Quality of life of caregivers of children with neurodevelopmental

Detalhes bibliográficos
Autor(a) principal: Reis, Gislaine Alves
Data de Publicação: 2020
Outros Autores: Zonta, Jaqueline Brosso, Camilo, Beatriz Helena Naddaf, Fumincelli, Lais, Gonçalves, Angélica Martins de Souza, Okido, Aline Cristiane Caviccholi
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Eletrônica de Enfermagem
Texto Completo: https://revistas.ufg.br/fen/article/view/59629
Resumo: Objective: To identify the health-related quality of life of caregivers of children with neurodevelopmental disorders and analyze the associated factors. Method: Observational, cross-sectional, quantitative study. A characterization instrument and The Medical Outcomes Study 36-Item Short were applied to 25 caregivers. The Mann-Whitney test and the Spearman’s correlation were used with a significance level of 5%. Among the health-related quality of life domains, vitality and bodily pain had the lowest scores. There was a significant difference between religious belief and social role functioning (p=0.046) and mental health (p=0.008) domains; and between marital status and the domains of social role functioning (p=0.029) and emotional role functioning (p=0.035). There was a negative correlation between physical functioning and the caregiver’s age. Conclusion: Caregivers of children with neurodevelopmental disorders feel tired and unwell. Religious belief, marital status and age were related factors.
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spelling Quality of life of caregivers of children with neurodevelopmentalQualidade de vida de cuidadores de crianças com transtornos do neurodesenvolvimentoChildNursingHealth-related Quality of LifeNeurodevelopmental DisordersCaregiversCriançaEnfermagemQualidade de vida relacionada à saúdeTranstornos do NeurodesenvolvimentoCuidadores Objective: To identify the health-related quality of life of caregivers of children with neurodevelopmental disorders and analyze the associated factors. Method: Observational, cross-sectional, quantitative study. A characterization instrument and The Medical Outcomes Study 36-Item Short were applied to 25 caregivers. The Mann-Whitney test and the Spearman’s correlation were used with a significance level of 5%. Among the health-related quality of life domains, vitality and bodily pain had the lowest scores. There was a significant difference between religious belief and social role functioning (p=0.046) and mental health (p=0.008) domains; and between marital status and the domains of social role functioning (p=0.029) and emotional role functioning (p=0.035). There was a negative correlation between physical functioning and the caregiver’s age. Conclusion: Caregivers of children with neurodevelopmental disorders feel tired and unwell. Religious belief, marital status and age were related factors. Objetivo: Identificar a qualidade de vida relacionada à saúde de cuidadores de crianças com transtornos do neurodesenvolvimento e analisar os fatores associados. Método: Estudo com delineamento observacional, transversal de abordagem quantitativa. Aplicado instrumento de caracterização e The Medical Outcomes Study 36-Item Short em 25 cuidadores. Utilizou-se o teste de Mann-Whitney e Correlação de Spearman, com nível de significância de 5%. Dentre os domínios da qualidade de vida relacionada à saúde, vitalidade e dor apresentaram os menores escores. Houve diferença significativa entre crença religiosa e os domínios aspectos sociais (p=0,046) e saúde mental (p=0,008) e, entre estado marital e os domínios aspectos sociais (p=0,029) e aspectos emocionais (p=0,035). Observou-se correlação negativa entre capacidade funcional e idade do cuidador. Conclusão: Cuidadores de crianças com transtornos do neurodesenvolvimento se percebem cansados e pouco dispostos. Crença religiosa, estado marital e idade se constituíram em fatores relacionados.Faculdade de Enfermagem da UFG2020-09-14info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/5962910.5216/ree.v22.59629Revista Eletrônica de Enfermagem; Vol. 22 (2020); 59629Revista Eletrônica de Enfermagem; v. 22 (2020); 596291518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/59629/35337https://revistas.ufg.br/fen/article/view/59629/35338Copyright (c) 2020 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessReis, Gislaine AlvesZonta, Jaqueline BrossoCamilo, Beatriz Helena NaddafFumincelli, LaisGonçalves, Angélica Martins de SouzaOkido, Aline Cristiane Caviccholi2023-09-01T14:59:37Zoai:ojs.revistas.ufg.br:article/59629Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2023-09-01T14:59:37Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false
dc.title.none.fl_str_mv Quality of life of caregivers of children with neurodevelopmental
Qualidade de vida de cuidadores de crianças com transtornos do neurodesenvolvimento
title Quality of life of caregivers of children with neurodevelopmental
spellingShingle Quality of life of caregivers of children with neurodevelopmental
Reis, Gislaine Alves
Child
Nursing
Health-related Quality of Life
Neurodevelopmental Disorders
Caregivers
Criança
Enfermagem
Qualidade de vida relacionada à saúde
Transtornos do Neurodesenvolvimento
Cuidadores
title_short Quality of life of caregivers of children with neurodevelopmental
title_full Quality of life of caregivers of children with neurodevelopmental
title_fullStr Quality of life of caregivers of children with neurodevelopmental
title_full_unstemmed Quality of life of caregivers of children with neurodevelopmental
title_sort Quality of life of caregivers of children with neurodevelopmental
author Reis, Gislaine Alves
author_facet Reis, Gislaine Alves
Zonta, Jaqueline Brosso
Camilo, Beatriz Helena Naddaf
Fumincelli, Lais
Gonçalves, Angélica Martins de Souza
Okido, Aline Cristiane Caviccholi
author_role author
author2 Zonta, Jaqueline Brosso
Camilo, Beatriz Helena Naddaf
Fumincelli, Lais
Gonçalves, Angélica Martins de Souza
Okido, Aline Cristiane Caviccholi
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Reis, Gislaine Alves
Zonta, Jaqueline Brosso
Camilo, Beatriz Helena Naddaf
Fumincelli, Lais
Gonçalves, Angélica Martins de Souza
Okido, Aline Cristiane Caviccholi
dc.subject.por.fl_str_mv Child
Nursing
Health-related Quality of Life
Neurodevelopmental Disorders
Caregivers
Criança
Enfermagem
Qualidade de vida relacionada à saúde
Transtornos do Neurodesenvolvimento
Cuidadores
topic Child
Nursing
Health-related Quality of Life
Neurodevelopmental Disorders
Caregivers
Criança
Enfermagem
Qualidade de vida relacionada à saúde
Transtornos do Neurodesenvolvimento
Cuidadores
description Objective: To identify the health-related quality of life of caregivers of children with neurodevelopmental disorders and analyze the associated factors. Method: Observational, cross-sectional, quantitative study. A characterization instrument and The Medical Outcomes Study 36-Item Short were applied to 25 caregivers. The Mann-Whitney test and the Spearman’s correlation were used with a significance level of 5%. Among the health-related quality of life domains, vitality and bodily pain had the lowest scores. There was a significant difference between religious belief and social role functioning (p=0.046) and mental health (p=0.008) domains; and between marital status and the domains of social role functioning (p=0.029) and emotional role functioning (p=0.035). There was a negative correlation between physical functioning and the caregiver’s age. Conclusion: Caregivers of children with neurodevelopmental disorders feel tired and unwell. Religious belief, marital status and age were related factors.
publishDate 2020
dc.date.none.fl_str_mv 2020-09-14
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.ufg.br/fen/article/view/59629
10.5216/ree.v22.59629
url https://revistas.ufg.br/fen/article/view/59629
identifier_str_mv 10.5216/ree.v22.59629
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://revistas.ufg.br/fen/article/view/59629/35337
https://revistas.ufg.br/fen/article/view/59629/35338
dc.rights.driver.fl_str_mv Copyright (c) 2020 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2020 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
dc.source.none.fl_str_mv Revista Eletrônica de Enfermagem; Vol. 22 (2020); 59629
Revista Eletrônica de Enfermagem; v. 22 (2020); 59629
1518-1944
reponame:Revista Eletrônica de Enfermagem
instname:Universidade Federal de Goiás (UFG)
instacron:UFG
instname_str Universidade Federal de Goiás (UFG)
instacron_str UFG
institution UFG
reponame_str Revista Eletrônica de Enfermagem
collection Revista Eletrônica de Enfermagem
repository.name.fl_str_mv Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)
repository.mail.fl_str_mv ree.fen@ufg.br
_version_ 1797049163763941376

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