Understanding the experience of the caregiver of a family member with incurable cancer

Detalhes bibliográficos
Autor(a) principal: Cruzeiro, Natália Fernandes
Data de Publicação: 2012
Outros Autores: Pinto, Maria Helena, Cesarino, Claudia Bernardi, Pereira, Adriana Pelegrini dos Santos
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Eletrônica de Enfermagem
Texto Completo: https://revistas.ufg.br/fen/article/view/14171
Resumo: This study aimed at understanding the experience of taking care of a family member who has incurable cancer. It consists of a study using a qualitative approach. Participants were five family caregivers of cancer patients with incurable disease, hospitalized in a center located in the interior of São Paulo. Data were collected in the period between October and January of 2009/2010, through interviews and the use of content analysis. The following categories were identified: Purpose of being a caregiver; Changes resulting from the role of caregiver; Environment of death; Feelings generated in the caregiver; and Support networks for the caregiver. The present study allowed greater understanding of the situation of family caregivers in their historical and sociocultural context, which is individual, relative and conditional. It was made clear that the family caregiver must be the healthcare team’s target of attention, including understanding the meaning attributed to the disease and palliative treatment for the care planning of the family unit in the final stage of life. Descriptors: Oncologic Nursing; Hospice Care; Family Nursing.
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spelling Understanding the experience of the caregiver of a family member with incurable cancerComprendiendo la experiencia del cuidador de un familiar con cáncer sin posibilidad de curaCompreendendo a experiência do cuidador de um familiar com câncer fora de possibilidade de curaOncologic NursingHospice CareFamily Nursing.Oncologic NursingHospice CareFamily Nursing.Enfermería OncológicaCuidados PaliativosEnfermería de la Familia.Enfermería OncológicaCuidados PaliativosEnfermería de la Familia.Enfermagem OncológicaCuidados PaliativosEnfermagem Familiar.Enfermagem OncológicaCuidados PaliativosEnfermagem Familiar.This study aimed at understanding the experience of taking care of a family member who has incurable cancer. It consists of a study using a qualitative approach. Participants were five family caregivers of cancer patients with incurable disease, hospitalized in a center located in the interior of São Paulo. Data were collected in the period between October and January of 2009/2010, through interviews and the use of content analysis. The following categories were identified: Purpose of being a caregiver; Changes resulting from the role of caregiver; Environment of death; Feelings generated in the caregiver; and Support networks for the caregiver. The present study allowed greater understanding of the situation of family caregivers in their historical and sociocultural context, which is individual, relative and conditional. It was made clear that the family caregiver must be the healthcare team’s target of attention, including understanding the meaning attributed to the disease and palliative treatment for the care planning of the family unit in the final stage of life. Descriptors: Oncologic Nursing; Hospice Care; Family Nursing.Se buscó comprender la experiencia de cuidado del familiar con cáncer sin posibilidad de cura. Estudio cualitativo, con cinco cuidadores familiares de pacientes oncológicos terminales, internados en un Hospital del interior de São Paulo. Datos recolectados entre octubre 2009 y enero 2010, mediante entrevistas, utilizándose análisis de contenido. Se identificaron las categorías: Motivo para ser cuidador, Cambios con el rol de cuidador, Ambiente para la muerte, Sentimientos generados en el hecho de ser cuidador y Redes de Apoyo para el cuidador. Este estudio posibilitó la comprensión de los cuidadores familiares en su contexto histórico, social y cultural; que es particular, relativo y condicional. Se observó que el cuidador familiar precisa ser objeto de atención del equipo de salud, incluyendo el significado atribuido a la enfermedad y tratamiento paliativo para la planificación de la atención de la unidad familiar en la fase final de la vida. Descriptores: Enfermería Oncológica; Cuidados Paliativos; Enfermería de la Familia.Este estudo buscou compreender a experiência do cuidar de um familiar com câncer fora de possibilidade de cura. Trata-se de estudo de abordagem qualitativa. Participaram cinco cuidadores familiares de pacientes oncológicos fora de possibilidade de cura, internados em um Hospital do interior de São Paulo. Os dados foram coletados no período de outubro a janeiro de 2009/2010, por meio de entrevistas, e utilizou-se análise de conteúdo. Identificaram-se as categorias: Motivo para ser cuidador; Mudanças com o papel de cuidador; Ambiente para morte; Sentimentos gerados no ser cuidador; e Redes de apoio para o cuidador. O presente estudo possibilitou a compreensão dos cuidadores familiares no seu contexto histórico e sociocultural que é particular, relativo e condicional. Observou-se que o cuidador familiar precisa ser alvo de atenção da equipe de saúde, incluindo o significado atribuído à doença e tratamento paliativo para o planejamento da assistência da unidade familiar na fase final da vida. Descritores: Enfermagem Oncológica; Cuidados Paliativos; Enfermagem Familiar.Faculdade de Enfermagem da UFG2012-12-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://revistas.ufg.br/fen/article/view/1417110.5216/ree.v14i4.14171Revista Eletrônica de Enfermagem; Vol. 14 No. 4 (2012); 913-21Revista Eletrônica de Enfermagem; v. 14 n. 4 (2012); 913-211518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporhttps://revistas.ufg.br/fen/article/view/14171/13356Cruzeiro, Natália FernandesPinto, Maria HelenaCesarino, Claudia BernardiPereira, Adriana Pelegrini dos Santosinfo:eu-repo/semantics/openAccess2020-08-11T00:30:34Zoai:ojs.revistas.ufg.br:article/14171Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2020-08-11T00:30:34Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false
dc.title.none.fl_str_mv Understanding the experience of the caregiver of a family member with incurable cancer
Comprendiendo la experiencia del cuidador de un familiar con cáncer sin posibilidad de cura
Compreendendo a experiência do cuidador de um familiar com câncer fora de possibilidade de cura
title Understanding the experience of the caregiver of a family member with incurable cancer
spellingShingle Understanding the experience of the caregiver of a family member with incurable cancer
Cruzeiro, Natália Fernandes
Oncologic Nursing
Hospice Care
Family Nursing.
Oncologic Nursing
Hospice Care
Family Nursing.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
title_short Understanding the experience of the caregiver of a family member with incurable cancer
title_full Understanding the experience of the caregiver of a family member with incurable cancer
title_fullStr Understanding the experience of the caregiver of a family member with incurable cancer
title_full_unstemmed Understanding the experience of the caregiver of a family member with incurable cancer
title_sort Understanding the experience of the caregiver of a family member with incurable cancer
author Cruzeiro, Natália Fernandes
author_facet Cruzeiro, Natália Fernandes
Pinto, Maria Helena
Cesarino, Claudia Bernardi
Pereira, Adriana Pelegrini dos Santos
author_role author
author2 Pinto, Maria Helena
Cesarino, Claudia Bernardi
Pereira, Adriana Pelegrini dos Santos
author2_role author
author
author
dc.contributor.author.fl_str_mv Cruzeiro, Natália Fernandes
Pinto, Maria Helena
Cesarino, Claudia Bernardi
Pereira, Adriana Pelegrini dos Santos
dc.subject.por.fl_str_mv Oncologic Nursing
Hospice Care
Family Nursing.
Oncologic Nursing
Hospice Care
Family Nursing.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
topic Oncologic Nursing
Hospice Care
Family Nursing.
Oncologic Nursing
Hospice Care
Family Nursing.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermería Oncológica
Cuidados Paliativos
Enfermería de la Familia.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
Enfermagem Oncológica
Cuidados Paliativos
Enfermagem Familiar.
description This study aimed at understanding the experience of taking care of a family member who has incurable cancer. It consists of a study using a qualitative approach. Participants were five family caregivers of cancer patients with incurable disease, hospitalized in a center located in the interior of São Paulo. Data were collected in the period between October and January of 2009/2010, through interviews and the use of content analysis. The following categories were identified: Purpose of being a caregiver; Changes resulting from the role of caregiver; Environment of death; Feelings generated in the caregiver; and Support networks for the caregiver. The present study allowed greater understanding of the situation of family caregivers in their historical and sociocultural context, which is individual, relative and conditional. It was made clear that the family caregiver must be the healthcare team’s target of attention, including understanding the meaning attributed to the disease and palliative treatment for the care planning of the family unit in the final stage of life. Descriptors: Oncologic Nursing; Hospice Care; Family Nursing.
publishDate 2012
dc.date.none.fl_str_mv 2012-12-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.ufg.br/fen/article/view/14171
10.5216/ree.v14i4.14171
url https://revistas.ufg.br/fen/article/view/14171
identifier_str_mv 10.5216/ree.v14i4.14171
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://revistas.ufg.br/fen/article/view/14171/13356
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
dc.source.none.fl_str_mv Revista Eletrônica de Enfermagem; Vol. 14 No. 4 (2012); 913-21
Revista Eletrônica de Enfermagem; v. 14 n. 4 (2012); 913-21
1518-1944
reponame:Revista Eletrônica de Enfermagem
instname:Universidade Federal de Goiás (UFG)
instacron:UFG
instname_str Universidade Federal de Goiás (UFG)
instacron_str UFG
institution UFG
reponame_str Revista Eletrônica de Enfermagem
collection Revista Eletrônica de Enfermagem
repository.name.fl_str_mv Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)
repository.mail.fl_str_mv ree.fen@ufg.br
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