Experience of parents of children with congenital heart disease: feelings and obstacles

Detalhes bibliográficos
Autor(a) principal: Barreto, Thaís Sena Mombach
Data de Publicação: 2016
Outros Autores: Sakamoto, Victória Tiyoko Moraes, Magagnin, Jardel Scremin, Coelho, Débora Fernandes, Waterkemper, Roberta, Canabarro, Simone Travi
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Rev Rene (Online)
Texto Completo: http://periodicos.ufc.br/rene/article/view/2614
Resumo: Objective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants.  Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis. Results: five thematic categories emerged: (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality. Conclusion: each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care.
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spelling Experience of parents of children with congenital heart disease: feelings and obstaclesHeart DefectsCongenitalChildHospitalizedCongenital AbnormalitiesParents.Objective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants.  Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis. Results: five thematic categories emerged: (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality. Conclusion: each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care.Universidade Federal do Ceará2016-02-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://periodicos.ufc.br/rene/article/view/261410.15253/2175-6783.2016000100017Rev Rene; Vol 17 No 1 (2016); 128-136Rev Rene; v. 17 n. 1 (2016); 128-1362175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCenghttp://periodicos.ufc.br/rene/article/view/2614/2002Copyright (c) 2016 Northeast Network Nursing Journalinfo:eu-repo/semantics/openAccessBarreto, Thaís Sena MombachSakamoto, Victória Tiyoko MoraesMagagnin, Jardel ScreminCoelho, Débora FernandesWaterkemper, RobertaCanabarro, Simone Travi2019-03-18T19:14:55Zoai:periodicos.ufc:article/2614Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2019-03-18T19:14:55Rev Rene (Online) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Experience of parents of children with congenital heart disease: feelings and obstacles
title Experience of parents of children with congenital heart disease: feelings and obstacles
spellingShingle Experience of parents of children with congenital heart disease: feelings and obstacles
Barreto, Thaís Sena Mombach
Heart Defects
Congenital
Child
Hospitalized
Congenital Abnormalities
Parents.
title_short Experience of parents of children with congenital heart disease: feelings and obstacles
title_full Experience of parents of children with congenital heart disease: feelings and obstacles
title_fullStr Experience of parents of children with congenital heart disease: feelings and obstacles
title_full_unstemmed Experience of parents of children with congenital heart disease: feelings and obstacles
title_sort Experience of parents of children with congenital heart disease: feelings and obstacles
author Barreto, Thaís Sena Mombach
author_facet Barreto, Thaís Sena Mombach
Sakamoto, Victória Tiyoko Moraes
Magagnin, Jardel Scremin
Coelho, Débora Fernandes
Waterkemper, Roberta
Canabarro, Simone Travi
author_role author
author2 Sakamoto, Victória Tiyoko Moraes
Magagnin, Jardel Scremin
Coelho, Débora Fernandes
Waterkemper, Roberta
Canabarro, Simone Travi
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Barreto, Thaís Sena Mombach
Sakamoto, Victória Tiyoko Moraes
Magagnin, Jardel Scremin
Coelho, Débora Fernandes
Waterkemper, Roberta
Canabarro, Simone Travi
dc.subject.por.fl_str_mv Heart Defects
Congenital
Child
Hospitalized
Congenital Abnormalities
Parents.
topic Heart Defects
Congenital
Child
Hospitalized
Congenital Abnormalities
Parents.
description Objective: understand the meaning of the experiences of parents of children with congenital heart disease regarding feelings, obstacles and expectations. Methods: exploratory qualitative study conducted at a pediatric intensive care unit of a reference hospital. Participants corresponded to seven mothers and four fathers of children with congenital heart defect, surgically corrected and with more than 8 hours of admission, totalling 11 participants.  Data collection was performed through semi-structured individual recorded interviews. Data were described according to thematic content analysis. Results: five thematic categories emerged: (1) unpreparedness to face the problem; (2) feelings involved (3) factors that make difficult to face the problem; (4) factors that facilitate facing the problem; (5) spirituality. Conclusion: each family is unique and needs support to better face the disease and its process. It is essential to develop interdisciplinary network support, providing comprehensive care.
publishDate 2016
dc.date.none.fl_str_mv 2016-02-21
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufc.br/rene/article/view/2614
10.15253/2175-6783.2016000100017
url http://periodicos.ufc.br/rene/article/view/2614
identifier_str_mv 10.15253/2175-6783.2016000100017
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv http://periodicos.ufc.br/rene/article/view/2614/2002
dc.rights.driver.fl_str_mv Copyright (c) 2016 Northeast Network Nursing Journal
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2016 Northeast Network Nursing Journal
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Federal do Ceará
publisher.none.fl_str_mv Universidade Federal do Ceará
dc.source.none.fl_str_mv Rev Rene; Vol 17 No 1 (2016); 128-136
Rev Rene; v. 17 n. 1 (2016); 128-136
2175-6783
1517-3852
reponame:Rev Rene (Online)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Rev Rene (Online)
collection Rev Rene (Online)
repository.name.fl_str_mv Rev Rene (Online) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv rene@ufc.br||
_version_ 1797174725241208832

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