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2023-05-08T20:27:31Z2023-05-08T20:27:31Z2019234e201909https://doi.org/10.1590/2177-9465-EAN-2019-00222177-9465http://hdl.handle.net/1843/52939https://orcid.org/0000-0003-2413-5973http://orcid.org/0000-0002-0971-1701Objetivos: Compreender os significados de ter um filho com a Síndrome Congênita do Zika vírus na experiência de mulheres e, a partir disso, o que elas diriam a outras que se encontrem na mesma situação. Método: Estudo qualitativo e interpretativo, fundamentado no Modelo de Resiliência, Estresse, Ajustamento e Adaptação Familiar proposto por McCubbin e McCubbin. Participaram da pesquisa 40 mães de diferentes cidades do estado da Paraíba. Resultados: Os significados encontrados foram classificados em três categorias temáticas: a força divina que transforma a vida das mães; paciência e amor, sentimentos em dobro como fonte de superação; e o sentido da força das mães para além da doença. Conclusão e implicação para a prática: Cuidar de um filho com diagnóstico da Síndrome Congênita do Zika vírus tem envolvido aspectos emocionais, sociais, espirituais e econômicos, além de um processo de transformação e sofrimento. As experiências poderão colaborar com a qualificação da assistência em saúde dos profissionais que lidam diretamente com essas mães, e possivelmente favorecer o enfrentamento e a adaptação delas e de suas famílias e das novas famílias que poderão vir a ter filhos com a síndromeObjectives: To understand the meanings of having a child with the Congenital Zika virus Syndrome in the experience of women and, from this, what they would say to others who find themselves in the same situation. Method: Qualitative and interpretive study, based on the Model of Resilience, Stress, Adjustment and Family Adaptation proposed by McCubbin and McCubbin. 40 mothers from different cities in the state of Paraiba took part in the study. Results: The meanings found were classified in three thematic categories: the divine force that transforms life of the mothers; patience and love, double feelings as a source of overcoming; and the sense of mother’s strength beyond the disease. Conclusion and implication for practice: Caring for a child diagnosed with Congenital Zika virus Syndrome has involved emotional, social, spiritual and economic aspects, as well as a transformation and suffering process. The experiences may contribute to the qualification of healthcare professionals who deal directly with these mothers, and possibly, favor the confrontation and adaptation of them and their families and of the new families that may come to have children with the syndrome.porUniversidade Federal de Minas GeraisUFMGBrasilENF - DEPARTAMENTO DE ENFERMAGEM MATERNO INFANTIL E SAÚDE PÚBLICAENFERMAGEM - ESCOLA DE ENFERMAGEMMED - DEPARTAMENTO DE GINECOLOGIA OBSTETRÍCIAMEDICINA - FACULDADE DE MEDICINAEscola Anna NeryGravidezZika vírusEpidemiasMicrocefaliaCriançaGravidezZika vírusEpidemiasMicrocefaliaCriançaFilho especial, mãe especial: o sentido da força de mães de crianças com a síndrome congênita do zika vírusSpecial child, special mother: the sense of strength in mothers of children with congenital zika virus syndromeHijo especial, madre especial: el sentido de la fuerza de madres de niños con el síndrome congenido del zika virusinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttps://www.scielo.br/j/ean/a/WhWbMDmyCKZ7rmpMx8X4Dvh/?lang=enGraziela Brito Neves Zboralski HamadKleyde Ventura de Souzaapplication/pdfinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMGinstname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGLICENSELicense.txtLicense.txttext/plain; charset=utf-82042https://repositorio.ufmg.br/bitstream/1843/52939/1/License.txtfa505098d172de0bc8864fc1287ffe22MD51ORIGINALFilho especial, mãe especial_ o sentido da força de mães de crianças com a síndrome congênita do zika vírus.pdfFilho especial, mãe especial_ o sentido da força de mães de crianças com a síndrome congênita do zika vírus.pdfapplication/pdf260915https://repositorio.ufmg.br/bitstream/1843/52939/2/Filho%20especial%2c%20m%c3%a3e%20especial_%20o%20sentido%20da%20for%c3%a7a%20de%20m%c3%a3es%20de%20%20crian%c3%a7as%20com%20a%20s%c3%adndrome%20cong%c3%aanita%20do%20zika%20v%c3%adrus.pdfe956da810f9a5c31e2706702a9f788efMD521843/529392023-05-08 17:27:31.555oai:repositorio.ufmg.br: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Repositório InstitucionalPUBhttps://repositorio.ufmg.br/oaiopendoar:2023-05-08T20:27:31Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG)false
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