Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection

Detalhes bibliográficos
Autor(a) principal: Campos, Mara Marusia Martins Sampaio
Data de Publicação: 2018
Outros Autores: Sousa, Thaynara Campos de, Teixeira, Gianini Portela, Chaves, Kellen Yamille dos Santos, Araújo, Maria Valdeleda Uchoa Moraes, Sousa, Marília Rocha
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Rev Rene (Online)
Texto Completo: http://periodicos.ufc.br/rene/article/view/32839
Resumo: Objective: to understand the challenges and perspectives of mothers of children with microcephaly due to Zika virus infection. Methods: qualitative study carried out with twelve mothers of children with microcephaly due to Zika virus at a pediatric public hospital. Data were collected through a semi-structured interview and submitted to content analysis. Results: the speeches revealed the mothers were mostly unaware of the occurrence of Zika virus infection in pregnancy, and the moment of diagnosis was characterized by surprise and suffering, despite the observed overcoming. Many of them did not know the meaning of microcephaly and did not know what changes and limitations their children might have. In describing the difficulties in caring for the child, mothers attached to spirituality as a form of coping. Conclusion: microcephaly brought a new reality to the investigated women, who sometimes denied their own reality, demonstrating in the speeches many challenges and few perspectives.
id UFC-16_bf747126c1fd6a50ef196d7d0384c8aa
oai_identifier_str oai:periodicos.ufc:article/32839
network_acronym_str UFC-16
network_name_str Rev Rene (Online)
repository_id_str
spelling Challenges and perspectives of mothers of children with microcephaly due to Zika virus infectionDesafios e perspectivas de mães de crianças com microcefalia pelo vírus ZikaZika Virus; Mothers; Microcephaly; Child.Zika Vírus; Mães; Microcefalia; Criança.Objective: to understand the challenges and perspectives of mothers of children with microcephaly due to Zika virus infection. Methods: qualitative study carried out with twelve mothers of children with microcephaly due to Zika virus at a pediatric public hospital. Data were collected through a semi-structured interview and submitted to content analysis. Results: the speeches revealed the mothers were mostly unaware of the occurrence of Zika virus infection in pregnancy, and the moment of diagnosis was characterized by surprise and suffering, despite the observed overcoming. Many of them did not know the meaning of microcephaly and did not know what changes and limitations their children might have. In describing the difficulties in caring for the child, mothers attached to spirituality as a form of coping. Conclusion: microcephaly brought a new reality to the investigated women, who sometimes denied their own reality, demonstrating in the speeches many challenges and few perspectives.Objetivo: compreender desafios e perspectivas de mães de crianças com microcefalia pelo vírus Zika. Métodos: estudo qualitativo, realizado com doze mães de crianças com microcefalia pelo vírus Zika, em hospital público pediátrico. Dados coletados por meio de entrevista semiestruturada, os quais foram submetidos à análise de conteúdo. Resultados: de acordo com as falas, as mães, em maioria, desconheciam a ocorrência de vírus Zika na gestação, sendo o momento do diagnóstico caracterizado por surpresa e sofrimento, apesar da superação observada. Muitas delas não sabiam o significado de microcefalia, bem como desconheciam as alterações e limitações que as crianças poderiam apresentar. Ao descrever as dificuldades no cuidado com o filho, revelaram que usavam a espiritualidade como forma de enfrentamento. Conclusão: a microcefalia trouxe, de tal forma, nova realidade para as mulheres investigadas, que, por vezes, negavam a própria realidade, demonstrando, nas falas, muitos desafios e poucas perspectivas.Universidade Federal do Ceará2018-11-22info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAbordagem qualitativaapplication/pdfapplication/pdfapplication/pdfimage/jpegimage/jpegapplication/vnd.openxmlformats-officedocument.wordprocessingml.documentapplication/pdfhttp://periodicos.ufc.br/rene/article/view/3283910.15253/2175-6783.20181932839Rev Rene; Vol 19 (2018): Rev Rene; e32839Rev Rene; v. 19 (2018): Rev Rene; e328392175-67831517-3852reponame:Rev Rene (Online)instname:Universidade Federal do Ceará (UFC)instacron:UFCengporhttp://periodicos.ufc.br/rene/article/view/32839/pdfhttp://periodicos.ufc.br/rene/article/view/32839/pdf_1http://periodicos.ufc.br/rene/article/view/32839/98447http://periodicos.ufc.br/rene/article/view/32839/98448http://periodicos.ufc.br/rene/article/view/32839/98449http://periodicos.ufc.br/rene/article/view/32839/98450http://periodicos.ufc.br/rene/article/view/32839/98451Copyright (c) 2018 Rev Renehttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessCampos, Mara Marusia Martins SampaioSousa, Thaynara Campos deTeixeira, Gianini PortelaChaves, Kellen Yamille dos SantosAraújo, Maria Valdeleda Uchoa MoraesSousa, Marília Rocha2020-05-28T15:35:25Zoai:periodicos.ufc:article/32839Revistahttp://periodicos.ufc.br/renePUBhttp://periodicos.ufc.br/rene/oairene@ufc.br||2175-67831517-3852opendoar:2020-05-28T15:35:25Rev Rene (Online) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
Desafios e perspectivas de mães de crianças com microcefalia pelo vírus Zika
title Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
spellingShingle Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
Campos, Mara Marusia Martins Sampaio
Zika Virus; Mothers; Microcephaly; Child.
Zika Vírus; Mães; Microcefalia; Criança.
title_short Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
title_full Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
title_fullStr Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
title_full_unstemmed Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
title_sort Challenges and perspectives of mothers of children with microcephaly due to Zika virus infection
author Campos, Mara Marusia Martins Sampaio
author_facet Campos, Mara Marusia Martins Sampaio
Sousa, Thaynara Campos de
Teixeira, Gianini Portela
Chaves, Kellen Yamille dos Santos
Araújo, Maria Valdeleda Uchoa Moraes
Sousa, Marília Rocha
author_role author
author2 Sousa, Thaynara Campos de
Teixeira, Gianini Portela
Chaves, Kellen Yamille dos Santos
Araújo, Maria Valdeleda Uchoa Moraes
Sousa, Marília Rocha
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Campos, Mara Marusia Martins Sampaio
Sousa, Thaynara Campos de
Teixeira, Gianini Portela
Chaves, Kellen Yamille dos Santos
Araújo, Maria Valdeleda Uchoa Moraes
Sousa, Marília Rocha
dc.subject.por.fl_str_mv Zika Virus; Mothers; Microcephaly; Child.
Zika Vírus; Mães; Microcefalia; Criança.
topic Zika Virus; Mothers; Microcephaly; Child.
Zika Vírus; Mães; Microcefalia; Criança.
description Objective: to understand the challenges and perspectives of mothers of children with microcephaly due to Zika virus infection. Methods: qualitative study carried out with twelve mothers of children with microcephaly due to Zika virus at a pediatric public hospital. Data were collected through a semi-structured interview and submitted to content analysis. Results: the speeches revealed the mothers were mostly unaware of the occurrence of Zika virus infection in pregnancy, and the moment of diagnosis was characterized by surprise and suffering, despite the observed overcoming. Many of them did not know the meaning of microcephaly and did not know what changes and limitations their children might have. In describing the difficulties in caring for the child, mothers attached to spirituality as a form of coping. Conclusion: microcephaly brought a new reality to the investigated women, who sometimes denied their own reality, demonstrating in the speeches many challenges and few perspectives.
publishDate 2018
dc.date.none.fl_str_mv 2018-11-22
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Abordagem qualitativa
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufc.br/rene/article/view/32839
10.15253/2175-6783.20181932839
url http://periodicos.ufc.br/rene/article/view/32839
identifier_str_mv 10.15253/2175-6783.20181932839
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv http://periodicos.ufc.br/rene/article/view/32839/pdf
http://periodicos.ufc.br/rene/article/view/32839/pdf_1
http://periodicos.ufc.br/rene/article/view/32839/98447
http://periodicos.ufc.br/rene/article/view/32839/98448
http://periodicos.ufc.br/rene/article/view/32839/98449
http://periodicos.ufc.br/rene/article/view/32839/98450
http://periodicos.ufc.br/rene/article/view/32839/98451
dc.rights.driver.fl_str_mv Copyright (c) 2018 Rev Rene
https://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2018 Rev Rene
https://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
application/pdf
image/jpeg
image/jpeg
application/vnd.openxmlformats-officedocument.wordprocessingml.document
application/pdf
dc.publisher.none.fl_str_mv Universidade Federal do Ceará
publisher.none.fl_str_mv Universidade Federal do Ceará
dc.source.none.fl_str_mv Rev Rene; Vol 19 (2018): Rev Rene; e32839
Rev Rene; v. 19 (2018): Rev Rene; e32839
2175-6783
1517-3852
reponame:Rev Rene (Online)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Rev Rene (Online)
collection Rev Rene (Online)
repository.name.fl_str_mv Rev Rene (Online) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv rene@ufc.br||
_version_ 1797174733652885504