The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training

Detalhes bibliográficos
Autor(a) principal: dos Santos, Marcos Antonio
Data de Publicação: 2020
Outros Autores: Maria Angeli Teixeira de Paula, Ercília
Tipo de documento: Artigo
Idioma: por
Título da fonte: Olhar de Professor (Online)
Texto Completo: https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698
Resumo:   The present study had as general objective to analyze how the relatives of hemophiliacs are informed about the diagnosis of hemophilia. The specific objectives presented the strategies elaborated by the mothers to overcome the difficulties and discuss the need for educational campaigns to inform about hemophilia. This is a qualitative research that used as methodology case studies with interviews with five family members of hemophiliacs. The data collected were assessed using the technique of content analysis proposed by Bardin (1994). The results have evidenced that mothers passed through several processes when they knew the diagnosis of hemophilia of their children such as: learning about the pathology, fears, uncertainties, guilty, acceptance, adaptation, overprotection, and overcoming.
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spelling The unknowledge of hemophilia by physicians and teachers: the need for qualified educational trainingEl desconocimiento de la hemofilia en médicos y profesores: necesidad de educación y capacitación calificadaO desconhecimento da hemofilia por médicos e professores: necessidade de formação educacional qualificadaDiagnóstico. Hemofilia. Educação.Diagnosis. Hemophilia. Education.Diagnóstico. Hemofilia. Educación.  The present study had as general objective to analyze how the relatives of hemophiliacs are informed about the diagnosis of hemophilia. The specific objectives presented the strategies elaborated by the mothers to overcome the difficulties and discuss the need for educational campaigns to inform about hemophilia. This is a qualitative research that used as methodology case studies with interviews with five family members of hemophiliacs. The data collected were assessed using the technique of content analysis proposed by Bardin (1994). The results have evidenced that mothers passed through several processes when they knew the diagnosis of hemophilia of their children such as: learning about the pathology, fears, uncertainties, guilty, acceptance, adaptation, overprotection, and overcoming.El presente estudio tuvo como objetivo general analizar la manera en que los familiares de hemofílicos son informados sobre el diagnóstico de hemofilia. Los objetivos específicos presentaron las estrategias elaboradas por las madres para superar las dificultades y discutir la necesidad de campañas educacionales para informar sobre la hemofilia. La investigación fue de naturaleza cualitativa, y la metodología de investigación utilizada fue el estudio de caso, con entrevistas a cinco familiares de hemofílicos. Los datos recogidos fueron tratados usando la técnica de análisis de contenido propuesto por Bardin (1994). Se demostró que las madres pasaron por diversos procesos cuando supieron del diagnóstico de hemofilia de sus hijos, tales como: aprendizajes sobre la patologia, miedos, incertidumbre, dudas, culpa, aceptación, adaptación, super protección y superación. O presente estudo teve como objetivo geral analisar a maneira como os familiares de hemofílicos são informados sobre o diagnóstico de hemofilia. Os objetivos específicos apresentaram as estratégias elaboradas pelos pais para superar as dificuldades e discutir a necessidade de campanhas educacionais para informar sobre a hemofilia. A pesquisa foi de natureza qualitativa e a metodologia de pesquisa utilizada foram estudos de casos. Os dados coletados foram tratados por meio da técnica de análise de conteúdo proposta por Bardin (1994). Foi evidenciado que os pais passaram por diversos processos quando souberam do diagnóstico de hemofilia de seus filhos como: aprendizagens sobre a patologia, medos, incertezas, dúvidas, culpa, aceitação, adaptação, a superproteção e superação.Editora UEPG2020-04-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionPDF TextTexto PDFTexto PDFapplication/pdftext/xmlapplication/ziptext/htmlhttps://revistas.uepg.br/index.php/olhardeprofessor/article/view/1469810.5212/OlharProfr.v.22.0019Olhar de Professor; Bd. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14Olhar de Professor; Vol. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14Olhar de Professor; Vol. 22 (2019): Cuaderno Temático "Las Prácticas de la Enseñanza en la Educación Inicial: Perspectivas y experiencias"; 1-14Olhar de Professor; Vol. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14Olhar de Professor; v. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-141984-01871518-5648reponame:Olhar de Professor (Online)instname:Universidade Estadual de Ponta Grossa (UEPG)instacron:UEPGporhttps://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209213297https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209215976https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209215977https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209216135Copyright (c) 2020 Marcos Antonio dos Santos, Ercília Maria Angeli Teixeira de Paulainfo:eu-repo/semantics/openAccessdos Santos, Marcos AntonioMaria Angeli Teixeira de Paula, Ercília2022-03-19T20:00:30Zoai:uepg.br:article/14698Revistahttps://revistas2.uepg.br/index.php/olhardeprofessor/indexPUBhttps://revistas2.uepg.br/index.php/olhardeprofessor/oaiolhardeprofessor@uepg.br||1984-01871518-5648opendoar:2022-03-19T20:00:30Olhar de Professor (Online) - Universidade Estadual de Ponta Grossa (UEPG)false
dc.title.none.fl_str_mv The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
El desconocimiento de la hemofilia en médicos y profesores: necesidad de educación y capacitación calificada
O desconhecimento da hemofilia por médicos e professores: necessidade de formação educacional qualificada
title The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
spellingShingle The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
dos Santos, Marcos Antonio
Diagnóstico. Hemofilia. Educação.
Diagnosis. Hemophilia. Education.
Diagnóstico. Hemofilia. Educación.
title_short The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
title_full The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
title_fullStr The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
title_full_unstemmed The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
title_sort The unknowledge of hemophilia by physicians and teachers: the need for qualified educational training
author dos Santos, Marcos Antonio
author_facet dos Santos, Marcos Antonio
Maria Angeli Teixeira de Paula, Ercília
author_role author
author2 Maria Angeli Teixeira de Paula, Ercília
author2_role author
dc.contributor.author.fl_str_mv dos Santos, Marcos Antonio
Maria Angeli Teixeira de Paula, Ercília
dc.subject.por.fl_str_mv Diagnóstico. Hemofilia. Educação.
Diagnosis. Hemophilia. Education.
Diagnóstico. Hemofilia. Educación.
topic Diagnóstico. Hemofilia. Educação.
Diagnosis. Hemophilia. Education.
Diagnóstico. Hemofilia. Educación.
description   The present study had as general objective to analyze how the relatives of hemophiliacs are informed about the diagnosis of hemophilia. The specific objectives presented the strategies elaborated by the mothers to overcome the difficulties and discuss the need for educational campaigns to inform about hemophilia. This is a qualitative research that used as methodology case studies with interviews with five family members of hemophiliacs. The data collected were assessed using the technique of content analysis proposed by Bardin (1994). The results have evidenced that mothers passed through several processes when they knew the diagnosis of hemophilia of their children such as: learning about the pathology, fears, uncertainties, guilty, acceptance, adaptation, overprotection, and overcoming.
publishDate 2020
dc.date.none.fl_str_mv 2020-04-29
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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PDF Text
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format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698
10.5212/OlharProfr.v.22.0019
url https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698
identifier_str_mv 10.5212/OlharProfr.v.22.0019
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209213297
https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209215976
https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209215977
https://revistas.uepg.br/index.php/olhardeprofessor/article/view/14698/209209216135
dc.rights.driver.fl_str_mv Copyright (c) 2020 Marcos Antonio dos Santos, Ercília Maria Angeli Teixeira de Paula
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2020 Marcos Antonio dos Santos, Ercília Maria Angeli Teixeira de Paula
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
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dc.publisher.none.fl_str_mv Editora UEPG
publisher.none.fl_str_mv Editora UEPG
dc.source.none.fl_str_mv Olhar de Professor; Bd. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14
Olhar de Professor; Vol. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14
Olhar de Professor; Vol. 22 (2019): Cuaderno Temático "Las Prácticas de la Enseñanza en la Educación Inicial: Perspectivas y experiencias"; 1-14
Olhar de Professor; Vol. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14
Olhar de Professor; v. 22 (2019): Caderno Temático: "Estágio Curricular de Docência na Educação Infantil: perspectivas e práticas"; 1-14
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