A família como rede de apoio às pessoas com fibromialgia: estratégias de cuidado interdisciplinar

• Autor(a) principal: Costa, Larissa Pereira
• Data de Publicação: 2017
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações da UERJ
• Texto Completo: http://www.bdtd.uerj.br/handle/1/11430
• topic: Nursing; Family relationships; Chronic disease; Fibromyalgia; Enfermagem; Relações familiares; Doença crônica; Fibromialgia; CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM

During the disease process, unexpected situations arise, repetitive overloads that affect the family integrally, causing it to acquire attitudes and postures, sometimes compassion, sometimes incomprehension, impatience and lack of support, which can negatively influence the treatment and recovery of people with chronic disease. The main search object of this study is the family as a support network for people with fibromyalgia: interdisciplinary care strategies. The general objective is to understand how family networks can influence the process of health, illness and care of people with fibromyalgia. And the specific objectives: to identify the changes in the family routine; to describe how the family organizes itself to help the person with fibromyalgia and discuss the care strategies developed by the family networks. The theoretical referential comes from Freirean liberation theory. This is a qualitative research, with a participative approach, developed in 2016, in the Laboratory of Physiology applied to Physical Education of the University of the State of Rio de Janeiro, with 15 participants. The study has been approved by the Ethics and Research Committee of UERJ under number 1,587,664. Data production included the Talking Map, World Café and Questionnaire. The organization and analysis of the data have been performed according to Bardin, emerging 3 categories: The needs of changes in confrontation of the illness; The family organization faced the health/illness process and The care strategies developed by the family from the illness. The findings were analyzed according to Freire's theory. It is concluded that the family network is shaken in this situation, once fibromyalgia generates several changes in the routine and it already makes that the person and the family organize themselves in different ways to maintain their daily activities. As a mean of adapting to the changes and assisting in the person with fibromyalgia care, the family seeks to develop several care strategies based on co-creation. There is evidence in the family members' reports that the nursing professional holds an important role in mediating relationships, assisting in the co-creation of necessary strategies and maintaining the family network in a healthy and harmonious way. Emphasizing that participatory research was an effective strategy in the emancipation of participants.