Social networks and social support for people dealing with chronic renal disease
Autor(a) principal: | |
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Data de Publicação: | 2009 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Reme (Online) |
Texto Completo: | https://periodicos.ufmg.br/index.php/reme/article/view/50540 |
Resumo: | Chronic renal disease is an incurable condition that has a progressive evolution and causes physical, psychological, social and economical problems to the patient. It is important that both patients and family learn how to deal with symptoms and disability, get used to the hospital and to the treatment procedures and establish a comfortable relationship with the health team. This study aims to recognize the social networks that help patients with chronic renal disease. It is a qualitative research based on the Ecological Theory of Bronfenbrenner. It was carried out between 2004 and 2005 in a Nefrology Unit from a medium size hospital in a city from Rio Grande do Sul. Three relatives answered a semi-structured interview and three patients with one respective relative elaborated the ecomap and the genogram of the family. Results point to family difficulties in dealing with renal disease and show that relatives, neighbors and friends are the main social support source for these patients. Spirituality was also seen as a support source and the hemodialysis service was referred as a strong bond. |
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Social networks and social support for people dealing with chronic renal diseaseRedes de apoyo para enfrentar la enfermedad renal crónicaAs redes de apoio no enfrentamento da doença renal crônicaEnfermedad CrónicaEnfermeríaApoyo SocialInsuficiencia Renal CrónicaDoença CrônicaEnfermagemApoio SocialInsuficiência Renal CrônicaChronic DiseaseNursingSocial SupportRenal Insufficiency ChronicChronic renal disease is an incurable condition that has a progressive evolution and causes physical, psychological, social and economical problems to the patient. It is important that both patients and family learn how to deal with symptoms and disability, get used to the hospital and to the treatment procedures and establish a comfortable relationship with the health team. This study aims to recognize the social networks that help patients with chronic renal disease. It is a qualitative research based on the Ecological Theory of Bronfenbrenner. It was carried out between 2004 and 2005 in a Nefrology Unit from a medium size hospital in a city from Rio Grande do Sul. Three relatives answered a semi-structured interview and three patients with one respective relative elaborated the ecomap and the genogram of the family. Results point to family difficulties in dealing with renal disease and show that relatives, neighbors and friends are the main social support source for these patients. Spirituality was also seen as a support source and the hemodialysis service was referred as a strong bond.La enfermedad renal, considerada como incurable y de evolución progresiva, le causa problemas físicos, psicológicos, sociales y económicos a su portador. Además, requiere que el paciente y su familia aprendan a manejar los síntomas y la incapacidad, se adapten a los hospitales y a los procedimientos para su tratamiento y que establezcan y mantengan relaciones armoniosas con el equipo de salud. El objetivo del presente estudio fue conocer la red de apoyo utilizada por el cliente y su familia para enfrentar la enfermedad renal crónica. Se trata de una investigación cualitativa basada en el referente de la Teoría Ecológica de Bronfenbrenner, desarrollada en la Unidad de Nefrología de un hospital mediano de una ciudad al sur de Rio Grande do Sul en el período de 2004 a 2005. En el estudio participaron tres familiares que respondieron a una entrevista semiestructurada y tres usuarios que elaboraron con su respectivo familiar el ecomapa y el genograma de la familia. Los resultados señalan las dificultades de los familiares para enfrentar la enfermedad renal y que la red de apoyo de los clientes y sus familias está formada por otros miembros de la familia, vecinos y amigos. Otras fuentes de apoyo citadas fueron la espiritualidad y el servicio de hemodiálisis, al cual todos los usuarios y familiares mencionaron como vínculo muy fuerte.A doença renal é considerada incurável e de evolução progressiva, causando ao portador problemas físicos, psicológicos, sociais e econômicos, daí a necessidade de que o cliente e sua família aprendam a lidar com os sintomas e incapacidade, adaptem-se ao ambiente hospitalar e aos procedimentos para tratamento, bem como estabeleçam e mantenham relações harmoniosas com a equipe de saúde. O objetivo com este estudo foi conhecer a rede apoiadora utilizada pelo cliente e sua família no enfrentamento da doença renal crônica. Trata-se de uma pesquisa de caráter qualitativo, apoiado no referencial da Teoria Ecológica de Bronfenbrenner, desenvolvida na Unidade de Nefrologia de um hospital de médio porte em uma cidade do sul do Rio Grande do Sul, no período de 2004 a 2005. Participaram do estudo três familiares, que responderam a uma entrevista semiestruturada, e três usuários, que elaboraram, junto com seu respectivo familiar, o ecomapa e o genograma da família. Os resultados apontam as dificuldades apresentadas pelos familiares no enfrentamento da doença renal e mostram que a rede apoiadora dos clientes e das famílias é composta por demais familiares, vizinhos e amigos. Outra fonte de apoio relatada foi a espiritualidade que auxilia a enfrentar a doença, juntamente com o serviço de hemodiálise, ao qual todos os usuários e familiares se referiram como vínculo forte.Universidade Federal de Minas Gerais2009-06-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/plainapplication/pdfhttps://periodicos.ufmg.br/index.php/reme/article/view/50540REME-Revista Mineira de Enfermagem; Vol. 13 No. 2 (2009)REME-Revista Mineira de Enfermagem; Vol. 13 Núm. 2 (2009)REME-Revista Mineira de Enfermagem; v. 13 n. 2 (2009)2316-93891415-2762reponame:Reme (Online)instname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGporhttps://periodicos.ufmg.br/index.php/reme/article/view/50540/42255https://periodicos.ufmg.br/index.php/reme/article/view/50540/42256Copyright (c) 2009 Reme: Revista Mineira de Enfermageminfo:eu-repo/semantics/openAccessSchwartz, EdaMuniz, Rosani ManfrinBurille, AndréiaZillmer, Juliana Graciela VestenaSilva, Danubia Andressa daFeijó, Aline MachadoBueno, Maria Emília Nunes2024-01-24T17:48:02Zoai:periodicos.ufmg.br:article/50540Revistaremeufmg@gmail.comPUBhttps://periodicos.ufmg.br/index.php/reme/oairemeufmg@gmail.com2316-93891415-2762opendoar:2024-01-24T17:48:02Reme (Online) - Universidade Federal de Minas Gerais (UFMG)false |
dc.title.none.fl_str_mv |
Social networks and social support for people dealing with chronic renal disease Redes de apoyo para enfrentar la enfermedad renal crónica As redes de apoio no enfrentamento da doença renal crônica |
title |
Social networks and social support for people dealing with chronic renal disease |
spellingShingle |
Social networks and social support for people dealing with chronic renal disease Schwartz, Eda Enfermedad Crónica Enfermería Apoyo Social Insuficiencia Renal Crónica Doença Crônica Enfermagem Apoio Social Insuficiência Renal Crônica Chronic Disease Nursing Social Support Renal Insufficiency Chronic |
title_short |
Social networks and social support for people dealing with chronic renal disease |
title_full |
Social networks and social support for people dealing with chronic renal disease |
title_fullStr |
Social networks and social support for people dealing with chronic renal disease |
title_full_unstemmed |
Social networks and social support for people dealing with chronic renal disease |
title_sort |
Social networks and social support for people dealing with chronic renal disease |
author |
Schwartz, Eda |
author_facet |
Schwartz, Eda Muniz, Rosani Manfrin Burille, Andréia Zillmer, Juliana Graciela Vestena Silva, Danubia Andressa da Feijó, Aline Machado Bueno, Maria Emília Nunes |
author_role |
author |
author2 |
Muniz, Rosani Manfrin Burille, Andréia Zillmer, Juliana Graciela Vestena Silva, Danubia Andressa da Feijó, Aline Machado Bueno, Maria Emília Nunes |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Schwartz, Eda Muniz, Rosani Manfrin Burille, Andréia Zillmer, Juliana Graciela Vestena Silva, Danubia Andressa da Feijó, Aline Machado Bueno, Maria Emília Nunes |
dc.subject.por.fl_str_mv |
Enfermedad Crónica Enfermería Apoyo Social Insuficiencia Renal Crónica Doença Crônica Enfermagem Apoio Social Insuficiência Renal Crônica Chronic Disease Nursing Social Support Renal Insufficiency Chronic |
topic |
Enfermedad Crónica Enfermería Apoyo Social Insuficiencia Renal Crónica Doença Crônica Enfermagem Apoio Social Insuficiência Renal Crônica Chronic Disease Nursing Social Support Renal Insufficiency Chronic |
description |
Chronic renal disease is an incurable condition that has a progressive evolution and causes physical, psychological, social and economical problems to the patient. It is important that both patients and family learn how to deal with symptoms and disability, get used to the hospital and to the treatment procedures and establish a comfortable relationship with the health team. This study aims to recognize the social networks that help patients with chronic renal disease. It is a qualitative research based on the Ecological Theory of Bronfenbrenner. It was carried out between 2004 and 2005 in a Nefrology Unit from a medium size hospital in a city from Rio Grande do Sul. Three relatives answered a semi-structured interview and three patients with one respective relative elaborated the ecomap and the genogram of the family. Results point to family difficulties in dealing with renal disease and show that relatives, neighbors and friends are the main social support source for these patients. Spirituality was also seen as a support source and the hemodialysis service was referred as a strong bond. |
publishDate |
2009 |
dc.date.none.fl_str_mv |
2009-06-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.ufmg.br/index.php/reme/article/view/50540 |
url |
https://periodicos.ufmg.br/index.php/reme/article/view/50540 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.ufmg.br/index.php/reme/article/view/50540/42255 https://periodicos.ufmg.br/index.php/reme/article/view/50540/42256 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2009 Reme: Revista Mineira de Enfermagem info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2009 Reme: Revista Mineira de Enfermagem |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/plain application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
dc.source.none.fl_str_mv |
REME-Revista Mineira de Enfermagem; Vol. 13 No. 2 (2009) REME-Revista Mineira de Enfermagem; Vol. 13 Núm. 2 (2009) REME-Revista Mineira de Enfermagem; v. 13 n. 2 (2009) 2316-9389 1415-2762 reponame:Reme (Online) instname:Universidade Federal de Minas Gerais (UFMG) instacron:UFMG |
instname_str |
Universidade Federal de Minas Gerais (UFMG) |
instacron_str |
UFMG |
institution |
UFMG |
reponame_str |
Reme (Online) |
collection |
Reme (Online) |
repository.name.fl_str_mv |
Reme (Online) - Universidade Federal de Minas Gerais (UFMG) |
repository.mail.fl_str_mv |
remeufmg@gmail.com |
_version_ |
1797041908926644224 |