The care for hospitalizaded children wiht complex chronic disease: experiences and learning

Detalhes bibliográficos
Autor(a) principal: Santos, Rosilene Aparecida dos
Data de Publicação: 2021
Outros Autores: Minayo, Maria Cecília de Souza
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Pesquisa Qualitativa (Online)
Texto Completo: https://editora.sepq.org.br/rpq/article/view/351
Resumo: Abstract: This article presents and discusses the subjective and intersubjective relationship between health professionals and hospitalized children with complex chronic health conditions and their families. This is part of a qualitative research, built from ethnografic method, in a pediatric ward of a federal hospital in Rio de Janeiro. Was sought the understanding of logic and deficiencies of hospital care, focusing mainly on subjective issues of children. This research allowed types of observations, that are organized in three topics: Movements, actors and interventions: Observing the setting, result of participant observation; Looking, understanding, interpreting and acting: listening to the ones who provide the care; Learning, understanding, interpreting, acting. The professional skills for comprehensive care of these children are built daily, based on the needs of each one them, encompassing their physical, subjective, collective aspects and their life history. The subjectivity and intersubjectivity are the propelling soul of dynamics of life in the ward.  Keywords: Hospitalization; Pediatrics; Chronic Disease; Hospital Care; Learning Health Systen.
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spelling The care for hospitalizaded children wiht complex chronic disease: experiences and learningO cuidado de crianças hospitalizadas com condições crônicas complexas: vivências e aprendizagemAbstract: This article presents and discusses the subjective and intersubjective relationship between health professionals and hospitalized children with complex chronic health conditions and their families. This is part of a qualitative research, built from ethnografic method, in a pediatric ward of a federal hospital in Rio de Janeiro. Was sought the understanding of logic and deficiencies of hospital care, focusing mainly on subjective issues of children. This research allowed types of observations, that are organized in three topics: Movements, actors and interventions: Observing the setting, result of participant observation; Looking, understanding, interpreting and acting: listening to the ones who provide the care; Learning, understanding, interpreting, acting. The professional skills for comprehensive care of these children are built daily, based on the needs of each one them, encompassing their physical, subjective, collective aspects and their life history. The subjectivity and intersubjectivity are the propelling soul of dynamics of life in the ward.  Keywords: Hospitalization; Pediatrics; Chronic Disease; Hospital Care; Learning Health Systen.Esse artigo apresenta e discute a relação subjetiva e intersubjetiva dos profissionais de saúde com crianças com condições crônicas complexas de saúde e suas famílias. É parte de uma pesquisa qualitativa, construída a partir do método etnográfico, numa enfermaria de pediatria de um hospital federal do Rio de Janeiro. Buscou-se entender a lógica e lacunas do cuidado hospitalar, principalmente voltada para as questões subjetivas das crianças.  O estudo permitiu vários tipos de observação, que estão organizados em três tópicos: 1) Movimentos, atores e intervenções: observando o cenário, fruto de observação participante; 2) Olhar, compreender, interagir e respeitar: ouvindo quem cuida; 3) Aprender, compreender, interpretar e agir. As habilidades profissionais para o cuidado integral dessas crianças são construídas cotidianamente, baseadas nas necessidades de cada uma, englobando os aspectos físicos, subjetivos, coletivos e história de vida. A subjetividade e intersubjetividade são a alma propulsora da dinâmica da vida na enfermaria.  Palavras-chave: Hospitalização; Pediatria; Doença crônica; Assistência hospitalar; Sistema de aprendizagem em saúde.Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ2021-08-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://editora.sepq.org.br/rpq/article/view/35110.33361/RPQ.2021.v.9.n.21.351Qualitative Research Journal ; Vol. 9 No. 21 (2021); 322-339Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 322-3392525-82221809-025710.33361/RPQ.v.9.n.21reponame:Revista Pesquisa Qualitativa (Online)instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)instacron:SE&PQporhttps://editora.sepq.org.br/rpq/article/view/351/277Copyright (c) 2021 Revista Pesquisa Qualitativahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantos, Rosilene Aparecida dos Minayo, Maria Cecília de Souza 2021-08-31T17:25:27Zoai:editora.sepq.org.br:article/351Revistahttps://editora.sepq.org.br/index.php/rpq/indexONGhttps://editora.sepq.org.br/index.php/rpq/oai||revista.rpq@gmail.com2525-82221809-0257opendoar:2021-08-31T17:25:27Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)false
dc.title.none.fl_str_mv The care for hospitalizaded children wiht complex chronic disease: experiences and learning
O cuidado de crianças hospitalizadas com condições crônicas complexas: vivências e aprendizagem
title The care for hospitalizaded children wiht complex chronic disease: experiences and learning
spellingShingle The care for hospitalizaded children wiht complex chronic disease: experiences and learning
Santos, Rosilene Aparecida dos
title_short The care for hospitalizaded children wiht complex chronic disease: experiences and learning
title_full The care for hospitalizaded children wiht complex chronic disease: experiences and learning
title_fullStr The care for hospitalizaded children wiht complex chronic disease: experiences and learning
title_full_unstemmed The care for hospitalizaded children wiht complex chronic disease: experiences and learning
title_sort The care for hospitalizaded children wiht complex chronic disease: experiences and learning
author Santos, Rosilene Aparecida dos
author_facet Santos, Rosilene Aparecida dos
Minayo, Maria Cecília de Souza
author_role author
author2 Minayo, Maria Cecília de Souza
author2_role author
dc.contributor.author.fl_str_mv Santos, Rosilene Aparecida dos
Minayo, Maria Cecília de Souza
description Abstract: This article presents and discusses the subjective and intersubjective relationship between health professionals and hospitalized children with complex chronic health conditions and their families. This is part of a qualitative research, built from ethnografic method, in a pediatric ward of a federal hospital in Rio de Janeiro. Was sought the understanding of logic and deficiencies of hospital care, focusing mainly on subjective issues of children. This research allowed types of observations, that are organized in three topics: Movements, actors and interventions: Observing the setting, result of participant observation; Looking, understanding, interpreting and acting: listening to the ones who provide the care; Learning, understanding, interpreting, acting. The professional skills for comprehensive care of these children are built daily, based on the needs of each one them, encompassing their physical, subjective, collective aspects and their life history. The subjectivity and intersubjectivity are the propelling soul of dynamics of life in the ward.  Keywords: Hospitalization; Pediatrics; Chronic Disease; Hospital Care; Learning Health Systen.
publishDate 2021
dc.date.none.fl_str_mv 2021-08-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://editora.sepq.org.br/rpq/article/view/351
10.33361/RPQ.2021.v.9.n.21.351
url https://editora.sepq.org.br/rpq/article/view/351
identifier_str_mv 10.33361/RPQ.2021.v.9.n.21.351
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://editora.sepq.org.br/rpq/article/view/351/277
dc.rights.driver.fl_str_mv Copyright (c) 2021 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 Revista Pesquisa Qualitativa
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
publisher.none.fl_str_mv Sociedade de Estudos e Pesquisas Qualitativos - SE&PQ
dc.source.none.fl_str_mv Qualitative Research Journal ; Vol. 9 No. 21 (2021); 322-339
Revista Pesquisa Qualitativa; v. 9 n. 21 (2021); 322-339
2525-8222
1809-0257
10.33361/RPQ.v.9.n.21
reponame:Revista Pesquisa Qualitativa (Online)
instname:Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
instacron:SE&PQ
instname_str Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
instacron_str SE&PQ
institution SE&PQ
reponame_str Revista Pesquisa Qualitativa (Online)
collection Revista Pesquisa Qualitativa (Online)
repository.name.fl_str_mv Revista Pesquisa Qualitativa (Online) - Sociedade Brasileira de Estudos e Pesquisa Qualitativos (SE&PQ)
repository.mail.fl_str_mv ||revista.rpq@gmail.com
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