Vivências de mães com um filho deficiente: um estudo fenomenológico
Autor(a) principal: | |
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Data de Publicação: | 2008 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFMS |
Texto Completo: | https://repositorio.ufms.br/handle/123456789/2139 |
Resumo: | ABSTRACT - OBJECTIVE: To unveil the experiences of mothers of disabled children, with a view to understand the meaning of that experience. METHODS: This is a qualitative study using phenomenological approach based on Heidegger. The study subjects were five mothers with a disabled child. The interviews were performed at the women's homes, guided by the question "To you, what does it mean to have a disabled child? RESULTS: Five categories came into focus: "meeting one's actual infant," "the impact of disability," "treading a new path with one's disabled child," "experiencing maternal altruism in the care of the disabled child," and "altering one's family daily life." CONCLUSIONS: The discourses revealed emotionally moved beings experiencing a painful, sorrowful manner of being-in-the-world. Mothers find themselves unprepared to deal with the experience of having a disabled child, though perceiving the situation as an opportunity for self-encounter. Changes occurred to the couple's dynamics and family members became distant. When seeking guidance from health professionals, the mothers failed to find the necessary support. |
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2014-12-15T12:46:38Z2021-09-30T19:56:54Z2008https://repositorio.ufms.br/handle/123456789/213910.1590/S0103-21002008000100007ABSTRACT - OBJECTIVE: To unveil the experiences of mothers of disabled children, with a view to understand the meaning of that experience. METHODS: This is a qualitative study using phenomenological approach based on Heidegger. The study subjects were five mothers with a disabled child. The interviews were performed at the women's homes, guided by the question "To you, what does it mean to have a disabled child? RESULTS: Five categories came into focus: "meeting one's actual infant," "the impact of disability," "treading a new path with one's disabled child," "experiencing maternal altruism in the care of the disabled child," and "altering one's family daily life." CONCLUSIONS: The discourses revealed emotionally moved beings experiencing a painful, sorrowful manner of being-in-the-world. Mothers find themselves unprepared to deal with the experience of having a disabled child, though perceiving the situation as an opportunity for self-encounter. Changes occurred to the couple's dynamics and family members became distant. When seeking guidance from health professionals, the mothers failed to find the necessary support.RESUMEN - OBJETIVO: Develar la vivencia de la madre que tiene un hijo con discapacidad, para comprender el sentido de esa vivencia. MÉTODOS: Estudio cualitativo realizado bajo la perspectiva fenomenológica fundamentada en Heidegger. Los sujetos del estudio fueron cinco mujeres que vivenciaban la situación de ser-madre de un niño discapacitado. Las entrevistas fueron realizadas en el domicilio orientadas por la pregunta norteadora: ¿Qué es para ud. tener un hijo con discapacidad? RESULTADOS: Emergieron cinco categorías: "encontrándose con el bebé real", "el impacto con la discapacidad", "recorriendo un nuevo camino con un hijo discapacitado", "vivenciando el altruismo materno en el cuidado del hijo" y "modificando el cotidiano familiar". CONCLUSIONES Los discursos revelaron seres emocionados vivenciando una forma dolorosa y triste de estar-en el-mundo. Las madres se ven sin preparación para lidiar con la experiencia de tener un hijo con discapacidad, a pesar de percibir la situación vivenciada como oportunidad de encuentro consigo mismas. En el funcionamiento de la familia, ocurrieron alteraciones en la dinámica de la pareja y distanciamiento entre sus miembros. Al buscar apoyo en los profesionales de salud, las madres no encontraron la ayuda necesaria.porActa Paulista de EnfermagemVivências de mães com um filho deficiente: um estudo fenomenológicoVivencias de las madres con un hijo deficiente: un estudio fenomenológicoExperiences of mothers of disabled children: a phenomenological studyinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleBarbosaI, Maria Angélica MarchetiChaud, Massae NodaGomes, Maria Magda Ferreirainfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMSinstname:Universidade Federal de Mato Grosso do Sul (UFMS)instacron:UFMSTHUMBNAILVivências de mães com um filho deficiente....pdf.jpgVivências de mães com um filho deficiente....pdf.jpgGenerated Thumbnailimage/jpeg1635https://repositorio.ufms.br/bitstream/123456789/2139/4/Viv%c3%aancias%20de%20m%c3%a3es%20com%20um%20filho%20deficiente....pdf.jpgd8842adf9d1cb60c4fbe14f384e63366MD54ORIGINALVivências de mães com um filho deficiente....pdfVivências de mães com um filho deficiente....pdfapplication/pdf254042https://repositorio.ufms.br/bitstream/123456789/2139/1/Viv%c3%aancias%20de%20m%c3%a3es%20com%20um%20filho%20deficiente....pdfefcdfc800d855d4520e24ad32c00b6c0MD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81748https://repositorio.ufms.br/bitstream/123456789/2139/2/license.txt8a4605be74aa9ea9d79846c1fba20a33MD52TEXTVivências de mães com um filho deficiente....pdf.txtVivências de mães com um filho deficiente....pdf.txtExtracted texttext/plain35230https://repositorio.ufms.br/bitstream/123456789/2139/3/Viv%c3%aancias%20de%20m%c3%a3es%20com%20um%20filho%20deficiente....pdf.txt7b82391333b393313f220723cb8e157dMD53123456789/21392021-09-30 15:56:54.868oai:repositorio.ufms.br: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Repositório InstitucionalPUBhttps://repositorio.ufms.br/oai/requestri.prograd@ufms.bropendoar:21242021-09-30T19:56:54Repositório Institucional da UFMS - Universidade Federal de Mato Grosso do Sul (UFMS)false |
dc.title.pt_BR.fl_str_mv |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
dc.title.alternative.pt_BR.fl_str_mv |
Vivencias de las madres con un hijo deficiente: un estudio fenomenológico Experiences of mothers of disabled children: a phenomenological study |
title |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
spellingShingle |
Vivências de mães com um filho deficiente: um estudo fenomenológico BarbosaI, Maria Angélica Marcheti |
title_short |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
title_full |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
title_fullStr |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
title_full_unstemmed |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
title_sort |
Vivências de mães com um filho deficiente: um estudo fenomenológico |
author |
BarbosaI, Maria Angélica Marcheti |
author_facet |
BarbosaI, Maria Angélica Marcheti Chaud, Massae Noda Gomes, Maria Magda Ferreira |
author_role |
author |
author2 |
Chaud, Massae Noda Gomes, Maria Magda Ferreira |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
BarbosaI, Maria Angélica Marcheti Chaud, Massae Noda Gomes, Maria Magda Ferreira |
description |
ABSTRACT - OBJECTIVE: To unveil the experiences of mothers of disabled children, with a view to understand the meaning of that experience. METHODS: This is a qualitative study using phenomenological approach based on Heidegger. The study subjects were five mothers with a disabled child. The interviews were performed at the women's homes, guided by the question "To you, what does it mean to have a disabled child? RESULTS: Five categories came into focus: "meeting one's actual infant," "the impact of disability," "treading a new path with one's disabled child," "experiencing maternal altruism in the care of the disabled child," and "altering one's family daily life." CONCLUSIONS: The discourses revealed emotionally moved beings experiencing a painful, sorrowful manner of being-in-the-world. Mothers find themselves unprepared to deal with the experience of having a disabled child, though perceiving the situation as an opportunity for self-encounter. Changes occurred to the couple's dynamics and family members became distant. When seeking guidance from health professionals, the mothers failed to find the necessary support. |
publishDate |
2008 |
dc.date.issued.fl_str_mv |
2008 |
dc.date.accessioned.fl_str_mv |
2014-12-15T12:46:38Z |
dc.date.available.fl_str_mv |
2021-09-30T19:56:54Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
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https://repositorio.ufms.br/handle/123456789/2139 |
dc.identifier.doi.none.fl_str_mv |
10.1590/S0103-21002008000100007 |
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https://repositorio.ufms.br/handle/123456789/2139 |
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10.1590/S0103-21002008000100007 |
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por |
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por |
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openAccess |
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Acta Paulista de Enfermagem |
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Acta Paulista de Enfermagem |
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reponame:Repositório Institucional da UFMS instname:Universidade Federal de Mato Grosso do Sul (UFMS) instacron:UFMS |
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