"Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco

Detalhes bibliográficos
Autor(a) principal: Pinheiro, Diego Alano de Jesus Pereira
Data de Publicação: 2018
Tipo de documento: Artigo
Idioma: por
Título da fonte: Mediações - Revista de Ciências Sociais
Texto Completo: https://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/34324
Resumo: The research began after the large number of babies born with microcephaly, with the epicenter being the region of the Northeast of the country, caused by the Zika virus transmitted by the Aedes aegypti gnat. The epidemic stirred the dynamics of various spheres, such as political, socio-environmental, economic and religious. Women, mothers of babies with microcephaly in Pernambuco have organized themselves in movements such as the “Union of Mothers of Angels” (UMA), building networks of support and solidarity, sharing experiences about care for “angels” or “special children” (as they call their children), as well as claiming in a language of rights assistance with the State and competent bodies. In this sense, this ethnography was produced from UMA meetings that I participated in, occurring between February and December 2016. Starting from three life trajectories of mothers of children diagnosed today by the biomedical field as “Congenital Syndrome of Zika virus” (SCZv), i return to understand the representations surrounding the experience of motherhood, in order to apprehend the productions of meanings and conceptions about parentage relations.
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spelling "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco"Madre es quien cuida": la legitimidad de la maternidad en el discurso de madres y bebés con microcefalia en Pernambuco“Mãe é quem cuida": a legitimidade da maternidade no discurso de mães de bebês com microcefalia em PernambucoZika virusMicrocephalyMaternity and anthropologyMaternidadMicrocefaliaVirus zikaMaternidadeMicrocefaliaZika virusThe research began after the large number of babies born with microcephaly, with the epicenter being the region of the Northeast of the country, caused by the Zika virus transmitted by the Aedes aegypti gnat. The epidemic stirred the dynamics of various spheres, such as political, socio-environmental, economic and religious. Women, mothers of babies with microcephaly in Pernambuco have organized themselves in movements such as the “Union of Mothers of Angels” (UMA), building networks of support and solidarity, sharing experiences about care for “angels” or “special children” (as they call their children), as well as claiming in a language of rights assistance with the State and competent bodies. In this sense, this ethnography was produced from UMA meetings that I participated in, occurring between February and December 2016. Starting from three life trajectories of mothers of children diagnosed today by the biomedical field as “Congenital Syndrome of Zika virus” (SCZv), i return to understand the representations surrounding the experience of motherhood, in order to apprehend the productions of meanings and conceptions about parentage relations.La investigación inició después del gran índice de bebés nacidos con microcefalia ocasionada por el virus de Zika transmitido por el mosquito Aedes aegypti, teniendo como epicentro la región del Nordeste del país. La epidemia se movió con la dinámica de varias esferas de la vida social, como políticas, socioambientales, económicas y religiosas. Las mujeres, madres de bebés con microcefalia, en Pernambuco, se han organizado en movimientos como la "Unión de Madres de Ángeles" (UMA), construyendo redes de apoyo y solidaridad, compartiendo experiencias sobre el cuidado con los "ángeles" o "niños especiales "(Como denominan a sus hijos), además de reivindicar, en un lenguaje de derechos, ayudas ante el Estado y los órganos competentes. En este sentido, este análisis se basa en el trabajo etnográfico realizado en los encuentros de la UMA entre febrero y diciembre de 2016. Partiendo de tres trayectorias de vida de madres de niños diagnosticados con lo que hoy se denomina en el campo biomédico como "Síndrome Congénito del Zika virus" (SCZv), busco comprender las representaciones en torno a la experiencia de la maternidad, a fin de aprehender las producciones de significados y las concepciones sobre las relaciones de parentesco.A pesquisa iniciou após o grande índice de bebês nascidos com microcefalia ocasionada pelo vírus do Zika transmitido pelo mosquito Aedes aegypti, tendo como epicentro a região do Nordeste do país. A epidemia mexeu com a dinâmica de várias esferas da vida social, como políticas, socioambientais, econômicas e religiosas. Mulheres, mães de bebês com microcefalia, em Pernambuco, têm se organizado em movimentos como a “União de Mães de Anjos” (UMA), construindo redes de apoio e solidariedade, compartilhando experiências sobre o cuidado com os “anjos” ou “crianças especiais” (como denominam seus filhos), além de reivindicarem, numa linguagem de direitos, auxílios junto ao Estado e a órgãos competentes. Neste sentido, esta análise é baseada em trabalho etnográfico feito nos encontros da UMA entre fevereiro e dezembro de 2016. Partindo de três trajetórias de vida de mães de crianças diagnosticadas com o que hoje se denomina no campo biomédico como “Síndrome Congênita do Zika vírus” (SCZv), busco compreender as representações em torno da experiência da maternidade, a fim de apreender as produções de significados e as concepções sobre as relações de parentesco.Universidade Estadual de Londrina2018-12-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionEtnografiaapplication/pdfhttps://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/3432410.5433/2176-6665.2018v23n3p132Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-163Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-163Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-1632176-66651414-0543reponame:Mediações - Revista de Ciências Sociaisinstname:Universidade Estadual de Londrina (UEL)instacron:UELporhttps://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/34324/32257Copyright (c) 2019 Diego Alano de Jesus Pereira Pinheiroinfo:eu-repo/semantics/openAccessPinheiro, Diego Alano de Jesus Pereira2022-06-30T19:54:16Zoai:ojs.pkp.sfu.ca:article/34324Revistahttps://www.uel.br/revistas/uel/index.php/mediacoes/indexPUBhttps://www.uel.br/revistas/uel/index.php/mediacoes/oaimediacoes@uel.br2176-66652176-6665opendoar:2023-01-13T10:38:11.295062Mediações - Revista de Ciências Sociais - Universidade Estadual de Londrina (UEL)false
dc.title.none.fl_str_mv "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
"Madre es quien cuida": la legitimidad de la maternidad en el discurso de madres y bebés con microcefalia en Pernambuco
“Mãe é quem cuida": a legitimidade da maternidade no discurso de mães de bebês com microcefalia em Pernambuco
title "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
spellingShingle "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
Pinheiro, Diego Alano de Jesus Pereira
Zika virus
Microcephaly
Maternity and anthropology
Maternidad
Microcefalia
Virus zika
Maternidade
Microcefalia
Zika virus
title_short "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
title_full "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
title_fullStr "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
title_full_unstemmed "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
title_sort "Mother is who cares": the legitimacy of motherhood in the discourse of mothers and babies with microcephaly in Pernambuco
author Pinheiro, Diego Alano de Jesus Pereira
author_facet Pinheiro, Diego Alano de Jesus Pereira
author_role author
dc.contributor.author.fl_str_mv Pinheiro, Diego Alano de Jesus Pereira
dc.subject.por.fl_str_mv Zika virus
Microcephaly
Maternity and anthropology
Maternidad
Microcefalia
Virus zika
Maternidade
Microcefalia
Zika virus
topic Zika virus
Microcephaly
Maternity and anthropology
Maternidad
Microcefalia
Virus zika
Maternidade
Microcefalia
Zika virus
description The research began after the large number of babies born with microcephaly, with the epicenter being the region of the Northeast of the country, caused by the Zika virus transmitted by the Aedes aegypti gnat. The epidemic stirred the dynamics of various spheres, such as political, socio-environmental, economic and religious. Women, mothers of babies with microcephaly in Pernambuco have organized themselves in movements such as the “Union of Mothers of Angels” (UMA), building networks of support and solidarity, sharing experiences about care for “angels” or “special children” (as they call their children), as well as claiming in a language of rights assistance with the State and competent bodies. In this sense, this ethnography was produced from UMA meetings that I participated in, occurring between February and December 2016. Starting from three life trajectories of mothers of children diagnosed today by the biomedical field as “Congenital Syndrome of Zika virus” (SCZv), i return to understand the representations surrounding the experience of motherhood, in order to apprehend the productions of meanings and conceptions about parentage relations.
publishDate 2018
dc.date.none.fl_str_mv 2018-12-29
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Etnografia
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/34324
10.5433/2176-6665.2018v23n3p132
url https://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/34324
identifier_str_mv 10.5433/2176-6665.2018v23n3p132
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://ojs.uel.br/revistas/uel/index.php/mediacoes/article/view/34324/32257
dc.rights.driver.fl_str_mv Copyright (c) 2019 Diego Alano de Jesus Pereira Pinheiro
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2019 Diego Alano de Jesus Pereira Pinheiro
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Estadual de Londrina
publisher.none.fl_str_mv Universidade Estadual de Londrina
dc.source.none.fl_str_mv Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-163
Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-163
Mediações - Revista de Ciências Sociais; v.23, n.3 (2018) - set./dez.; 132-163
2176-6665
1414-0543
reponame:Mediações - Revista de Ciências Sociais
instname:Universidade Estadual de Londrina (UEL)
instacron:UEL
instname_str Universidade Estadual de Londrina (UEL)
instacron_str UEL
institution UEL
reponame_str Mediações - Revista de Ciências Sociais
collection Mediações - Revista de Ciências Sociais
repository.name.fl_str_mv Mediações - Revista de Ciências Sociais - Universidade Estadual de Londrina (UEL)
repository.mail.fl_str_mv mediacoes@uel.br
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