As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar

Detalhes bibliográficos
Autor(a) principal: Carvalho, Michelle de Oliveira Guimarães
Data de Publicação: 2015
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca Digital de Teses e Dissertações da UERJ
Texto Completo: http://www.bdtd.uerj.br/handle/1/11403
Resumo: Technological development has led to an increase in life expectancy of children with special health care needs. Therefore, the gastrostomy has been used most often in children who have difficulties and risk to feed orally. The care for children with gastrostomy requires peculiar care demands essential to survival that will be carried out by family caregivers at home. Therefore, this study had as subject the care of caregivers to children with gastrostomy in the home context. Objectives: To know how the family caregiver performs the care of children with gastrostomy in a home scenario, reveal the challenges faced by family caregivers while taking care of children with gastrostomy at home and analyze strategies for that. The theoretical foundations were guided in the Colliére care concepts and the problem-based education of Paulo Freire. Methodology: qualitative research developed through the sensitive creative method, with the implementation of the dynamic "Corpo Saber" in the domicile, of children with gastrostomy, with 16 family caregivers. To analyze the results we used the speech analysis in its French chain. The speeches of the family in the process of feeding the children with gastrostomy revealed the need to grind food in order to make it more liquid and thus manage it more easily by the probe, the concern about nutritional value and food volume to be administered. About the drug administration identified the need to grind the solid drug, the concern about schedules and how to manage them. Thus, in caring for hygiene, discussed issues related to tools, device and the peristomal skin. As for the challenges, pointed out those related to the administration of the diet, those related to medication administration, the handling of the gastrostomy device, the acquisition of materials and the challenges of child care outside the home environment. It was concluded that to meet the demands of care required by children with gastrostomy, family members change their ways of caring and seek strategies looking for a better quality of life for the children. Therefore, knowing the care provided by family members, their challenges and strategies are a starting point in the development of new skills for nursing looking after children with gastrostomy when in the domicile.
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spelling Pacheco, Sandra Teixeira de Araujohttp://lattes.cnpq.br/7585694881009907Rodrigues, Benedita Maria Rêgo Deusdaráhttp://lattes.cnpq.br/3429144382068615Silva, Liliane Faria dahttp://lattes.cnpq.br/9071782541107295http://lattes.cnpq.br/7922200823654028Carvalho, Michelle de Oliveira Guimarães2021-01-06T14:35:17Z2018-04-182015-12-14CARVALHO, Michelle de Oliveira Guimarães. As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar. 2015. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2015.http://www.bdtd.uerj.br/handle/1/11403Technological development has led to an increase in life expectancy of children with special health care needs. Therefore, the gastrostomy has been used most often in children who have difficulties and risk to feed orally. The care for children with gastrostomy requires peculiar care demands essential to survival that will be carried out by family caregivers at home. Therefore, this study had as subject the care of caregivers to children with gastrostomy in the home context. Objectives: To know how the family caregiver performs the care of children with gastrostomy in a home scenario, reveal the challenges faced by family caregivers while taking care of children with gastrostomy at home and analyze strategies for that. The theoretical foundations were guided in the Colliére care concepts and the problem-based education of Paulo Freire. Methodology: qualitative research developed through the sensitive creative method, with the implementation of the dynamic "Corpo Saber" in the domicile, of children with gastrostomy, with 16 family caregivers. To analyze the results we used the speech analysis in its French chain. The speeches of the family in the process of feeding the children with gastrostomy revealed the need to grind food in order to make it more liquid and thus manage it more easily by the probe, the concern about nutritional value and food volume to be administered. About the drug administration identified the need to grind the solid drug, the concern about schedules and how to manage them. Thus, in caring for hygiene, discussed issues related to tools, device and the peristomal skin. As for the challenges, pointed out those related to the administration of the diet, those related to medication administration, the handling of the gastrostomy device, the acquisition of materials and the challenges of child care outside the home environment. It was concluded that to meet the demands of care required by children with gastrostomy, family members change their ways of caring and seek strategies looking for a better quality of life for the children. Therefore, knowing the care provided by family members, their challenges and strategies are a starting point in the development of new skills for nursing looking after children with gastrostomy when in the domicile.O desenvolvimento tecnológico permitiu o aumento da expectativa de vida de crianças com necessidades especiais de saúde. Neste contexto, a gastrostomia vem sendo utilizada com maior frequência em crianças que apresentam dificuldades e risco para se alimentar por via oral. O cuidado a crianças com gastrostomia exige demandas de cuidados peculiares e imprescindíveis à sobrevida que serão realizados pelos familiares cuidadores no domicílio. Neste sentido, esse estudo teve como objeto de investigação,o cuidado do familiar cuidador à criança com gastrostomia no contexto domiciliar. Como objetivos: conhecer como o familiar cuidador realiza os cuidados à criança com gastrostomia no cenário domiciliar; desvelar os desafios enfrentados pelo familiar cuidador na prática de cuidar da criança com gastrostomia no domicílio; e analisar as estratégias que mediaram às práticas de cuidar do familiar cuidador com crianças gastrostomia no domicílio. Os alicerces teóricos estiveram pautados nas concepções de cuidado de Collière e na educação problematizadora de Paulo Freire. Metodologia: pesquisa qualitativa desenvolvida por meio do método criativo sensível, com a implementação da dinâmica Corpo Saber no domicílio de crianças com gastrostomia com 16 familiares cuidadores. Para a análise dos resultados, utilizou-se a análise de discurso em sua corrente francesa. Os discursos dos familiares no processo de alimentar a criança com gastrostomia revelaram a necessidade de triturar os alimentos de modo a torná-lo mais liquefeito e assim administrá-lo com maior facilidade pela sonda, a preocupação com valor nutricional e o volume do alimentoa ser administrado. Acerca da administração dos medicamentos, apontaram a necessidade de triturar os medicamentos sólidos, a preocupação comos horários e a forma de administrá-los. Quanto aos cuidados com higienização abordaram questões relacionadas aos utensílios, dispositivo e à pele periestomal. Quanto aos desafios apontaram aqueles relacionados à administração da dieta, aqueles referentes à administração de medicamentos, ao manuseio do dispositivo de gastrostomia, à aquisição de materiais e os desafios de cuidar da criança fora do ambiente domiciliar. Concluiu-se que para atender às demandas de cuidados exigidas pela criança com gastrostomia, os familiares modificam seus modos de cuidar e buscam estratégias com vistas a melhor qualidade de vida da mesma. Portanto, conhecer os cuidados realizados pelos familiares, seus desafios e as estratégias, é um ponto de partida na produção de novos conhecimentos para o cuidar da enfermagem frente a criança com gastrostomia quando no domicílio.Submitted by Boris Flegr (boris@uerj.br) on 2021-01-06T14:35:17Z No. of bitstreams: 1 DISSERTACAO_FINAL_MICHELLE_DE_OLIVEIRA_GUIMARAES_CARVALHO.pdf: 2594448 bytes, checksum: 2ae81c09ccebdc82f75b154570c00337 (MD5)Made available in DSpace on 2021-01-06T14:35:17Z (GMT). No. of bitstreams: 1 DISSERTACAO_FINAL_MICHELLE_DE_OLIVEIRA_GUIMARAES_CARVALHO.pdf: 2594448 bytes, checksum: 2ae81c09ccebdc82f75b154570c00337 (MD5) Previous issue date: 2015-12-14application/pdfporUniversidade do Estado do Rio de JaneiroPrograma de Pós-Graduação em EnfermagemUERJBRCentro Biomédico::Faculdade de EnfermagemGastrostomyChildrenNursingFamily caregiverHomeGastrostomiaCriançaEnfermagemFamiliar cuidadorDomicílioCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMAs práticas de cuidado da família à criança com gastrostomia no contexto domiciliarFamily care practices toward children with gastrostomy in the home contextinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UERJinstname:Universidade do Estado do Rio de Janeiro (UERJ)instacron:UERJORIGINALDISSERTACAO_FINAL_MICHELLE_DE_OLIVEIRA_GUIMARAES_CARVALHO.pdfapplication/pdf2594448http://www.bdtd.uerj.br/bitstream/1/11403/1/DISSERTACAO_FINAL_MICHELLE_DE_OLIVEIRA_GUIMARAES_CARVALHO.pdf2ae81c09ccebdc82f75b154570c00337MD511/114032024-02-26 16:23:18.597oai:www.bdtd.uerj.br:1/11403Biblioteca Digital de Teses e Dissertaçõeshttp://www.bdtd.uerj.br/PUBhttps://www.bdtd.uerj.br:8443/oai/requestbdtd.suporte@uerj.bropendoar:29032024-02-26T19:23:18Biblioteca Digital de Teses e Dissertações da UERJ - Universidade do Estado do Rio de Janeiro (UERJ)false
dc.title.por.fl_str_mv As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
dc.title.alternative.eng.fl_str_mv Family care practices toward children with gastrostomy in the home context
title As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
spellingShingle As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
Carvalho, Michelle de Oliveira Guimarães
Gastrostomy
Children
Nursing
Family caregiver
Home
Gastrostomia
Criança
Enfermagem
Familiar cuidador
Domicílio
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
title_full As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
title_fullStr As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
title_full_unstemmed As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
title_sort As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar
author Carvalho, Michelle de Oliveira Guimarães
author_facet Carvalho, Michelle de Oliveira Guimarães
author_role author
dc.contributor.advisor1.fl_str_mv Pacheco, Sandra Teixeira de Araujo
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/7585694881009907
dc.contributor.referee1.fl_str_mv Rodrigues, Benedita Maria Rêgo Deusdará
dc.contributor.referee1Lattes.fl_str_mv http://lattes.cnpq.br/3429144382068615
dc.contributor.referee2.fl_str_mv Silva, Liliane Faria da
dc.contributor.referee2Lattes.fl_str_mv http://lattes.cnpq.br/9071782541107295
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/7922200823654028
dc.contributor.author.fl_str_mv Carvalho, Michelle de Oliveira Guimarães
contributor_str_mv Pacheco, Sandra Teixeira de Araujo
Rodrigues, Benedita Maria Rêgo Deusdará
Silva, Liliane Faria da
dc.subject.eng.fl_str_mv Gastrostomy
Children
Nursing
Family caregiver
Home
topic Gastrostomy
Children
Nursing
Family caregiver
Home
Gastrostomia
Criança
Enfermagem
Familiar cuidador
Domicílio
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
dc.subject.por.fl_str_mv Gastrostomia
Criança
Enfermagem
Familiar cuidador
Domicílio
dc.subject.cnpq.fl_str_mv CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description Technological development has led to an increase in life expectancy of children with special health care needs. Therefore, the gastrostomy has been used most often in children who have difficulties and risk to feed orally. The care for children with gastrostomy requires peculiar care demands essential to survival that will be carried out by family caregivers at home. Therefore, this study had as subject the care of caregivers to children with gastrostomy in the home context. Objectives: To know how the family caregiver performs the care of children with gastrostomy in a home scenario, reveal the challenges faced by family caregivers while taking care of children with gastrostomy at home and analyze strategies for that. The theoretical foundations were guided in the Colliére care concepts and the problem-based education of Paulo Freire. Methodology: qualitative research developed through the sensitive creative method, with the implementation of the dynamic "Corpo Saber" in the domicile, of children with gastrostomy, with 16 family caregivers. To analyze the results we used the speech analysis in its French chain. The speeches of the family in the process of feeding the children with gastrostomy revealed the need to grind food in order to make it more liquid and thus manage it more easily by the probe, the concern about nutritional value and food volume to be administered. About the drug administration identified the need to grind the solid drug, the concern about schedules and how to manage them. Thus, in caring for hygiene, discussed issues related to tools, device and the peristomal skin. As for the challenges, pointed out those related to the administration of the diet, those related to medication administration, the handling of the gastrostomy device, the acquisition of materials and the challenges of child care outside the home environment. It was concluded that to meet the demands of care required by children with gastrostomy, family members change their ways of caring and seek strategies looking for a better quality of life for the children. Therefore, knowing the care provided by family members, their challenges and strategies are a starting point in the development of new skills for nursing looking after children with gastrostomy when in the domicile.
publishDate 2015
dc.date.issued.fl_str_mv 2015-12-14
dc.date.available.fl_str_mv 2018-04-18
dc.date.accessioned.fl_str_mv 2021-01-06T14:35:17Z
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dc.identifier.citation.fl_str_mv CARVALHO, Michelle de Oliveira Guimarães. As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar. 2015. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2015.
dc.identifier.uri.fl_str_mv http://www.bdtd.uerj.br/handle/1/11403
identifier_str_mv CARVALHO, Michelle de Oliveira Guimarães. As práticas de cuidado da família à criança com gastrostomia no contexto domiciliar. 2015. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade do Estado do Rio de Janeiro, Rio de Janeiro, 2015.
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