Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process
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Data de Publicação: | 2021 |
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Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Pesquisa Qualitativa (Online) |
Texto Completo: | https://editora.sepq.org.br/rpq/article/view/379 |
Resumo: | Drawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics. |
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Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying processDesafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde: um olhar a partir de um estudo em torno do processo de morrerDrawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics.Partindo de uma experiência de investigação em torno do processo de morrer, este artigo procura discutir alguns dos desafios que emergiram no âmbito de uma pesquisa qualitativa de natureza etnográfica no campo da saúde. A sensibilidade do tema e a vulnerabilidade dos participantes conduziu à necessidade de criar estratégias que mitigassem potenciais efeitos indesejados para os atores envolvidos. Desta forma, discutem-se questões ético-metodológicas e o impacto que a pesquisa assumiu para os participantes e investigador. As principais conclusões apontam, por um lado, para a necessidade de criar diretrizes bem definidas no que diz respeito à pesquisa com sujeitos humanos e, por outro, para a importância de adequar os instrumentos de recolha no sentido de criar proximidade e salvaguardar o bem-estar de todos os intervenientes. Este artigo procura contribuir para um debate em torno dos “bastidores” da pesquisa, dando a conhecer dilemas transversais à investigação. Palavras-chave: Pesquisa qualitativa; Sensibilidade; Vulnerabilidade; Ética.Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ2021-08-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://editora.sepq.org.br/rpq/article/view/37910.33361/RPQ.2021.v.9.n.21.379Qualitative Research Journal ; Vol. 9 No. 21 (2021); 306-321Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 306-3212525-82221809-025710.33361/RPQ.v.9.n.21reponame:Revista Pesquisa Qualitativa (Online)instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)instacron:SE&PQporhttps://editora.sepq.org.br/rpq/article/view/379/276Copyright (c) 2021 Revista Pesquisa Qualitativahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessHilário, Ana PatríciaAugusto, Fábio Rafael2021-08-31T17:25:04Zoai:editora.sepq.org.br:article/379Revistahttps://editora.sepq.org.br/index.php/rpq/indexONGhttps://editora.sepq.org.br/index.php/rpq/oai||revista.rpq@gmail.com2525-82221809-0257opendoar:2021-08-31T17:25:04Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)false |
dc.title.none.fl_str_mv |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process Desafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde: um olhar a partir de um estudo em torno do processo de morrer |
title |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
spellingShingle |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process Hilário, Ana Patrícia |
title_short |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
title_full |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
title_fullStr |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
title_full_unstemmed |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
title_sort |
Ethical, methodological and practical challenges in qualitative health research: a look through a study around the dying process |
author |
Hilário, Ana Patrícia |
author_facet |
Hilário, Ana Patrícia Augusto, Fábio Rafael |
author_role |
author |
author2 |
Augusto, Fábio Rafael |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Hilário, Ana Patrícia Augusto, Fábio Rafael |
description |
Drawing upon a research on the dying process, this article seeks to discuss some of the challenges that have emerged in the context of a qualitative health research ethnography. The sensitivity of the topic and the vulnerability of the participants led to the need to create strategies to mitigate the potential undesirable effects for those involved in the research. The ethical and methodological aspects, as well as the impact that the research can assume for the participants and for the researcher are discussed. The conclusions point, on the one hand, to the need to create well-defined guidelines for research with human subjects and, on the other, to the importance of adapting the data collection instruments to create proximity and safeguard the well-being of all the actors. This article aims to contribute to the debate around the “backstage” of the research, revealing the dilemmas that across several studies. Keywords: Qualitative research; Sensitivity; Vulnerability; Ethics. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-08-31 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://editora.sepq.org.br/rpq/article/view/379 10.33361/RPQ.2021.v.9.n.21.379 |
url |
https://editora.sepq.org.br/rpq/article/view/379 |
identifier_str_mv |
10.33361/RPQ.2021.v.9.n.21.379 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://editora.sepq.org.br/rpq/article/view/379/276 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2021 Revista Pesquisa Qualitativa https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2021 Revista Pesquisa Qualitativa https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ |
publisher.none.fl_str_mv |
Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ |
dc.source.none.fl_str_mv |
Qualitative Research Journal ; Vol. 9 No. 21 (2021); 306-321 Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 306-321 2525-8222 1809-0257 10.33361/RPQ.v.9.n.21 reponame:Revista Pesquisa Qualitativa (Online) instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ) instacron:SE&PQ |
instname_str |
Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ) |
instacron_str |
SE&PQ |
institution |
SE&PQ |
reponame_str |
Revista Pesquisa Qualitativa (Online) |
collection |
Revista Pesquisa Qualitativa (Online) |
repository.name.fl_str_mv |
Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ) |
repository.mail.fl_str_mv |
||revista.rpq@gmail.com |
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