Survivors' perspective of life after stroke

Detalhes bibliográficos
Autor(a) principal: Silva, Jaine Kareny da
Data de Publicação: 2016
Outros Autores: Vila, Vanessa da Silva Carvalho, Ribeiro, Maysa Ferreira Martins, Vandenberghe, Luc
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Eletrônica de Enfermagem
Texto Completo: https://revistas.ufg.br/fen/article/view/34620
Resumo: This aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members.
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spelling Survivors' perspective of life after strokeA vida após o acidente vascular cerebral na perspectiva dos sobreviventesStrokeRehabilitationQualitative ResearchChronic DiseasePatient-Centered CareStrokeRehabilitationQualitative ResearchChronic DiseasePatient-Centered CareAcidente Vascular CerebralReabilitaçãoPesquisa QualitativaDoença CrônicaAssistência Centrada no PacienteAcidente Vascular CerebralReabilitaçãoPesquisa QualitativaDoença CrônicaAssistência Centrada no PacienteThis aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members.Estudo de caso interpretativo desenvolvido com objetivo de compreender os significados da experiência da enfermidade na perspectiva de oito sobreviventes ao Acidente Vascular Cerebral. Os dados foram coletados por meio de entrevistas semiestruturadas, seguida de análise temática qualitativa. A experiência da enfermidade gerou sensações negativas como medo da morte, invalidez, perda de autonomia e incapacidade para o trabalho. O apoio social da família e da religião foi essencial para lidar com as mudanças na vida cotidiana na ineficiência das redes de atenção à saúde. Foi identificada a ausência de orientação, sobretudo pelos enfermeiros, para o cuidado do paciente no domicílio. Os resultados sugerem a necessidade de reforçar a educação em saúde para a valorização da sintomatologia preditora ao acidente vascular cerebral, a sensibilização do impacto que essa enfermidade representa na vida dos sobreviventes e a necessidade da equipe multiprofissional investir na proatividade dos familiares.Faculdade de Enfermagem da UFG2016-03-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/3462010.5216/ree.v18.34620Revista Eletrônica de Enfermagem; Vol. 18 (2016); e1148Revista Eletrônica de Enfermagem; v. 18 (2016); e11481518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/34620/21050https://revistas.ufg.br/fen/article/view/34620/21190Copyright (c) 2016 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSilva, Jaine Kareny daVila, Vanessa da Silva CarvalhoRibeiro, Maysa Ferreira MartinsVandenberghe, Luc2022-09-29T16:26:26Zoai:ojs.revistas.ufg.br:article/34620Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2022-09-29T16:26:26Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false
dc.title.none.fl_str_mv Survivors' perspective of life after stroke
A vida após o acidente vascular cerebral na perspectiva dos sobreviventes
title Survivors' perspective of life after stroke
spellingShingle Survivors' perspective of life after stroke
Silva, Jaine Kareny da
Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
title_short Survivors' perspective of life after stroke
title_full Survivors' perspective of life after stroke
title_fullStr Survivors' perspective of life after stroke
title_full_unstemmed Survivors' perspective of life after stroke
title_sort Survivors' perspective of life after stroke
author Silva, Jaine Kareny da
author_facet Silva, Jaine Kareny da
Vila, Vanessa da Silva Carvalho
Ribeiro, Maysa Ferreira Martins
Vandenberghe, Luc
author_role author
author2 Vila, Vanessa da Silva Carvalho
Ribeiro, Maysa Ferreira Martins
Vandenberghe, Luc
author2_role author
author
author
dc.contributor.author.fl_str_mv Silva, Jaine Kareny da
Vila, Vanessa da Silva Carvalho
Ribeiro, Maysa Ferreira Martins
Vandenberghe, Luc
dc.subject.por.fl_str_mv Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
topic Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Stroke
Rehabilitation
Qualitative Research
Chronic Disease
Patient-Centered Care
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
Acidente Vascular Cerebral
Reabilitação
Pesquisa Qualitativa
Doença Crônica
Assistência Centrada no Paciente
description This aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members.
publishDate 2016
dc.date.none.fl_str_mv 2016-03-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.ufg.br/fen/article/view/34620
10.5216/ree.v18.34620
url https://revistas.ufg.br/fen/article/view/34620
identifier_str_mv 10.5216/ree.v18.34620
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://revistas.ufg.br/fen/article/view/34620/21050
https://revistas.ufg.br/fen/article/view/34620/21190
dc.rights.driver.fl_str_mv Copyright (c) 2016 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2016 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
dc.source.none.fl_str_mv Revista Eletrônica de Enfermagem; Vol. 18 (2016); e1148
Revista Eletrônica de Enfermagem; v. 18 (2016); e1148
1518-1944
reponame:Revista Eletrônica de Enfermagem
instname:Universidade Federal de Goiás (UFG)
instacron:UFG
instname_str Universidade Federal de Goiás (UFG)
instacron_str UFG
institution UFG
reponame_str Revista Eletrônica de Enfermagem
collection Revista Eletrônica de Enfermagem
repository.name.fl_str_mv Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)
repository.mail.fl_str_mv ree.fen@ufg.br
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