SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS

Detalhes bibliográficos
Autor(a) principal: Gutierrez, Denise Machado Duran
Data de Publicação: 2020
Outros Autores: Sousa, Girliani Silva de, Figueiredo, Ana Elisa Bastos, Ribeiro, Maria de Nazaré Souza, Diniz, Cleisiane Xavier, Nobre, Guiomar Alegria Souza Silva
Tipo de documento: preprint
Idioma: por
Título da fonte: SciELO Preprints
Texto Completo: https://preprints.scielo.org/index.php/scielo/preprint/view/1258
Resumo: This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver’s activity, social isolation, neglected self-care, and family conflicts impact caregivers’ subjectivity. The  elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.
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spelling SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTSVIVÊNCIAS SUBJETIVAS DE FAMILIARES QUE CUIDAM DE IDOSOS DEPENDENTESCuidadores Familiaresidoso dependentecuidadosubjetividadeFamily caregiversDependent older adultCareSubjectivityThis study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver’s activity, social isolation, neglected self-care, and family conflicts impact caregivers’ subjectivity. The  elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.Objetivou-se compreender os sentidos subjetivos atribuídos pelos cuidadores familiares de idosos dependentes ao cuidado ofertado no domicílio, por meio de uma investigação qualitativa multicêntrica que reúne entrevistas em profundidade com 84 cuidadores familiares em oito localidades no Brasil. Utilizou-se o referencial teórico metodológico hermenêutico-dialético. Na leitura das entrevistas emergiram as seguintes categorias que serviram de base para as análises: 1. Movimentos de inibição de emoções e sentimentos; 2. Presença de processos de simbiose e de dependência emocional na relação idoso e familiar; 3. Contentamento em cuidar do idoso dependente e 4. Renúncia a projetos de vida atuais e futuros. Os resultados apontam vivências marcadas por processos de simbiose, dependência emocional e estresse psíquico. A dependência gera sofrimento e sentimentos de desespero, impotência, impaciência, mas também solidariedade e empatia. A renúncia ao trabalho profissional, a desvalorização social da atividade de cuidador familiar, o isolamento social, o cuidado “descuidado” de si e conflitos familiares influenciam a subjetividade dos cuidadores. A formulação de políticas públicas precisa considerar as vivências socioafetivas dos cuidadores familiares de idosos dependentes para nelas incluir o cuidado de quem cuida.SciELO PreprintsSciELO PreprintsSciELO Preprints2020-10-13info:eu-repo/semantics/preprintinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://preprints.scielo.org/index.php/scielo/preprint/view/125810.1590/SciELOPreprints.1258porhttps://preprints.scielo.org/index.php/scielo/article/view/1258/1956Copyright (c) 2020 Denise Machado Duran Gutierrez, Girliani Silva de Sousa, Ana Elisa Bastos Figueiredo, Maria de Nazaré Souza Ribeiro, Cleisiane Xavier Diniz, Guiomar Alegria Souza Silva Nobrehttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessGutierrez, Denise Machado DuranSousa, Girliani Silva de Figueiredo, Ana Elisa Bastos Ribeiro, Maria de Nazaré Souza Diniz, Cleisiane Xavier Nobre, Guiomar Alegria Souza Silvareponame:SciELO Preprintsinstname:SciELOinstacron:SCI2020-09-26T20:44:42Zoai:ops.preprints.scielo.org:preprint/1258Servidor de preprintshttps://preprints.scielo.org/index.php/scieloONGhttps://preprints.scielo.org/index.php/scielo/oaiscielo.submission@scielo.orgopendoar:2020-09-26T20:44:42SciELO Preprints - SciELOfalse
dc.title.none.fl_str_mv SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
VIVÊNCIAS SUBJETIVAS DE FAMILIARES QUE CUIDAM DE IDOSOS DEPENDENTES
title SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
spellingShingle SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
Gutierrez, Denise Machado Duran
Cuidadores Familiares
idoso dependente
cuidado
subjetividade
Family caregivers
Dependent older adult
Care
Subjectivity
title_short SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
title_full SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
title_fullStr SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
title_full_unstemmed SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
title_sort SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS
author Gutierrez, Denise Machado Duran
author_facet Gutierrez, Denise Machado Duran
Sousa, Girliani Silva de
Figueiredo, Ana Elisa Bastos
Ribeiro, Maria de Nazaré Souza
Diniz, Cleisiane Xavier
Nobre, Guiomar Alegria Souza Silva
author_role author
author2 Sousa, Girliani Silva de
Figueiredo, Ana Elisa Bastos
Ribeiro, Maria de Nazaré Souza
Diniz, Cleisiane Xavier
Nobre, Guiomar Alegria Souza Silva
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Gutierrez, Denise Machado Duran
Sousa, Girliani Silva de
Figueiredo, Ana Elisa Bastos
Ribeiro, Maria de Nazaré Souza
Diniz, Cleisiane Xavier
Nobre, Guiomar Alegria Souza Silva
dc.subject.por.fl_str_mv Cuidadores Familiares
idoso dependente
cuidado
subjetividade
Family caregivers
Dependent older adult
Care
Subjectivity
topic Cuidadores Familiares
idoso dependente
cuidado
subjetividade
Family caregivers
Dependent older adult
Care
Subjectivity
description This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver’s activity, social isolation, neglected self-care, and family conflicts impact caregivers’ subjectivity. The  elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.
publishDate 2020
dc.date.none.fl_str_mv 2020-10-13
dc.type.driver.fl_str_mv info:eu-repo/semantics/preprint
info:eu-repo/semantics/publishedVersion
format preprint
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://preprints.scielo.org/index.php/scielo/preprint/view/1258
10.1590/SciELOPreprints.1258
url https://preprints.scielo.org/index.php/scielo/preprint/view/1258
identifier_str_mv 10.1590/SciELOPreprints.1258
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://preprints.scielo.org/index.php/scielo/article/view/1258/1956
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv SciELO Preprints
SciELO Preprints
SciELO Preprints
publisher.none.fl_str_mv SciELO Preprints
SciELO Preprints
SciELO Preprints
dc.source.none.fl_str_mv reponame:SciELO Preprints
instname:SciELO
instacron:SCI
instname_str SciELO
instacron_str SCI
institution SCI
reponame_str SciELO Preprints
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repository.mail.fl_str_mv scielo.submission@scielo.org
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