Avaliação da qualidade de vida de pacientes com doença falciforme
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFMG |
Texto Completo: | http://dx.doi.org/10.5935/2238-3182.20200013 http://hdl.handle.net/1843/51091 |
Resumo: | Introduction: sickle cell disease (SCD) comprises a group of hereditary hemolytic anemias whose main characteristic is the presence of the hemoglobin S (Hb S) gene that can be combined with other hereditary blood abnormalities. The clinical picture ranges from almost asymptomatic to severe forms. Hydroxyurea (HU) is the most successful therapy. It is a chronic disease whose prevalence and morbidity are high in Brazil, thus quality of life (QoL) emerges as an important challenge for patients, family members and health professionals. Objectives: This study aimed to evaluate the QoL of patients with SCD, their sociodemographic and clinical characteristics. Methods: Data were collected through the abbreviated QoL questionnaire (WHOQOL-Bref), sociodemographic questionnaire and clinical chart. Results: It has interviewed at the Hemominas Foundation in Divinópolis - MG, 39 patients aged 18-54. Most of the patients were male (56%), homozygous for Hb S (80%), unmarried (67%), completed high school (31%) and non HU users (61%). Among the patients evaluated, 53.8% considered having a good QoL (mean score 74.2 ± 20.3). The overall QoL score was 71.5. The physical and environmental domains had the lowest mean scores (61.5 and 59.0, respectively). No significant differences were found among those using or not using HU. Conclusions: Patients with SCD presented good QoL, being more affected by aspects related to the environmental domain (such as financial resources) and physical (such as pain and discomfort) those correlate with clinical and social characteristics related to SCD. |
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Avaliação da qualidade de vida de pacientes com doença falciformeEvaluation of the quality of life of patients with sickle cell diseaseQualidade de vidaHemoglobina falciformeAnemiaInquéritos e questionáriosHematologiaHemoglobina falciformeAnemiaQualidade de vidaIntroduction: sickle cell disease (SCD) comprises a group of hereditary hemolytic anemias whose main characteristic is the presence of the hemoglobin S (Hb S) gene that can be combined with other hereditary blood abnormalities. The clinical picture ranges from almost asymptomatic to severe forms. Hydroxyurea (HU) is the most successful therapy. It is a chronic disease whose prevalence and morbidity are high in Brazil, thus quality of life (QoL) emerges as an important challenge for patients, family members and health professionals. Objectives: This study aimed to evaluate the QoL of patients with SCD, their sociodemographic and clinical characteristics. Methods: Data were collected through the abbreviated QoL questionnaire (WHOQOL-Bref), sociodemographic questionnaire and clinical chart. Results: It has interviewed at the Hemominas Foundation in Divinópolis - MG, 39 patients aged 18-54. Most of the patients were male (56%), homozygous for Hb S (80%), unmarried (67%), completed high school (31%) and non HU users (61%). Among the patients evaluated, 53.8% considered having a good QoL (mean score 74.2 ± 20.3). The overall QoL score was 71.5. The physical and environmental domains had the lowest mean scores (61.5 and 59.0, respectively). No significant differences were found among those using or not using HU. Conclusions: Patients with SCD presented good QoL, being more affected by aspects related to the environmental domain (such as financial resources) and physical (such as pain and discomfort) those correlate with clinical and social characteristics related to SCD.Introdução: A doença falciforme (DF) compreende um grupo de anemias hemolíticas hereditárias cuja principal característica é a presença do gene da hemoglobina S (Hb S) que pode combinar-se com outras anormalidades sanguíneas hereditárias. O quadro clínico varia desde quase assintomático até formas graves. A Hidroxiuréia (HU) é a terapia de maior sucesso. É uma doença crônica, cuja prevalência e morbidade são altas no Brasil, dessa forma a qualidade de vida (QV) surge como um importante desafio para os pacientes, familiares e profissionais de saúde. Objetivos: Avaliar a QV de pacientes portadores de DF, suas características sociodemográficas e clínicas. Métodos: Os dados foram coletados através do questionário de QV abreviado (WHOQOL-Bref), questionário sociodemográfico e prontuário clínico. Resultados: foram entrevistados 39 pacientes, entre 18 e 54 anos, tratados na Fundação Hemominas em Divinópolis - MG. A maioria dos pacientes eram homens (56%), homozigotos para a Hb S (80%), solteiros (67%), segundo grau completo (31%) e não usuários de HU (61%). Dentre os pacientes avaliados 53,8% considerou ter boa QV (escore médio 74,2 ±20,3). O escore relacionado à QV geral foi de 71,5. Os domínios físico e meio ambiente obtiveram os menores escores médio (61,5 e 59,0, respectivamente). Não foram encontradas diferenças significativas entre os que utilizavam ou não HU. Conclusões: Os pacientes com DF apresentaram boa QV, sendo mais comprometida pelos aspectos relacionados ao domínio meio ambiente, (como recursos financeiros) e físico (como dor e desconforto) que se correlacionam com as características clínicas e sociais relacionadas a DF.CNPq - Conselho Nacional de Desenvolvimento Científico e TecnológicoUniversidade Federal de Minas GeraisBrasilFAR - DEPARTAMENTO DE ANÁLISES CLÍNICAS E TOXICOLÓGICASUFMG2023-03-21T15:28:24Z2023-03-21T15:28:24Z2020info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlepdfapplication/pdfhttp://dx.doi.org/10.5935/2238-3182.202000132238-3182http://hdl.handle.net/1843/51091porRevista Médica de Minas GeraisSílvia Letícia de Oliveira ToledoGustavo Cambraia TrindadeCynthia Teixeira PimentaAline de Freitas LopesPatrícia Nessralla AlpoimDanyelle Romana Alves RiosMelina de Barros Pinheiroinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMGinstname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMG2023-03-21T17:45:21Zoai:repositorio.ufmg.br:1843/51091Repositório InstitucionalPUBhttps://repositorio.ufmg.br/oairepositorio@ufmg.bropendoar:2023-03-21T17:45:21Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG)false |
dc.title.none.fl_str_mv |
Avaliação da qualidade de vida de pacientes com doença falciforme Evaluation of the quality of life of patients with sickle cell disease |
title |
Avaliação da qualidade de vida de pacientes com doença falciforme |
spellingShingle |
Avaliação da qualidade de vida de pacientes com doença falciforme Sílvia Letícia de Oliveira Toledo Qualidade de vida Hemoglobina falciforme Anemia Inquéritos e questionários Hematologia Hemoglobina falciforme Anemia Qualidade de vida |
title_short |
Avaliação da qualidade de vida de pacientes com doença falciforme |
title_full |
Avaliação da qualidade de vida de pacientes com doença falciforme |
title_fullStr |
Avaliação da qualidade de vida de pacientes com doença falciforme |
title_full_unstemmed |
Avaliação da qualidade de vida de pacientes com doença falciforme |
title_sort |
Avaliação da qualidade de vida de pacientes com doença falciforme |
author |
Sílvia Letícia de Oliveira Toledo |
author_facet |
Sílvia Letícia de Oliveira Toledo Gustavo Cambraia Trindade Cynthia Teixeira Pimenta Aline de Freitas Lopes Patrícia Nessralla Alpoim Danyelle Romana Alves Rios Melina de Barros Pinheiro |
author_role |
author |
author2 |
Gustavo Cambraia Trindade Cynthia Teixeira Pimenta Aline de Freitas Lopes Patrícia Nessralla Alpoim Danyelle Romana Alves Rios Melina de Barros Pinheiro |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Sílvia Letícia de Oliveira Toledo Gustavo Cambraia Trindade Cynthia Teixeira Pimenta Aline de Freitas Lopes Patrícia Nessralla Alpoim Danyelle Romana Alves Rios Melina de Barros Pinheiro |
dc.subject.por.fl_str_mv |
Qualidade de vida Hemoglobina falciforme Anemia Inquéritos e questionários Hematologia Hemoglobina falciforme Anemia Qualidade de vida |
topic |
Qualidade de vida Hemoglobina falciforme Anemia Inquéritos e questionários Hematologia Hemoglobina falciforme Anemia Qualidade de vida |
description |
Introduction: sickle cell disease (SCD) comprises a group of hereditary hemolytic anemias whose main characteristic is the presence of the hemoglobin S (Hb S) gene that can be combined with other hereditary blood abnormalities. The clinical picture ranges from almost asymptomatic to severe forms. Hydroxyurea (HU) is the most successful therapy. It is a chronic disease whose prevalence and morbidity are high in Brazil, thus quality of life (QoL) emerges as an important challenge for patients, family members and health professionals. Objectives: This study aimed to evaluate the QoL of patients with SCD, their sociodemographic and clinical characteristics. Methods: Data were collected through the abbreviated QoL questionnaire (WHOQOL-Bref), sociodemographic questionnaire and clinical chart. Results: It has interviewed at the Hemominas Foundation in Divinópolis - MG, 39 patients aged 18-54. Most of the patients were male (56%), homozygous for Hb S (80%), unmarried (67%), completed high school (31%) and non HU users (61%). Among the patients evaluated, 53.8% considered having a good QoL (mean score 74.2 ± 20.3). The overall QoL score was 71.5. The physical and environmental domains had the lowest mean scores (61.5 and 59.0, respectively). No significant differences were found among those using or not using HU. Conclusions: Patients with SCD presented good QoL, being more affected by aspects related to the environmental domain (such as financial resources) and physical (such as pain and discomfort) those correlate with clinical and social characteristics related to SCD. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020 2023-03-21T15:28:24Z 2023-03-21T15:28:24Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.5935/2238-3182.20200013 2238-3182 http://hdl.handle.net/1843/51091 |
url |
http://dx.doi.org/10.5935/2238-3182.20200013 http://hdl.handle.net/1843/51091 |
identifier_str_mv |
2238-3182 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
Revista Médica de Minas Gerais |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
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openAccess |
dc.format.none.fl_str_mv |
pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais Brasil FAR - DEPARTAMENTO DE ANÁLISES CLÍNICAS E TOXICOLÓGICAS UFMG |
publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais Brasil FAR - DEPARTAMENTO DE ANÁLISES CLÍNICAS E TOXICOLÓGICAS UFMG |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UFMG instname:Universidade Federal de Minas Gerais (UFMG) instacron:UFMG |
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Universidade Federal de Minas Gerais (UFMG) |
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UFMG |
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UFMG |
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Repositório Institucional da UFMG |
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Repositório Institucional da UFMG |
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Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG) |
repository.mail.fl_str_mv |
repositorio@ufmg.br |
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1816829647145402368 |