Perceptions of people with leprosy about disease and treatment

Detalhes bibliográficos
Autor(a) principal: Pelizzari, Vanessa Daniele Zambon Valério
Data de Publicação: 2016
Outros Autores: Arruda, Guilherme Oliveira de, Marcon, Sônia Silva, Fernandes, Carlos Alexandre Molena
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Institucional da Universidade Federal do Ceará (UFC)
Texto Completo: http://www.repositorio.ufc.br/handle/riufc/19491
Resumo: Objective : to understand the perceptions of people with leprosy about disease and treatment. Methods : qualitative study conducted with nine adults in chemotherapy treatment. Data was collected through semi- structured interviews and submitted to content analysis in thematic modality. Results : participants reported a concern, distrust, and resistance to accepting the diagnosis. When diagnosed, they felt shame and fear of suffering prejudice. Living with the disease caused important changes, such as the inability to get out, to exercise or perform leisure activities, but the improvement resulting from treatment reassured them, and the need to care for a dependent care motivated them to do it. Families expressed attention, and care was recognized as important, and the absence of these events meant abandonment and exclusion. Conclusion : people with leprosy have demanded not always identified by health professionals, but they had repercussions in the management of the treatment and welfare of these people.
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spelling Perceptions of people with leprosy about disease and treatmentPercepções de pessoas com hanseníase acerca da doença e tratamentoHanseníaseEnfermagem em Saúde ComunitáriaRelações FamiliaresObjective : to understand the perceptions of people with leprosy about disease and treatment. Methods : qualitative study conducted with nine adults in chemotherapy treatment. Data was collected through semi- structured interviews and submitted to content analysis in thematic modality. Results : participants reported a concern, distrust, and resistance to accepting the diagnosis. When diagnosed, they felt shame and fear of suffering prejudice. Living with the disease caused important changes, such as the inability to get out, to exercise or perform leisure activities, but the improvement resulting from treatment reassured them, and the need to care for a dependent care motivated them to do it. Families expressed attention, and care was recognized as important, and the absence of these events meant abandonment and exclusion. Conclusion : people with leprosy have demanded not always identified by health professionals, but they had repercussions in the management of the treatment and welfare of these people.Objetivo: compreender as percepções de pessoas com hanseníase acerca da doença e tratamento. Métodos: estudo qualitativo, realizado com nove adultos em tratamento poliquimioterápico. Dados coletados mediante entrevista semiestruturada e submetidos à análise de conteúdo, modalidade temática. Resultados: os participantes relataram preocupação, desconfiança e resistência em aceitar o diagnóstico. Diagnosticados, sentiram vergonha e medo de sofrerem preconceito. Conviver com a doença provocou mudanças importantes, como a impossibilidade de saírem, se exercitarem ou realizarem atividades de lazer, mas a melhora advinda do tratamento os tranquilizou, e a necessidade de cuidar de um familiar dependente de cuidados lhes motivou a realizá-lo. As famílias que manifestaram atenção e cuidados foram reconhecidas como importantes; e a ausência dessas manifestações significou abandono e exclusão. Conclusão: pessoas com hanseníase apresentam demandas nem sempre identificadas pelos profissionais de saúde, mas estas repercutem no manejo do tratamento e bem-estar destas.Rev Rene2016-09-09T12:40:15Z2016-09-09T12:40:15Z2016-07info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfPELIZZARI, V. D. Z. V. et al. Perceptions of people with leprosy about disease and treatment. Rev Rene, Fortaleza, v. 17, n. 4, p. 466-74, jul./aug. 2016.2175-6783 On-linehttp://www.repositorio.ufc.br/handle/riufc/19491Pelizzari, Vanessa Daniele Zambon ValérioArruda, Guilherme Oliveira deMarcon, Sônia SilvaFernandes, Carlos Alexandre Molenaengreponame:Repositório Institucional da Universidade Federal do Ceará (UFC)instname:Universidade Federal do Ceará (UFC)instacron:UFCinfo:eu-repo/semantics/openAccess2019-02-06T11:28:08Zoai:repositorio.ufc.br:riufc/19491Repositório InstitucionalPUBhttp://www.repositorio.ufc.br/ri-oai/requestbu@ufc.br || repositorio@ufc.bropendoar:2024-09-11T18:44:20.635170Repositório Institucional da Universidade Federal do Ceará (UFC) - Universidade Federal do Ceará (UFC)false
dc.title.none.fl_str_mv Perceptions of people with leprosy about disease and treatment
Percepções de pessoas com hanseníase acerca da doença e tratamento
title Perceptions of people with leprosy about disease and treatment
spellingShingle Perceptions of people with leprosy about disease and treatment
Pelizzari, Vanessa Daniele Zambon Valério
Hanseníase
Enfermagem em Saúde Comunitária
Relações Familiares
title_short Perceptions of people with leprosy about disease and treatment
title_full Perceptions of people with leprosy about disease and treatment
title_fullStr Perceptions of people with leprosy about disease and treatment
title_full_unstemmed Perceptions of people with leprosy about disease and treatment
title_sort Perceptions of people with leprosy about disease and treatment
author Pelizzari, Vanessa Daniele Zambon Valério
author_facet Pelizzari, Vanessa Daniele Zambon Valério
Arruda, Guilherme Oliveira de
Marcon, Sônia Silva
Fernandes, Carlos Alexandre Molena
author_role author
author2 Arruda, Guilherme Oliveira de
Marcon, Sônia Silva
Fernandes, Carlos Alexandre Molena
author2_role author
author
author
dc.contributor.author.fl_str_mv Pelizzari, Vanessa Daniele Zambon Valério
Arruda, Guilherme Oliveira de
Marcon, Sônia Silva
Fernandes, Carlos Alexandre Molena
dc.subject.por.fl_str_mv Hanseníase
Enfermagem em Saúde Comunitária
Relações Familiares
topic Hanseníase
Enfermagem em Saúde Comunitária
Relações Familiares
description Objective : to understand the perceptions of people with leprosy about disease and treatment. Methods : qualitative study conducted with nine adults in chemotherapy treatment. Data was collected through semi- structured interviews and submitted to content analysis in thematic modality. Results : participants reported a concern, distrust, and resistance to accepting the diagnosis. When diagnosed, they felt shame and fear of suffering prejudice. Living with the disease caused important changes, such as the inability to get out, to exercise or perform leisure activities, but the improvement resulting from treatment reassured them, and the need to care for a dependent care motivated them to do it. Families expressed attention, and care was recognized as important, and the absence of these events meant abandonment and exclusion. Conclusion : people with leprosy have demanded not always identified by health professionals, but they had repercussions in the management of the treatment and welfare of these people.
publishDate 2016
dc.date.none.fl_str_mv 2016-09-09T12:40:15Z
2016-09-09T12:40:15Z
2016-07
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv PELIZZARI, V. D. Z. V. et al. Perceptions of people with leprosy about disease and treatment. Rev Rene, Fortaleza, v. 17, n. 4, p. 466-74, jul./aug. 2016.
2175-6783 On-line
http://www.repositorio.ufc.br/handle/riufc/19491
identifier_str_mv PELIZZARI, V. D. Z. V. et al. Perceptions of people with leprosy about disease and treatment. Rev Rene, Fortaleza, v. 17, n. 4, p. 466-74, jul./aug. 2016.
2175-6783 On-line
url http://www.repositorio.ufc.br/handle/riufc/19491
dc.language.iso.fl_str_mv eng
language eng
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Rev Rene
publisher.none.fl_str_mv Rev Rene
dc.source.none.fl_str_mv reponame:Repositório Institucional da Universidade Federal do Ceará (UFC)
instname:Universidade Federal do Ceará (UFC)
instacron:UFC
instname_str Universidade Federal do Ceará (UFC)
instacron_str UFC
institution UFC
reponame_str Repositório Institucional da Universidade Federal do Ceará (UFC)
collection Repositório Institucional da Universidade Federal do Ceará (UFC)
repository.name.fl_str_mv Repositório Institucional da Universidade Federal do Ceará (UFC) - Universidade Federal do Ceará (UFC)
repository.mail.fl_str_mv bu@ufc.br || repositorio@ufc.br
_version_ 1813028926545461248

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