Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Biblioteca Digital de Teses e Dissertações da UFMA |
Texto Completo: | https://tedebc.ufma.br/jspui/handle/tede/tede/4290 |
Resumo: | Children and Adolescents with Special Health Needs (CSHCN) represent a group that demands differentiated, complex and continuous health care. They are classified according to the health care demand presented, in which the plurality of care for CSHCN after discharge is a challenge and impacts all family members. In this sense, the National Primary Care Policy recommends that primary care be viewed as the preferred gateway, responsible for organizing and coordinating the interaction between all health services. The study aimed to investigate the scientific production regarding the therapeutic itinerary of family members of CSHCN in the search for comprehensive health care. This is an integrative review carried out in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS), Medical Literature Analysis an Retrieval System on-line (MEDLINE), Nursing Database (BDENF), Web Of Science, EMBASE, SciElo and SCOPUS, in the period from January to February 2022, the structuring of the research question was guided by the PECOS strategy and inclusion criteria were applied for the selection of studies, with no limited time for publication of articles . The Integrative Review retrieved 8 articles from the databases, they were subjected to critical analysis and three points of discussion were formulated, namely: The therapeutic itinerary of family members of CSHCN in the Health Care Networks observed in the fragility of Primary Health Care, low availability of care in health services, absence of care flows in Health Care Networks; Main barriers faced by family members of CSHCN in the therapeutic itinerary represented by the lack of preparation of the health team, mainly related to the transfer of information to the family and regarding the diagnostic investigation, lack of bonds between these professionals and the families, failures in the application of the principles of SUS, lack of dialogue between the services of the different management spheres; and, the CSHCN Political Invisibility Process. This Integrative Review showed that the lack of specific care flows for this clientele is responsible for the pilgrimage of families, making access to specialized health services a challenging process, since the search for care in primary care is sometimes replaced by private services. and the course is permeated by situations that make care for CSHCN unfeasible. As soon as primary care is no longer seen as a preferential gateway, the process of political invisibility becomes even more marked. |
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PASSOS, Helder Machadohttp://lattes.cnpq.br/4590913624385216SOUSA, Santana de Maria Alves dehttp://lattes.cnpq.br/7988193043861924PASSOS, Helder Machadohttp://lattes.cnpq.br/4590913624385216SOUSA, Santana de Maria Alves dehttp://lattes.cnpq.br/7988193043861924MANGUEIRA, Suzana de Oliveirahttp://lattes.cnpq.br/2031618904050997ROLIM, Isaura Letícia Tavares Palmeirahttp://lattes.cnpq.br/8994540102582050http://lattes.cnpq.br/7564441588115243SANTOS, Adriana Torres dos2022-11-10T15:26:25Z2022-08-30SANTOS, Adriana Torres dos. Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa. 2022. 97 f. Dissertação( Programa de Pós-graduação em Enfermagem/CCBS) - Universidade Federal do Maranhão, São Luís, 2022.https://tedebc.ufma.br/jspui/handle/tede/tede/4290Children and Adolescents with Special Health Needs (CSHCN) represent a group that demands differentiated, complex and continuous health care. They are classified according to the health care demand presented, in which the plurality of care for CSHCN after discharge is a challenge and impacts all family members. In this sense, the National Primary Care Policy recommends that primary care be viewed as the preferred gateway, responsible for organizing and coordinating the interaction between all health services. The study aimed to investigate the scientific production regarding the therapeutic itinerary of family members of CSHCN in the search for comprehensive health care. This is an integrative review carried out in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS), Medical Literature Analysis an Retrieval System on-line (MEDLINE), Nursing Database (BDENF), Web Of Science, EMBASE, SciElo and SCOPUS, in the period from January to February 2022, the structuring of the research question was guided by the PECOS strategy and inclusion criteria were applied for the selection of studies, with no limited time for publication of articles . The Integrative Review retrieved 8 articles from the databases, they were subjected to critical analysis and three points of discussion were formulated, namely: The therapeutic itinerary of family members of CSHCN in the Health Care Networks observed in the fragility of Primary Health Care, low availability of care in health services, absence of care flows in Health Care Networks; Main barriers faced by family members of CSHCN in the therapeutic itinerary represented by the lack of preparation of the health team, mainly related to the transfer of information to the family and regarding the diagnostic investigation, lack of bonds between these professionals and the families, failures in the application of the principles of SUS, lack of dialogue between the services of the different management spheres; and, the CSHCN Political Invisibility Process. This Integrative Review showed that the lack of specific care flows for this clientele is responsible for the pilgrimage of families, making access to specialized health services a challenging process, since the search for care in primary care is sometimes replaced by private services. and the course is permeated by situations that make care for CSHCN unfeasible. As soon as primary care is no longer seen as a preferential gateway, the process of political invisibility becomes even more marked.As Crianças e Adolescentes com Necessidades Especiais de Saúde (CRIANES) representam um grupo que demanda cuidados de saúde diferenciados, complexos e contínuos. Elas são classificadas de acordo com a demanda de cuidado de saúde apresentada, na qual a pluralidade de cuidados para as CRIANES após a alta é um desafio e gera impactos em todos os membros da família. Nesse sentido, a Política Nacional de Atenção Básica preconiza que a atenção primária seja visualizada como porta de entrada preferencial, responsável por organizar e coordenar a interação entre todos os serviços de saúde. O estudo teve como objetivo investigar a produção científica referente ao itinerário terapêutico de familiares de CRIANES na busca da integralidade do cuidado a saúde. Trata-se de uma revisão integrativa realizada nas bases de dados: Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS), Medical Literature Analysis an Retrieval Sistem on-line (MEDLINE), Banco de Dados em Enfermagem (BDENF), Web Of Science, EMBASE, SciElo e SCOPUS, no período de janeiro e fevereiro de 2022, a estruturação da pergunta de pesquisa foi orientada pela estratégia PECOS e para a seleção dos estudos foram aplicados critérios de inclusão, não sendo limitado tempo de publicação dos artigos. A Revisão Integrativa recuperou 8 artigos das bases de dados, os mesmos foram submetidos a análise crítica e formulado três pontos de discussão, a saber: O itinerário terapêutico de familiares de CRIANES na Redes de Atenção à Saúde observado na fragilidade da Atenção Primária à Saúde, baixa disponibilidade de atendimentos nos serviços de saúde, ausência de fluxos de cuidados na Rede de Atenção à Saúde; Principais barreiras enfrentadas por familiares de CRIANES no itinerário terapêutico representado pelo déficit de preparo da equipe de saúde, principalmente relacionado ao repasse de informações a família e quanto a investigação diagnóstica, ausência de vínculos entre esses profissionais e as famílias, falhas na aplicação dos princípios do SUS, carência de diálogo entre os serviços das diversas esferas gestoras; e, o Processo de invisibilidade política das CRIANES. Esta Revisão Integrativa mostrou que a carência de fluxos de atendimentos específicos para essa clientela é responsável pela peregrinação das famílias, tornando o acesso ao serviço de saúde especializado um processo desafiador, visto que a busca por atendimento na atenção primária por vezes é substituída por serviços privados de saúde e o percurso é permeado por situações que inviabilizam o atendimento para as CRIANES. Tão logo, a atenção básica deixa de ser visualizada como porta de entrada preferencial torna o processo de invisibilidade política ainda mais marcante.Submitted by Maria Aparecida (cidazen@gmail.com) on 2022-11-10T15:26:25Z No. of bitstreams: 1 ADRIANA TORRES DOS SANTOS vec.pdf: 30445447 bytes, checksum: 824cd223c5616d96db9fb5bee03093db (MD5)Made available in DSpace on 2022-11-10T15:26:25Z (GMT). No. of bitstreams: 1 ADRIANA TORRES DOS SANTOS vec.pdf: 30445447 bytes, checksum: 824cd223c5616d96db9fb5bee03093db (MD5) Previous issue date: 2022-08-30CAPESapplication/pdfporUniversidade Federal do MaranhãoPROGRAMA DE PÓS-GRADUAÇÃO EM ENFERMAGEM/CCBSUFMABrasilDEPARTAMENTO DE FILOSOFIA/CCHCrianças com deficiência;Família;Itinerário terapêutico;Acesso aos serviços de saúdeChildren with disabilities;Family;Therapeutic itinerary;Access to health servicesEnfermagem de Saúde PúblicaItinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativaTherapeutic Itinerary for Families ff Children and Adolescents With Special Health Needs: Integrative reviewinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UFMAinstname:Universidade Federal do Maranhão (UFMA)instacron:UFMAORIGINALADRIANA TORRES DOS SANTOS vec.pdfADRIANA TORRES DOS SANTOS vec.pdfapplication/pdf30445447http://tedebc.ufma.br:8080/bitstream/tede/4290/2/ADRIANA+TORRES+DOS+SANTOS+vec.pdf824cd223c5616d96db9fb5bee03093dbMD52LICENSElicense.txtlicense.txttext/plain; charset=utf-82255http://tedebc.ufma.br:8080/bitstream/tede/4290/1/license.txt97eeade1fce43278e63fe063657f8083MD51tede/42902022-11-10 12:54:58.277oai:tede2:tede/4290IExJQ0VOw4dBIERFIERJU1RSSUJVScOHw4NPIE7Dg08tRVhDTFVTSVZBCgpDb20gYSBhcHJlc2VudGHDp8OjbyBkZXN0YSBsaWNlbsOnYSxvIGF1dG9yIChlcykgb3UgbyB0aXR1bGFyIGRvcyBkaXJlaXRvcyBkZSBhdXRvciBjb25jZWRlIMOgIFVuaXZlcnNpZGFkZSBGZWRlcmFsIGRvIE1hcmFuaMOjbyAoVUZNQSkgbyBkaXJlaXRvIG7Do28tZXhjbHVzaXZvIGRlIHJlcHJvZHV6aXIsIHRyYWR1emlyIChjb25mb3JtZSBkZWZpbmlkbyBhYmFpeG8pLCBlL291IGRpc3RyaWJ1aXIgYSBzdWEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvIChpbmNsdWluZG8gbyByZXN1bW8pIHBvciB0b2RvIG8gbXVuZG8gbm8gZm9ybWF0byBpbXByZXNzbyBlIGVsZXRyw7RuaWNvIGUgZW0gcXVhbHF1ZXIgbWVpbywgaW5jbHVpbmRvIG9zIGZvcm1hdG9zIMOhdWRpbyBvdSB2w61kZW8uCgpWb2PDqiBjb25jb3JkYSBxdWUgYSBVRk1BIHBvZGUsIHNlbSBhbHRlcmFyIG8gY29udGXDumRvLCB0cmFuc3BvciBhIHN1YSB0ZXNlIG91IGRpc3NlcnRhw6fDo28gcGFyYSBxdWFscXVlciBtZWlvIG91IGZvcm1hdG8gcGFyYSBmaW5zIGRlIHByZXNlcnZhw6fDo28uCgpWb2PDqiB0YW1iw6ltIGNvbmNvcmRhIHF1ZSBhIFVGTUEgcG9kZSBtYW50ZXIgbWFpcyBkZSB1bWEgY8OzcGlhIGRlIHN1YSB0ZXNlIG91IGRpc3NlcnRhw6fDo28gcGFyYSBmaW5zIGRlIHNlZ3VyYW7Dp2EsIGJhY2stdXAgZSBwcmVzZXJ2YcOnw6NvLgoKVm9jw6ogZGVjbGFyYSBxdWUgYSBzdWEgdGVzZSBvdSBkaXNzZXJ0YcOnw6NvIMOpIG9yaWdpbmFsIGUgcXVlIHZvY8OqIHRlbSBvIHBvZGVyIGRlIGNvbmNlZGVyIG9zIGRpcmVpdG9zIGNvbnRpZG9zIG5lc3RhIGxpY2Vuw6dhLiBWb2PDqiB0YW1iw6ltIGRlY2xhcmEgcXVlIG8gZGVww7NzaXRvIGRhIHN1YSB0ZXNlIG91IGRpc3NlcnRhw6fDo28gbsOjbywgcXVlIHNlamEgZGUgc2V1IGNvbmhlY2ltZW50bywgaW5mcmluZ2UgZGlyZWl0b3MgYXV0b3JhaXMgZGUgbmluZ3XDqW0uCgpDYXNvIGEgc3VhIHRlc2Ugb3UgZGlzc2VydGHDp8OjbyBjb250ZW5oYSBtYXRlcmlhbCBxdWUgdm9jw6ogbsOjbyBwb3NzdWkgYSB0aXR1bGFyaWRhZGUgZG9zIGRpcmVpdG9zIGF1dG9yYWlzLCB2b2PDqiBkZWNsYXJhIHF1ZSBvYnRldmUgYSBwZXJtaXNzw6NvIGlycmVzdHJpdGEgZG8gZGV0ZW50b3IgZG9zIGRpcmVpdG9zIGF1dG9yYWlzIHBhcmEgY29uY2VkZXIgw6AgVUZNQSBvcyBkaXJlaXRvcyBhcHJlc2VudGFkb3MgbmVzdGEgbGljZW7Dp2EsIGUgcXVlIGVzc2UgbWF0ZXJpYWwgZGUgcHJvcHJpZWRhZGUgZGUgdGVyY2Vpcm9zIGVzdMOhIGNsYXJhbWVudGUgaWRlbnRpZmljYWRvIGUgcmVjb25oZWNpZG8gbm8gdGV4dG8gb3Ugbm8gY29udGXDumRvIGRhIHRlc2Ugb3UgZGlzc2VydGHDp8OjbyBvcmEgZGVwb3NpdGFkYS4KCkNBU08gQSBURVNFIE9VIERJU1NFUlRBw4fDg08gT1JBIERFUE9TSVRBREEgVEVOSEEgU0lETyBSRVNVTFRBRE8gREUgVU0gUEFUUk9Dw41OSU8gT1UgQVBPSU8gREUgVU1BIEFHw4pOQ0lBIERFIEZPTUVOVE8gT1UgT1VUUk8gT1JHQU5JU01PIFFVRSBOw4NPIFNFSkEgQSBVRk1BLCBWT0PDiiBERUNMQVJBIFFVRSBSRVNQRUlUT1UgVE9ET1MgRSBRVUFJU1FVRVIgRElSRUlUT1MgREUgUkVWSVPDg08gQ09NTyBUQU1Cw4lNIEFTIERFTUFJUyBPQlJJR0HDh8OVRVMgRVhJR0lEQVMgUE9SIENPTlRSQVRPIE9VIEFDT1JETy4KCkEgVUZNQSBzZSBjb21wcm9tZXRlIGEgaWRlbnRpZmljYXIgY2xhcmFtZW50ZSBvIHNldSBub21lIG91IG8ocykgbm9tZShzKSBkbyhzKSBkZXRlbnRvcihlcykgZG9zIGRpcmVpdG9zIGF1dG9yYWlzIGRhIHRlc2Ugb3UgZGlzc2VydGHDp8OjbywgZSBuw6NvIGZhcsOhIHF1YWxxdWVyIGFsdGVyYcOnw6NvLCBhbMOpbSBkYXF1ZWxhcyBjb25jZWRpZGFzIHBvciBlc3RhIGxpY2Vuw6dhLgoKRGVjbGFyYSB0YW1iw6ltIHF1ZSB0b2RhcyBhcyBhZmlsaWHDp8O1ZXMgY29ycG9yYXRpdmFzIG91IGluc3RpdHVjaW9uYWlzIGUgdG9kYXMgYXMgZm9udGVzIGRlIGFwb2lvIGZpbmFuY2Vpcm8gYW8gdHJhYmFsaG8gZXN0w6NvIGRldmlkYW1lbnRlIGNpdGFkYXMgb3UgbWVuY2lvbmFkYXMgZSBjZXJ0aWZpY2EgcXVlIG7Do28gaMOhIG5lbmh1bSBpbnRlcmVzc2UgY29tZXJjaWFsIG91IGFzc29jaWF0aXZvIHF1ZSByZXByZXNlbnRlIGNvbmZsaXRvIGRlIGludGVyZXNzZSBlbSBjb25leMOjbyBjb20gbyB0cmFiYWxobyBzdWJtZXRpZG8uCgoKCgoKCgo=Biblioteca Digital de Teses e Dissertaçõeshttps://tedebc.ufma.br/jspui/PUBhttp://tedebc.ufma.br:8080/oai/requestrepositorio@ufma.br||repositorio@ufma.bropendoar:21312022-11-10T15:54:58Biblioteca Digital de Teses e Dissertações da UFMA - Universidade Federal do Maranhão (UFMA)false |
dc.title.por.fl_str_mv |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
dc.title.alternative.eng.fl_str_mv |
Therapeutic Itinerary for Families ff Children and Adolescents With Special Health Needs: Integrative review |
title |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
spellingShingle |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa SANTOS, Adriana Torres dos Crianças com deficiência; Família; Itinerário terapêutico; Acesso aos serviços de saúde Children with disabilities; Family; Therapeutic itinerary; Access to health services Enfermagem de Saúde Pública |
title_short |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
title_full |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
title_fullStr |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
title_full_unstemmed |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
title_sort |
Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa |
author |
SANTOS, Adriana Torres dos |
author_facet |
SANTOS, Adriana Torres dos |
author_role |
author |
dc.contributor.advisor1.fl_str_mv |
PASSOS, Helder Machado |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/4590913624385216 |
dc.contributor.advisor-co1.fl_str_mv |
SOUSA, Santana de Maria Alves de |
dc.contributor.advisor-co1Lattes.fl_str_mv |
http://lattes.cnpq.br/7988193043861924 |
dc.contributor.referee1.fl_str_mv |
PASSOS, Helder Machado |
dc.contributor.referee1Lattes.fl_str_mv |
http://lattes.cnpq.br/4590913624385216 |
dc.contributor.referee2.fl_str_mv |
SOUSA, Santana de Maria Alves de |
dc.contributor.referee2Lattes.fl_str_mv |
http://lattes.cnpq.br/7988193043861924 |
dc.contributor.referee3.fl_str_mv |
MANGUEIRA, Suzana de Oliveira |
dc.contributor.referee3Lattes.fl_str_mv |
http://lattes.cnpq.br/2031618904050997 |
dc.contributor.referee4.fl_str_mv |
ROLIM, Isaura Letícia Tavares Palmeira |
dc.contributor.referee4Lattes.fl_str_mv |
http://lattes.cnpq.br/8994540102582050 |
dc.contributor.authorLattes.fl_str_mv |
http://lattes.cnpq.br/7564441588115243 |
dc.contributor.author.fl_str_mv |
SANTOS, Adriana Torres dos |
contributor_str_mv |
PASSOS, Helder Machado SOUSA, Santana de Maria Alves de PASSOS, Helder Machado SOUSA, Santana de Maria Alves de MANGUEIRA, Suzana de Oliveira ROLIM, Isaura Letícia Tavares Palmeira |
dc.subject.por.fl_str_mv |
Crianças com deficiência; Família; Itinerário terapêutico; Acesso aos serviços de saúde |
topic |
Crianças com deficiência; Família; Itinerário terapêutico; Acesso aos serviços de saúde Children with disabilities; Family; Therapeutic itinerary; Access to health services Enfermagem de Saúde Pública |
dc.subject.eng.fl_str_mv |
Children with disabilities; Family; Therapeutic itinerary; Access to health services |
dc.subject.cnpq.fl_str_mv |
Enfermagem de Saúde Pública |
description |
Children and Adolescents with Special Health Needs (CSHCN) represent a group that demands differentiated, complex and continuous health care. They are classified according to the health care demand presented, in which the plurality of care for CSHCN after discharge is a challenge and impacts all family members. In this sense, the National Primary Care Policy recommends that primary care be viewed as the preferred gateway, responsible for organizing and coordinating the interaction between all health services. The study aimed to investigate the scientific production regarding the therapeutic itinerary of family members of CSHCN in the search for comprehensive health care. This is an integrative review carried out in the following databases: Latin American and Caribbean Literature on Health Sciences (LILACS), Medical Literature Analysis an Retrieval System on-line (MEDLINE), Nursing Database (BDENF), Web Of Science, EMBASE, SciElo and SCOPUS, in the period from January to February 2022, the structuring of the research question was guided by the PECOS strategy and inclusion criteria were applied for the selection of studies, with no limited time for publication of articles . The Integrative Review retrieved 8 articles from the databases, they were subjected to critical analysis and three points of discussion were formulated, namely: The therapeutic itinerary of family members of CSHCN in the Health Care Networks observed in the fragility of Primary Health Care, low availability of care in health services, absence of care flows in Health Care Networks; Main barriers faced by family members of CSHCN in the therapeutic itinerary represented by the lack of preparation of the health team, mainly related to the transfer of information to the family and regarding the diagnostic investigation, lack of bonds between these professionals and the families, failures in the application of the principles of SUS, lack of dialogue between the services of the different management spheres; and, the CSHCN Political Invisibility Process. This Integrative Review showed that the lack of specific care flows for this clientele is responsible for the pilgrimage of families, making access to specialized health services a challenging process, since the search for care in primary care is sometimes replaced by private services. and the course is permeated by situations that make care for CSHCN unfeasible. As soon as primary care is no longer seen as a preferential gateway, the process of political invisibility becomes even more marked. |
publishDate |
2022 |
dc.date.accessioned.fl_str_mv |
2022-11-10T15:26:25Z |
dc.date.issued.fl_str_mv |
2022-08-30 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
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masterThesis |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
SANTOS, Adriana Torres dos. Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa. 2022. 97 f. Dissertação( Programa de Pós-graduação em Enfermagem/CCBS) - Universidade Federal do Maranhão, São Luís, 2022. |
dc.identifier.uri.fl_str_mv |
https://tedebc.ufma.br/jspui/handle/tede/tede/4290 |
identifier_str_mv |
SANTOS, Adriana Torres dos. Itinerário Terapêutico de familiares de Crianças e Adolescentes com Necessidades Especiais de Saúde: Revisão integrativa. 2022. 97 f. Dissertação( Programa de Pós-graduação em Enfermagem/CCBS) - Universidade Federal do Maranhão, São Luís, 2022. |
url |
https://tedebc.ufma.br/jspui/handle/tede/tede/4290 |
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por |
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por |
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openAccess |
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Universidade Federal do Maranhão |
dc.publisher.program.fl_str_mv |
PROGRAMA DE PÓS-GRADUAÇÃO EM ENFERMAGEM/CCBS |
dc.publisher.initials.fl_str_mv |
UFMA |
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Brasil |
dc.publisher.department.fl_str_mv |
DEPARTAMENTO DE FILOSOFIA/CCH |
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Universidade Federal do Maranhão |
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