When the right to health reaches the alzheimer's disease

Detalhes bibliográficos
Autor(a) principal: Pessôa, Elisângela Maia
Data de Publicação: 2022
Outros Autores: Silva Araújo, Mário Augusto
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista do Direito Público
Texto Completo: https://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/40743
Resumo: Considering the increase in Alzheimer's Disease (AD) rates worldwide, the desire to raise reflections on the public care offered to families and AD patients emerged. The article aims to reveal the dilemma experienced by families that need specialized public assistance for AD, in its most diverse peculiarities and particularities. Also point out reports from qualitative research, with reflections complemented by bibliographic and legislative survey. In terms of results, the analysis indicates that family accountability is clear, to the detriment of a State that should guarantee the minimum conditions of quality of life both for people living with the disease and for those affected by it. families live in constant anguish and hopelessness, which is aggravated both by the lack of understanding of the disease in its entirety and by the occurrence of periods of crisis for their family members, since specialized services have not been offered - even in the Care Centers Psychosocial in Mental Health - that a patient with AD requires. Thus, the service network of the Brazilian Unified Health System (SUS) must adapt to the reality that the impact of AD causes - in addition to blaming families -, considering that that assistance is proper to the dignity of the human being.
id UEL-2_cb54913b5d6ea2e04d6d94842bb1ebb5
oai_identifier_str oai:ojs.pkp.sfu.ca:article/40743
network_acronym_str UEL-2
network_name_str Revista do Direito Público
repository_id_str
spelling When the right to health reaches the alzheimer's diseaseQuando o direito à saúde chega na doença de alzheimerAlzheimer's diseaseRight to HealthPublic PolicyDoença de AlzheimerDireito á SaúdePolítica PúblicoConsidering the increase in Alzheimer's Disease (AD) rates worldwide, the desire to raise reflections on the public care offered to families and AD patients emerged. The article aims to reveal the dilemma experienced by families that need specialized public assistance for AD, in its most diverse peculiarities and particularities. Also point out reports from qualitative research, with reflections complemented by bibliographic and legislative survey. In terms of results, the analysis indicates that family accountability is clear, to the detriment of a State that should guarantee the minimum conditions of quality of life both for people living with the disease and for those affected by it. families live in constant anguish and hopelessness, which is aggravated both by the lack of understanding of the disease in its entirety and by the occurrence of periods of crisis for their family members, since specialized services have not been offered - even in the Care Centers Psychosocial in Mental Health - that a patient with AD requires. Thus, the service network of the Brazilian Unified Health System (SUS) must adapt to the reality that the impact of AD causes - in addition to blaming families -, considering that that assistance is proper to the dignity of the human being.Considerando o aumento dos índices da Doença de Alzheimer (DA) em todo mundo, emergiu o desejo de suscitar reflexões quanto ao atendimento público ofertado às famílias e às pessoas que convivem com DA. O artigo pretende revelar o dilema vivido pelas famílias que necessitam de atendimento público especializado para DA, em suas mais diversas peculiaridades e particularidades. Apontar também relatos oriundos de pesquisa qualitativa, com reflexões complementadas via levantamento bibliográfico e legislativo. Em termos de resultado, a análise indica que é nítida a responsabilização familiar, em detrimento a um Estado que deveria garantir as mínimas condições de qualidade de vida tanto para as pessoas que convivem com a doença quanto para os/as acometidos/as por ela As famílias vivem em constante angústia e desesperança, o que é acirrado tanto pela falta de compreensão da doença em sua totalidade, quanto pela ocorrência de períodos de crise de seus familiares, uma vez que não têm sido ofertados os serviços especializados – mesmo nos Centros de Atenção Psicossocial em Saúde Mental – que um paciente com DA requer. Assim, deve a rede de atendimento do Sistema Único de Saúde (SUS) se adequar à realidade que o impacto da DA causa – para além da culpabilização das famílias –, tendo em vista que aquela assistência é própria da dignidade da pessoa humana.Universidade Estadual de Londrina2022-04-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigo avaliado pelos Paresapplication/pdfhttps://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/4074310.5433/1980-511X.2022v17n1p91Revista do Direito Público; v. 17 n. 1 (2022); 91-1081980-511Xreponame:Revista do Direito Públicoinstname:Universidade Estadual de Londrina (UEL)instacron:UELporhttps://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/40743/31872Copyright (c) 2021 Revista do Direito Públicohttp://creativecommons.org/licenses/by-nc-nd/4.0info:eu-repo/semantics/openAccessPessôa, Elisângela MaiaSilva Araújo, Mário Augusto2022-09-23T15:57:42Zoai:ojs.pkp.sfu.ca:article/40743Revistahttps://www.uel.br/revistas/uel/index.php/direitopubPUBhttps://www.uel.br/revistas/uel/index.php/direitopub/oai||rdpubuel@uel.br1980-511X1980-511Xopendoar:2022-09-23T15:57:42Revista do Direito Público - Universidade Estadual de Londrina (UEL)false
dc.title.none.fl_str_mv When the right to health reaches the alzheimer's disease
Quando o direito à saúde chega na doença de alzheimer
title When the right to health reaches the alzheimer's disease
spellingShingle When the right to health reaches the alzheimer's disease
Pessôa, Elisângela Maia
Alzheimer's disease
Right to Health
Public Policy
Doença de Alzheimer
Direito á Saúde
Política Público
title_short When the right to health reaches the alzheimer's disease
title_full When the right to health reaches the alzheimer's disease
title_fullStr When the right to health reaches the alzheimer's disease
title_full_unstemmed When the right to health reaches the alzheimer's disease
title_sort When the right to health reaches the alzheimer's disease
author Pessôa, Elisângela Maia
author_facet Pessôa, Elisângela Maia
Silva Araújo, Mário Augusto
author_role author
author2 Silva Araújo, Mário Augusto
author2_role author
dc.contributor.author.fl_str_mv Pessôa, Elisângela Maia
Silva Araújo, Mário Augusto
dc.subject.por.fl_str_mv Alzheimer's disease
Right to Health
Public Policy
Doença de Alzheimer
Direito á Saúde
Política Público
topic Alzheimer's disease
Right to Health
Public Policy
Doença de Alzheimer
Direito á Saúde
Política Público
description Considering the increase in Alzheimer's Disease (AD) rates worldwide, the desire to raise reflections on the public care offered to families and AD patients emerged. The article aims to reveal the dilemma experienced by families that need specialized public assistance for AD, in its most diverse peculiarities and particularities. Also point out reports from qualitative research, with reflections complemented by bibliographic and legislative survey. In terms of results, the analysis indicates that family accountability is clear, to the detriment of a State that should guarantee the minimum conditions of quality of life both for people living with the disease and for those affected by it. families live in constant anguish and hopelessness, which is aggravated both by the lack of understanding of the disease in its entirety and by the occurrence of periods of crisis for their family members, since specialized services have not been offered - even in the Care Centers Psychosocial in Mental Health - that a patient with AD requires. Thus, the service network of the Brazilian Unified Health System (SUS) must adapt to the reality that the impact of AD causes - in addition to blaming families -, considering that that assistance is proper to the dignity of the human being.
publishDate 2022
dc.date.none.fl_str_mv 2022-04-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Artigo avaliado pelos Pares
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/40743
10.5433/1980-511X.2022v17n1p91
url https://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/40743
identifier_str_mv 10.5433/1980-511X.2022v17n1p91
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://ojs.uel.br/revistas/uel/index.php/direitopub/article/view/40743/31872
dc.rights.driver.fl_str_mv Copyright (c) 2021 Revista do Direito Público
http://creativecommons.org/licenses/by-nc-nd/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 Revista do Direito Público
http://creativecommons.org/licenses/by-nc-nd/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Estadual de Londrina
publisher.none.fl_str_mv Universidade Estadual de Londrina
dc.source.none.fl_str_mv Revista do Direito Público; v. 17 n. 1 (2022); 91-108
1980-511X
reponame:Revista do Direito Público
instname:Universidade Estadual de Londrina (UEL)
instacron:UEL
instname_str Universidade Estadual de Londrina (UEL)
instacron_str UEL
institution UEL
reponame_str Revista do Direito Público
collection Revista do Direito Público
repository.name.fl_str_mv Revista do Direito Público - Universidade Estadual de Londrina (UEL)
repository.mail.fl_str_mv ||rdpubuel@uel.br
_version_ 1799305933470302208

Registros relacionados