Perceptions of individuals with Parkinson’s disease about quality of life
Autor(a) principal: | |
---|---|
Data de Publicação: | 2018 |
Outros Autores: | , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UFMG |
Texto Completo: | https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.6769 http://hdl.handle.net/1843/56513 https://orcid.org/0000-0002-1165-9017 https://orcid.org/0000-0001-5011-8718 https://orcid.org/0000-0002-1234-1561 https://orcid.org/0000-0001-9293-0392 https://orcid.org/0000-0003-3591-8017 https://orcid.org/0000-0002-4319-9318 |
Resumo: | Introduction: Parkinson’s disease is a neurodegenerative disorder manifested by motor and non-motor symptoms that compromise patients’ quality of life. The instrument used to assess Parkinson’s disease patients’ quality of life is the Parkinson’s Disease Questionnaire (pdq-39). This study aims to identify issues related to quality of life from the patients’ perspective, compare the results obtained with the aspects included in the pdq-39, and describe some strategies that patients have adopted to overcome difficulties. Materials and methods: This is aqualitative and descriptive study based on a focus group consisting of six patients. Data were analyzed using the content analysis method. Results: Aspects related to all pdq-39 domains were mentioned by the patients, highlighting those related to limitations on their mobility and daily activities, as well as aspects related to their emotional wellbeing. The patients did not mention some aspects of mobility that are included in the pdq-39, but limitations in the domain of emotional wellbeing that are included in the pdq-39 were detected. In order to overcome difficulties, patients devise various strategies that require social support. Conclusion: Understanding and reflecting on Parkinson’s disease patients’ perceptions of their quality of life contributes to our understanding of the disease and stimulates proposals for adequate clinical interventions to provide comprehensive care. It is suggested that the pdq-39 be reviewed and adapted to the current context, taking into account the most recent knowledge and technological advances related to Parkinson’s disease. |
id |
UFMG_3e9564af73d5c9968fb5be32eda71d8b |
---|---|
oai_identifier_str |
oai:repositorio.ufmg.br:1843/56513 |
network_acronym_str |
UFMG |
network_name_str |
Repositório Institucional da UFMG |
repository_id_str |
|
spelling |
2023-07-17T20:36:40Z2023-07-17T20:36:40Z2018-05-24162262278https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.67692145-4507http://hdl.handle.net/1843/56513https://orcid.org/0000-0002-1165-9017https://orcid.org/0000-0001-5011-8718https://orcid.org/0000-0002-1234-1561https://orcid.org/0000-0001-9293-0392https://orcid.org/0000-0003-3591-8017https://orcid.org/0000-0002-4319-9318Introduction: Parkinson’s disease is a neurodegenerative disorder manifested by motor and non-motor symptoms that compromise patients’ quality of life. The instrument used to assess Parkinson’s disease patients’ quality of life is the Parkinson’s Disease Questionnaire (pdq-39). This study aims to identify issues related to quality of life from the patients’ perspective, compare the results obtained with the aspects included in the pdq-39, and describe some strategies that patients have adopted to overcome difficulties. Materials and methods: This is aqualitative and descriptive study based on a focus group consisting of six patients. Data were analyzed using the content analysis method. Results: Aspects related to all pdq-39 domains were mentioned by the patients, highlighting those related to limitations on their mobility and daily activities, as well as aspects related to their emotional wellbeing. The patients did not mention some aspects of mobility that are included in the pdq-39, but limitations in the domain of emotional wellbeing that are included in the pdq-39 were detected. In order to overcome difficulties, patients devise various strategies that require social support. Conclusion: Understanding and reflecting on Parkinson’s disease patients’ perceptions of their quality of life contributes to our understanding of the disease and stimulates proposals for adequate clinical interventions to provide comprehensive care. It is suggested that the pdq-39 be reviewed and adapted to the current context, taking into account the most recent knowledge and technological advances related to Parkinson’s disease.Introdução: a doença de Parkinson é uma patologia neurodegenerativa, que se manifesta por signos e sintomas motores e não motores, que comprometem a qualidade de vida dos pacientes. O Parkinson Disease Questionnaire (pdq-39) é o instrumento mais utilizado para avaliar a qualidade de vida de em pacientes com esta doença. Os objetivos do trabalho foram identificar os aspetos relacionados com a Qualidade de Vida desde a perspectiva dos pacientes, compará-los com os aspetos considerados pelo pdq-39 e descrever as estratégias adotadas pelos pacientes para superar as dificuldades. Materiais e métodos: estudo qualitativo, descritivo. Realizou-se um grupo focal com seis pacientes. Os dados foram analisados usando o método de análise de conteúdo. Resultados: aspetos relacionados a todos os domínios do pdq-39 foram mencionados pelos pacientes, destacando-se aqueles relacionados com as limitações da mobilidade e o desenvolvimento de atividades diárias, e aspetos relacionados com o bem-estar emocional. No entanto, alguns aspectos considerados no domínio mobilidade do pdq-39 não foram mencionados, e foram detectadas limitações do domínio bem-estar emocional. Os pacientes desenham diversas estratégias para superar as dificuldades, nas que o suporte social é importante. Conclusão: conhecer e reflexionar sobre as percepções de pessoas com Doença de Parkinson sobre sua qualidade de vida contribui para a compreensão da doença e auxilia a proposta de intervenções clínicas adequadas para conseguir o cuidado integral. Sugere-se a revisão e adaptação do pdq-39 ao contexto atual, os avanços tecnológicos e de conhecimentos sobre a Doença de Parkinson.CNPq - Conselho Nacional de Desenvolvimento Científico e TecnológicoCAPES - Coordenação de Aperfeiçoamento de Pessoal de Nível SuperiorengUniversidade Federal de Minas GeraisUFMGBrasilFAR - DEPARTAMENTO DE FARMÁCIA SOCIALCiencias de la SaludDoença de ParkinsonQualidade de vidaInquéritos e questionáriosQuality of lifeParkinson diseasePDQ-39Perceptions of individuals with Parkinson’s disease about quality of lifePercepções de pacientes com doença de Parkinson sobre a qualidade de vidaPercepciones de pacientes con enfermedad de Parkinson sobre la calidad de vidainfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttps://revistas.urosario.edu.co/index.php/revsalud/article/view/6769Aline Aparecida FoppaClaudia Marcela Vargas PeláezFabíola Bagatini BuendgensClarice ChemelloMariana Piva Fleury CharmillotMarjorie Guida Pereira MarinMayara Seemann HamesMareni Rocha Fariasapplication/pdfinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMGinstname:Universidade Federal de Minas Gerais (UFMG)instacron:UFMGLICENSELicense.txtLicense.txttext/plain; charset=utf-82042https://repositorio.ufmg.br/bitstream/1843/56513/1/License.txtfa505098d172de0bc8864fc1287ffe22MD51ORIGINALPerceptions of individuals with Parkinson’s disease about quality of life.pdfPerceptions of individuals with Parkinson’s disease about quality of life.pdfapplication/pdf243112https://repositorio.ufmg.br/bitstream/1843/56513/2/Perceptions%20of%20individuals%20with%20Parkinson%e2%80%99s%20disease%20about%20quality%20of%20life.pdf9ed2c23d22b29335da4fac70ecd7077eMD521843/565132023-07-17 17:36:40.904oai:repositorio.ufmg.br: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Repositório de PublicaçõesPUBhttps://repositorio.ufmg.br/oaiopendoar:2023-07-17T20:36:40Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG)false |
dc.title.pt_BR.fl_str_mv |
Perceptions of individuals with Parkinson’s disease about quality of life |
dc.title.alternative.pt_BR.fl_str_mv |
Percepções de pacientes com doença de Parkinson sobre a qualidade de vida Percepciones de pacientes con enfermedad de Parkinson sobre la calidad de vida |
title |
Perceptions of individuals with Parkinson’s disease about quality of life |
spellingShingle |
Perceptions of individuals with Parkinson’s disease about quality of life Aline Aparecida Foppa Quality of life Parkinson disease PDQ-39 Doença de Parkinson Qualidade de vida Inquéritos e questionários |
title_short |
Perceptions of individuals with Parkinson’s disease about quality of life |
title_full |
Perceptions of individuals with Parkinson’s disease about quality of life |
title_fullStr |
Perceptions of individuals with Parkinson’s disease about quality of life |
title_full_unstemmed |
Perceptions of individuals with Parkinson’s disease about quality of life |
title_sort |
Perceptions of individuals with Parkinson’s disease about quality of life |
author |
Aline Aparecida Foppa |
author_facet |
Aline Aparecida Foppa Claudia Marcela Vargas Peláez Fabíola Bagatini Buendgens Clarice Chemello Mariana Piva Fleury Charmillot Marjorie Guida Pereira Marin Mayara Seemann Hames Mareni Rocha Farias |
author_role |
author |
author2 |
Claudia Marcela Vargas Peláez Fabíola Bagatini Buendgens Clarice Chemello Mariana Piva Fleury Charmillot Marjorie Guida Pereira Marin Mayara Seemann Hames Mareni Rocha Farias |
author2_role |
author author author author author author author |
dc.contributor.author.fl_str_mv |
Aline Aparecida Foppa Claudia Marcela Vargas Peláez Fabíola Bagatini Buendgens Clarice Chemello Mariana Piva Fleury Charmillot Marjorie Guida Pereira Marin Mayara Seemann Hames Mareni Rocha Farias |
dc.subject.por.fl_str_mv |
Quality of life Parkinson disease PDQ-39 |
topic |
Quality of life Parkinson disease PDQ-39 Doença de Parkinson Qualidade de vida Inquéritos e questionários |
dc.subject.other.pt_BR.fl_str_mv |
Doença de Parkinson Qualidade de vida Inquéritos e questionários |
description |
Introduction: Parkinson’s disease is a neurodegenerative disorder manifested by motor and non-motor symptoms that compromise patients’ quality of life. The instrument used to assess Parkinson’s disease patients’ quality of life is the Parkinson’s Disease Questionnaire (pdq-39). This study aims to identify issues related to quality of life from the patients’ perspective, compare the results obtained with the aspects included in the pdq-39, and describe some strategies that patients have adopted to overcome difficulties. Materials and methods: This is aqualitative and descriptive study based on a focus group consisting of six patients. Data were analyzed using the content analysis method. Results: Aspects related to all pdq-39 domains were mentioned by the patients, highlighting those related to limitations on their mobility and daily activities, as well as aspects related to their emotional wellbeing. The patients did not mention some aspects of mobility that are included in the pdq-39, but limitations in the domain of emotional wellbeing that are included in the pdq-39 were detected. In order to overcome difficulties, patients devise various strategies that require social support. Conclusion: Understanding and reflecting on Parkinson’s disease patients’ perceptions of their quality of life contributes to our understanding of the disease and stimulates proposals for adequate clinical interventions to provide comprehensive care. It is suggested that the pdq-39 be reviewed and adapted to the current context, taking into account the most recent knowledge and technological advances related to Parkinson’s disease. |
publishDate |
2018 |
dc.date.issued.fl_str_mv |
2018-05-24 |
dc.date.accessioned.fl_str_mv |
2023-07-17T20:36:40Z |
dc.date.available.fl_str_mv |
2023-07-17T20:36:40Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/1843/56513 |
dc.identifier.doi.pt_BR.fl_str_mv |
https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.6769 |
dc.identifier.issn.pt_BR.fl_str_mv |
2145-4507 |
dc.identifier.orcid.pt_BR.fl_str_mv |
https://orcid.org/0000-0002-1165-9017 https://orcid.org/0000-0001-5011-8718 https://orcid.org/0000-0002-1234-1561 https://orcid.org/0000-0001-9293-0392 https://orcid.org/0000-0003-3591-8017 https://orcid.org/0000-0002-4319-9318 |
url |
https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.6769 http://hdl.handle.net/1843/56513 https://orcid.org/0000-0002-1165-9017 https://orcid.org/0000-0001-5011-8718 https://orcid.org/0000-0002-1234-1561 https://orcid.org/0000-0001-9293-0392 https://orcid.org/0000-0003-3591-8017 https://orcid.org/0000-0002-4319-9318 |
identifier_str_mv |
2145-4507 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.ispartof.pt_BR.fl_str_mv |
Ciencias de la Salud |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
dc.publisher.initials.fl_str_mv |
UFMG |
dc.publisher.country.fl_str_mv |
Brasil |
dc.publisher.department.fl_str_mv |
FAR - DEPARTAMENTO DE FARMÁCIA SOCIAL |
publisher.none.fl_str_mv |
Universidade Federal de Minas Gerais |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UFMG instname:Universidade Federal de Minas Gerais (UFMG) instacron:UFMG |
instname_str |
Universidade Federal de Minas Gerais (UFMG) |
instacron_str |
UFMG |
institution |
UFMG |
reponame_str |
Repositório Institucional da UFMG |
collection |
Repositório Institucional da UFMG |
bitstream.url.fl_str_mv |
https://repositorio.ufmg.br/bitstream/1843/56513/1/License.txt https://repositorio.ufmg.br/bitstream/1843/56513/2/Perceptions%20of%20individuals%20with%20Parkinson%e2%80%99s%20disease%20about%20quality%20of%20life.pdf |
bitstream.checksum.fl_str_mv |
fa505098d172de0bc8864fc1287ffe22 9ed2c23d22b29335da4fac70ecd7077e |
bitstream.checksumAlgorithm.fl_str_mv |
MD5 MD5 |
repository.name.fl_str_mv |
Repositório Institucional da UFMG - Universidade Federal de Minas Gerais (UFMG) |
repository.mail.fl_str_mv |
|
_version_ |
1803589559089364992 |