Oliveira cuidador cuidados paliativos bem-estar ansiedade depressão caregiver palliative care well-being anxiety depression |
title_short |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
title_full |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
title_fullStr |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
title_full_unstemmed |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
title_sort |
CAREGIVERS OF PATIENTS WITH CANCER AT THE END OF LIFE: PSYCHOLOGICAL SUFFERING AND REDUCED WELFARE |
author |
Ribeiro, Luis Eduardo Oliveira |
author_facet |
Ribeiro, Luis Eduardo Oliveira Garcia, João Batista Santos Machado, Gabriel Santana Bacelar, Maurilene |
author_role |
author |
author2 |
Garcia, João Batista Santos Machado, Gabriel Santana Bacelar, Maurilene |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Ribeiro, Luis Eduardo Oliveira Garcia, João Batista Santos Machado, Gabriel Santana Bacelar, Maurilene |
dc.subject.por.fl_str_mv |
cuidador cuidados paliativos bem-estar ansiedade depressão caregiver palliative care well-being anxiety depression |
topic |
cuidador cuidados paliativos bem-estar ansiedade depressão caregiver palliative care well-being anxiety depression |
description |
Introduction: Caregivers of end-of-life patients are exposed to great emotional overload and suffering. This study aims to investigate signs of psychological distress (depression, anxiety and anguish) and the presence of well-being in caregivers of patients at the end of life hospitalized in an oncology palliative care ward. Methods: This is a cross-sectional descriptive study, which included a non-probabilistic sample of 90 main caregivers of individuals hospitalized in the palliative care sector of a cancer reference hospital. The subjects were assessed for the presence of well-being using the Well-Being Assessment Questionnaire (GCQ); the presence of anguish (distress) through the Distress Thermometer; and anxiety and depression by the Anxiety and Depression Scale. Statistical correlations were made between the variables. Results: Female caregivers who lived with the patient had lower levels of well-being. Anxious symptoms were present in 76%, with higher scores in caregivers with less education, who lived with the patient and who cared for other people. Depressive symptoms were present in 55%, with a higher rate in caregivers who lived with the patient. Women and caregivers who performed rotation had a higher distress score. Well-being was inversely proportional to depression, distress and anxiety. Conclusion: This analysis showed higher rates of depression, anxiety and anguish among caregivers, as well as lower well-being. The improvement in well-being can alleviate anxiety, depressive and anguish symptoms. Strategies to improve communication and welcoming in the hospital environment can promote well-being and reduce the symptoms of psychic illness in caregivers of patients at the end of life. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-03-22 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/preprint info:eu-repo/semantics/publishedVersion |
format |
preprint |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://preprints.scielo.org/index.php/scielo/preprint/view/5753 10.1590/SciELOPreprints.5753 |
url |
https://preprints.scielo.org/index.php/scielo/preprint/view/5753 |
identifier_str_mv |
10.1590/SciELOPreprints.5753 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://preprints.scielo.org/index.php/scielo/article/view/5753/11115 |
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https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
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https://creativecommons.org/licenses/by/4.0 |
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openAccess |
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application/pdf |
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SciELO Preprints SciELO Preprints SciELO Preprints |
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SciELO Preprints SciELO Preprints SciELO Preprints |
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Scientific Electronic Library Online (SCIELO) |
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