The burden of family caregiver of children with special health needs

Detalhes bibliográficos
Autor(a) principal: Rodrigues, Daniela Zuccolotto
Data de Publicação: 2018
Outros Autores: Ferreira, Fernanda Yeza, Okido, Aline Cavicchioli
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Eletrônica de Enfermagem
Texto Completo: https://revistas.ufg.br/fen/article/view/53190
Resumo: The study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care.
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spelling The burden of family caregiver of children with special health needsSobrecarga do cuidador familiar de crianças com necessidades especiais de saúdeThe study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care.O estudo objetivou identificar a sobrecarga física, emocional e social de cuidadores de crianças com necessidades especiais de saúde e analisar os fatores associados. Estudo de delineamento transversal e abordagem quantitativa. Aplicado instrumento de caracterização e Escala de Sobrecarga para Cuidadores Informais - Burden Interview. Utilizado teste Qui-quadrado, Exato de Fisher, Kruskal-Wallis e regressão logística politômica, simples e múltipla. Participaram 100 cuidadores, amaioria (57%) apresentou sobrecarga moderada a severa. Os cuidadores de crianças que demandam cuidados mistos e aqueles que não possuíam crença religiosa apresentaram maior risco para sobrecarga (p=0,005 e 0,035respectivamente). Trata-se de estudo inédito pois, inexistem investigações que mensuram quantitativamente a sobrecarga dos cuidadores de crianças com necessidades especiais de saúde, de um modo geral, não especificando diagnósticos médicos. Conclui-se que, ao reconhecer os fatores associados à sobrecarga, estratégias de cuidado com vistas a amenizar a sobrecarga podem ser implantadas e, consequentemente, qualificando o cuidado ofertado.Faculdade de Enfermagem da UFG2018-12-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/5319010.5216/ree.v20.53190Revista Eletrônica de Enfermagem; Vol. 20 (2018); v20a48Revista Eletrônica de Enfermagem; v. 20 (2018); v20a481518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/53190/33353https://revistas.ufg.br/fen/article/view/53190/33354Copyright (c) 2018 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodrigues, Daniela ZuccolottoFerreira, Fernanda YezaOkido, Aline Cavicchioli2022-05-24T19:27:38Zoai:ojs.revistas.ufg.br:article/53190Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2022-05-24T19:27:38Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false
dc.title.none.fl_str_mv The burden of family caregiver of children with special health needs
Sobrecarga do cuidador familiar de crianças com necessidades especiais de saúde
title The burden of family caregiver of children with special health needs
spellingShingle The burden of family caregiver of children with special health needs
Rodrigues, Daniela Zuccolotto
title_short The burden of family caregiver of children with special health needs
title_full The burden of family caregiver of children with special health needs
title_fullStr The burden of family caregiver of children with special health needs
title_full_unstemmed The burden of family caregiver of children with special health needs
title_sort The burden of family caregiver of children with special health needs
author Rodrigues, Daniela Zuccolotto
author_facet Rodrigues, Daniela Zuccolotto
Ferreira, Fernanda Yeza
Okido, Aline Cavicchioli
author_role author
author2 Ferreira, Fernanda Yeza
Okido, Aline Cavicchioli
author2_role author
author
dc.contributor.author.fl_str_mv Rodrigues, Daniela Zuccolotto
Ferreira, Fernanda Yeza
Okido, Aline Cavicchioli
description The study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care.
publishDate 2018
dc.date.none.fl_str_mv 2018-12-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://revistas.ufg.br/fen/article/view/53190
10.5216/ree.v20.53190
url https://revistas.ufg.br/fen/article/view/53190
identifier_str_mv 10.5216/ree.v20.53190
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://revistas.ufg.br/fen/article/view/53190/33353
https://revistas.ufg.br/fen/article/view/53190/33354
dc.rights.driver.fl_str_mv Copyright (c) 2018 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2018 Revista Eletrônica de Enfermagem
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
publisher.none.fl_str_mv Faculdade de Enfermagem da UFG
dc.source.none.fl_str_mv Revista Eletrônica de Enfermagem; Vol. 20 (2018); v20a48
Revista Eletrônica de Enfermagem; v. 20 (2018); v20a48
1518-1944
reponame:Revista Eletrônica de Enfermagem
instname:Universidade Federal de Goiás (UFG)
instacron:UFG
instname_str Universidade Federal de Goiás (UFG)
instacron_str UFG
institution UFG
reponame_str Revista Eletrônica de Enfermagem
collection Revista Eletrônica de Enfermagem
repository.name.fl_str_mv Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)
repository.mail.fl_str_mv ree.fen@ufg.br
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