The burden of family caregiver of children with special health needs
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Revista Eletrônica de Enfermagem |
Texto Completo: | https://revistas.ufg.br/fen/article/view/53190 |
Resumo: | The study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care. |
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The burden of family caregiver of children with special health needsSobrecarga do cuidador familiar de crianças com necessidades especiais de saúdeThe study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care.O estudo objetivou identificar a sobrecarga física, emocional e social de cuidadores de crianças com necessidades especiais de saúde e analisar os fatores associados. Estudo de delineamento transversal e abordagem quantitativa. Aplicado instrumento de caracterização e Escala de Sobrecarga para Cuidadores Informais - Burden Interview. Utilizado teste Qui-quadrado, Exato de Fisher, Kruskal-Wallis e regressão logística politômica, simples e múltipla. Participaram 100 cuidadores, amaioria (57%) apresentou sobrecarga moderada a severa. Os cuidadores de crianças que demandam cuidados mistos e aqueles que não possuíam crença religiosa apresentaram maior risco para sobrecarga (p=0,005 e 0,035respectivamente). Trata-se de estudo inédito pois, inexistem investigações que mensuram quantitativamente a sobrecarga dos cuidadores de crianças com necessidades especiais de saúde, de um modo geral, não especificando diagnósticos médicos. Conclui-se que, ao reconhecer os fatores associados à sobrecarga, estratégias de cuidado com vistas a amenizar a sobrecarga podem ser implantadas e, consequentemente, qualificando o cuidado ofertado.Faculdade de Enfermagem da UFG2018-12-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://revistas.ufg.br/fen/article/view/5319010.5216/ree.v20.53190Revista Eletrônica de Enfermagem; Vol. 20 (2018); v20a48Revista Eletrônica de Enfermagem; v. 20 (2018); v20a481518-1944reponame:Revista Eletrônica de Enfermageminstname:Universidade Federal de Goiás (UFG)instacron:UFGporenghttps://revistas.ufg.br/fen/article/view/53190/33353https://revistas.ufg.br/fen/article/view/53190/33354Copyright (c) 2018 Revista Eletrônica de Enfermagemhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodrigues, Daniela ZuccolottoFerreira, Fernanda YezaOkido, Aline Cavicchioli2022-05-24T19:27:38Zoai:ojs.revistas.ufg.br:article/53190Revistahttps://revistas.ufg.br/fenPUBhttps://revistas.ufg.br/fen/oairee.fen@ufg.br1518-19441518-1944opendoar:2022-05-24T19:27:38Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG)false |
dc.title.none.fl_str_mv |
The burden of family caregiver of children with special health needs Sobrecarga do cuidador familiar de crianças com necessidades especiais de saúde |
title |
The burden of family caregiver of children with special health needs |
spellingShingle |
The burden of family caregiver of children with special health needs Rodrigues, Daniela Zuccolotto |
title_short |
The burden of family caregiver of children with special health needs |
title_full |
The burden of family caregiver of children with special health needs |
title_fullStr |
The burden of family caregiver of children with special health needs |
title_full_unstemmed |
The burden of family caregiver of children with special health needs |
title_sort |
The burden of family caregiver of children with special health needs |
author |
Rodrigues, Daniela Zuccolotto |
author_facet |
Rodrigues, Daniela Zuccolotto Ferreira, Fernanda Yeza Okido, Aline Cavicchioli |
author_role |
author |
author2 |
Ferreira, Fernanda Yeza Okido, Aline Cavicchioli |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Rodrigues, Daniela Zuccolotto Ferreira, Fernanda Yeza Okido, Aline Cavicchioli |
description |
The study aimed to identify the physical, emotional and social burden of caregivers of children with special health needs and to analyze the associated factors. A cross-sectional quantitative study design. A characterization instrument and a Burden Scale for Informal Caregivers – Burden Interview were answered. The Chi-Square, Fisher’s Exact test, Kruskal-Wallis and simple and multiple logistic regressionwere calculated. One hundred caregivers participated, the majority (57%) had a moderateor severe burden. Caregivers of children requiring mixed care and those who did not have a religious belief had a higherrisk for burden (p=0.005 and 0.035 respectively). Thisis a novel study because there are no investigations quantitatively measuring the burden of caregivers of children with special health needs in general, not specifyingmedical diagnoses. In conclusion, when recognizing the factors associated to burden, care strategies to alleviate the burden can be implemented and, consequently, qualifying the offered care. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-12-31 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://revistas.ufg.br/fen/article/view/53190 10.5216/ree.v20.53190 |
url |
https://revistas.ufg.br/fen/article/view/53190 |
identifier_str_mv |
10.5216/ree.v20.53190 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://revistas.ufg.br/fen/article/view/53190/33353 https://revistas.ufg.br/fen/article/view/53190/33354 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2018 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2018 Revista Eletrônica de Enfermagem https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
publisher.none.fl_str_mv |
Faculdade de Enfermagem da UFG |
dc.source.none.fl_str_mv |
Revista Eletrônica de Enfermagem; Vol. 20 (2018); v20a48 Revista Eletrônica de Enfermagem; v. 20 (2018); v20a48 1518-1944 reponame:Revista Eletrônica de Enfermagem instname:Universidade Federal de Goiás (UFG) instacron:UFG |
instname_str |
Universidade Federal de Goiás (UFG) |
instacron_str |
UFG |
institution |
UFG |
reponame_str |
Revista Eletrônica de Enfermagem |
collection |
Revista Eletrônica de Enfermagem |
repository.name.fl_str_mv |
Revista Eletrônica de Enfermagem - Universidade Federal de Goiás (UFG) |
repository.mail.fl_str_mv |
ree.fen@ufg.br |
_version_ |
1797049171676495872 |