Survivors' perspective of life after stroke
Autor(a) principal: | |
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Data de Publicação: | 2016 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Revista Eletrônica de Enfermagem |
Texto Completo: | https://revistas.ufg.br/fen/article/view/34620 |
Resumo: | This aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members. |
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Survivors' perspective of life after strokeA vida após o acidente vascular cerebral na perspectiva dos sobreviventesStrokeRehabilitationQualitative ResearchChronic DiseasePatient-Centered CareStrokeRehabilitationQualitative ResearchChronic DiseasePatient-Centered CareAcidente Vascular CerebralReabilitaçãoPesquisa QualitativaDoença CrônicaAssistência Centrada no PacienteAcidente Vascular CerebralReabilitaçãoPesquisa QualitativaDoença CrônicaAssistência Centrada no PacienteThis aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members.Estudo de caso interpretativo desenvolvido com objetivo de compreender os significados da experiência da enfermidade na perspectiva de oito sobreviventes ao Acidente Vascular Cerebral. Os dados foram coletados por meio de entrevistas semiestruturadas, seguida de análise temática qualitativa. A experiência da enfermidade gerou sensações negativas como medo da morte, invalidez, perda de autonomia e incapacidade para o trabalho. O apoio social da família e da religião foi essencial para lidar com as mudanças na vida cotidiana na ineficiência das redes de atenção à saúde. Foi identificada a ausência de orientação, sobretudo pelos enfermeiros, para o cuidado do paciente no domicílio. Os resultados sugerem a necessidade de reforçar a educação em saúde para a valorização da sintomatologia preditora ao acidente vascular cerebral, a sensibilização do impacto que essa enfermidade representa na vida dos sobreviventes e a necessidade da equipe multiprofissional investir na proatividade dos familiares.Faculdade de Enfermagem da UFG2016-03-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/3462010.5216/ree.v18.34620Revista Eletrônica de Enfermagem; Vol. 18 (2016); e1148Revista Eletrônica de Enfermagem; v. 18 (2016); e11481518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/34620/21050https://revistas.ufg.br/fen/article/view/34620/21190Copyright (c) 2016 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSilva, Jaine Kareny daVila, Vanessa da Silva CarvalhoRibeiro, Maysa Ferreira MartinsVandenberghe, Luc2022-09-29T16:26:26Zoai:ojs.revistas.ufg.br:article/34620Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2022-09-29T16:26:26Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false |
dc.title.none.fl_str_mv |
Survivors' perspective of life after stroke A vida após o acidente vascular cerebral na perspectiva dos sobreviventes |
title |
Survivors' perspective of life after stroke |
spellingShingle |
Survivors' perspective of life after stroke Silva, Jaine Kareny da Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente |
title_short |
Survivors' perspective of life after stroke |
title_full |
Survivors' perspective of life after stroke |
title_fullStr |
Survivors' perspective of life after stroke |
title_full_unstemmed |
Survivors' perspective of life after stroke |
title_sort |
Survivors' perspective of life after stroke |
author |
Silva, Jaine Kareny da |
author_facet |
Silva, Jaine Kareny da Vila, Vanessa da Silva Carvalho Ribeiro, Maysa Ferreira Martins Vandenberghe, Luc |
author_role |
author |
author2 |
Vila, Vanessa da Silva Carvalho Ribeiro, Maysa Ferreira Martins Vandenberghe, Luc |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Silva, Jaine Kareny da Vila, Vanessa da Silva Carvalho Ribeiro, Maysa Ferreira Martins Vandenberghe, Luc |
dc.subject.por.fl_str_mv |
Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente |
topic |
Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Stroke Rehabilitation Qualitative Research Chronic Disease Patient-Centered Care Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente Acidente Vascular Cerebral Reabilitação Pesquisa Qualitativa Doença Crônica Assistência Centrada no Paciente |
description |
This aim of this interpretive case study was to understand meanings of the experience of illness from the perspective of eight survivors of stroke. Data were collected by means of semi-structured interviews and qualitative thematic analysis. The experience of stroke generated negative feelings such as fear of death, disability, loss of autonomy and inability to work. Social support of family and religion was essential to cope with the changes in everyday life and inefficiency of the health care network experienced by the participants. Lack of guidance was identified, especially from nurses, for home care of patients. The results of the study suggest the need to strengthen health education on predictive symptoms of stroke, awareness of the impacts of this disease on the life of survivors, and the need for multidisciplinary health care teams to encourage proactivity of survivors' family members. |
publishDate |
2016 |
dc.date.none.fl_str_mv |
2016-03-31 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://revistas.ufg.br/fen/article/view/34620 10.5216/ree.v18.34620 |
url |
https://revistas.ufg.br/fen/article/view/34620 |
identifier_str_mv |
10.5216/ree.v18.34620 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://revistas.ufg.br/fen/article/view/34620/21050 https://revistas.ufg.br/fen/article/view/34620/21190 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2016 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2016 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
dc.source.none.fl_str_mv |
Revista Eletrônica de Enfermagem; Vol. 18 (2016); e1148 Revista Eletrônica de Enfermagem; v. 18 (2016); e1148 1518-1944 reponame:Revista Eletrônica de Enfermagem instname:Universidade Federal de Goiás (UFG) instacron:UFG |
instname_str |
Universidade Federal de Goiás (UFG) |
instacron_str |
UFG |
institution |
UFG |
reponame_str |
Revista Eletrônica de Enfermagem |
collection |
Revista Eletrônica de Enfermagem |
repository.name.fl_str_mv |
Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG) |
repository.mail.fl_str_mv |
ree.fen@ufg.br |
_version_ |
1797049169813176320 |