Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas

Detalhes bibliográficos
Autor(a) principal: Paula, Janaine Silvestre de
Data de Publicação: 2021
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Repositório Institucional da UFMT
Texto Completo: http://ri.ufmt.br/handle/1/3772
Resumo: In 2015, an epidemic of cases of children born with microcephaly occurred in Brazil. In Mato Grosso, 69 cases were confirmed, which represents 2.32% of the cases in Brazil, whose total was 2,969 confirmed cases between epidemiological weeks 45/2015 and 40/2019 (Ministry of Health, 2019). The increase in the number of Zika virus infections was significant and the impacts arising from this event need to be understood. The syndrome has also become known as microcephaly, although this manifestation is not indispensable for the confirmation of the diagnosis, it is one of the striking predicates of the syndrome. The present work aimed to understand the subjective experience of mothers assisted in a Rehabilitation Specialized Center (CER lll), in Cuiabá, facing the experience of having a child with Congenital Syndrome by Zika Virus. It is a phenomenological research, a study of what is lived, ideal for understanding singular experiences, where there is the intention to know the perceptions that people elaborate about the lived experience. The data were accessed through the Experiential Interview, a methodological proposal that emphasizes affective and emotional aspects, following the assumptions of the Person-Centered Approach (PCA), the understanding of the experiences shared by the mothers of children with SCZ was based on the PCA. The main results were that mothers considered as good those experiences that allowed them to experience their feelings and needs being accepted by the medical team, family and friends. Having access to therapies, financial resources, leisure and selfcare practices were pointed out as significant in the association with mental health. The coronavirus pandemic impacted on the subtraction of therapies, by the closing of day-care centers that made it difficult to be linked to paid work, when the mother did not have a support network to share the care for the child. Finally, the possibility of facing the death of the child allowed a re-signification of the way of living, supporting the search for emotionally meaningful experiences. It is hoped that the results can contribute to the understanding of maternal mental health and enable proposals for psychosocial intervention for this population.
id UFMT_6f806f8fd722539055666ec71e4a50c1
oai_identifier_str oai:localhost:1/3772
network_acronym_str UFMT
network_name_str Repositório Institucional da UFMT
repository_id_str
spelling Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadasMãesSíndrome congênita pelo Zika vírusSaúde mentalCNPQ::CIENCIAS HUMANAS::PSICOLOGIAMothersCongenital syndrome by Zika virusMental healthIn 2015, an epidemic of cases of children born with microcephaly occurred in Brazil. In Mato Grosso, 69 cases were confirmed, which represents 2.32% of the cases in Brazil, whose total was 2,969 confirmed cases between epidemiological weeks 45/2015 and 40/2019 (Ministry of Health, 2019). The increase in the number of Zika virus infections was significant and the impacts arising from this event need to be understood. The syndrome has also become known as microcephaly, although this manifestation is not indispensable for the confirmation of the diagnosis, it is one of the striking predicates of the syndrome. The present work aimed to understand the subjective experience of mothers assisted in a Rehabilitation Specialized Center (CER lll), in Cuiabá, facing the experience of having a child with Congenital Syndrome by Zika Virus. It is a phenomenological research, a study of what is lived, ideal for understanding singular experiences, where there is the intention to know the perceptions that people elaborate about the lived experience. The data were accessed through the Experiential Interview, a methodological proposal that emphasizes affective and emotional aspects, following the assumptions of the Person-Centered Approach (PCA), the understanding of the experiences shared by the mothers of children with SCZ was based on the PCA. The main results were that mothers considered as good those experiences that allowed them to experience their feelings and needs being accepted by the medical team, family and friends. Having access to therapies, financial resources, leisure and selfcare practices were pointed out as significant in the association with mental health. The coronavirus pandemic impacted on the subtraction of therapies, by the closing of day-care centers that made it difficult to be linked to paid work, when the mother did not have a support network to share the care for the child. Finally, the possibility of facing the death of the child allowed a re-signification of the way of living, supporting the search for emotionally meaningful experiences. It is hoped that the results can contribute to the understanding of maternal mental health and enable proposals for psychosocial intervention for this population.Em 2015, ocorreu no Brasil uma epidemia dos casos de crianças nascidas com microcefalia. No Mato Grosso, foram confirmados 69 casos, o que representa 2,32% dos casos no Brasil, cujo total foi de 2.969 casos confirmados entre as semanas epidemiológicas 45/2015 e 40/2019 (Ministério da Saúde, 2019). O aumento no número de infecções pelo Zika vírus foi significativo e os impactos decorrentes deste acontecimento necessitam ser compreendidos. A síndrome também ficou conhecida como microcefalia, apesar de essa manifestação não ser imprescindível para a confirmação do diagnóstico, é um dos predicados marcantes da síndrome. O presente trabalho teve por objetivo compreender a vivência subjetiva de mães atendidas em um Centro Especializado em Reabilitação (CER lll), em Cuiabá, frente à experiência de ter um filho com Síndrome Congênita pelo Zika Vírus. É uma pesquisa fenomenológica, é um estudo do vivido, ideal para compreensão de experiências singulares, onde há intenção de conhecer as percepções que as pessoas elaboram acerca da experiência vivida. Os dados foram acessados através de Entrevista Experiencial, uma proposta metodológica que acentua aspectos afetivos e emocionais, seguindo então os pressupostos da Abordagem Centrada na Pessoa (ACP), a compreensão das experiências compartilhadas pelas mães de crianças com SCZ foi fundamentada na ACP. Os principais resultados foram que as mães significaram como boas aquelas vivências que permitiam experimentar os seus sentimentos e necessidades sendo acolhidos, pela equipe médica, familiares e amigos. Dispor de acesso a terapias, recursos financeiros, práticas de lazer e de autocuidado foram apontadas como significativos na associação com a saúde mental. A pandemia do coronavírus impactou na subtração das terapias, pelo fechamento das creches que dificultou a vinculação com trabalho remunerado, quando a mãe não dispunha de uma rede de apoio para partilhar o cuidado para com a criança. Por fim, a possibilidade de encarar a morte do filho permitiu que houvesse uma ressignificação do modo de viver, apoiando a busca de experiências emocionalmente significativas. Espera-se que os resultados possam contribuir para a compreensão da saúde mental materna e possibilitar propostas de intervenção psicossocial para essa população.Universidade Federal de Mato GrossoBrasilInstituto de Educação (IE)UFMT CUC - CuiabáPrograma de Pós-Graduação em PsicologiaDias, Tatiane Lebrehttp://lattes.cnpq.br/2523066696889428Dias, Tatiane Lebre327.854.451-04http://lattes.cnpq.br/2523066696889428Magalhães, Fernanda Cândido570.353.182-91http://lattes.cnpq.br/0956199024757516327.854.451-04Cunha, Ana Cristina Barros da005.011.327-59http://lattes.cnpq.br/9017520746153592Calhao, Ana Rafaela Pecora829.917.401-59http://lattes.cnpq.br/5878302436278496Paula, Janaine Silvestre de2023-02-06T17:41:42Z2021-12-062023-02-06T17:41:42Z2021-09-20info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisPAULA, Janaine Silvestre de. Mães de crianças com síndrome congênita pelo Zika vírus: saúde mental e experiências compartilhadas. 2021. 94 f. Dissertação (Mestrado em Psicologia) - Universidade Federal de Mato Grosso, Instituto de Educação, Cuiabá, 2021.http://ri.ufmt.br/handle/1/3772porinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFMTinstname:Universidade Federal de Mato Grosso (UFMT)instacron:UFMT2023-02-13T06:01:29Zoai:localhost:1/3772Repositório InstitucionalPUBhttp://ri.ufmt.br/oai/requestjordanbiblio@gmail.comopendoar:2023-02-13T06:01:29Repositório Institucional da UFMT - Universidade Federal de Mato Grosso (UFMT)false
dc.title.none.fl_str_mv Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
title Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
spellingShingle Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
Paula, Janaine Silvestre de
Mães
Síndrome congênita pelo Zika vírus
Saúde mental
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
Mothers
Congenital syndrome by Zika virus
Mental health
title_short Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
title_full Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
title_fullStr Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
title_full_unstemmed Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
title_sort Mães de crianças com síndrome congênita pelo Zika vírus : saúde mental e experiências compartilhadas
author Paula, Janaine Silvestre de
author_facet Paula, Janaine Silvestre de
author_role author
dc.contributor.none.fl_str_mv Dias, Tatiane Lebre
http://lattes.cnpq.br/2523066696889428
Dias, Tatiane Lebre
327.854.451-04
http://lattes.cnpq.br/2523066696889428
Magalhães, Fernanda Cândido
570.353.182-91
http://lattes.cnpq.br/0956199024757516
327.854.451-04
Cunha, Ana Cristina Barros da
005.011.327-59
http://lattes.cnpq.br/9017520746153592
Calhao, Ana Rafaela Pecora
829.917.401-59
http://lattes.cnpq.br/5878302436278496
dc.contributor.author.fl_str_mv Paula, Janaine Silvestre de
dc.subject.por.fl_str_mv Mães
Síndrome congênita pelo Zika vírus
Saúde mental
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
Mothers
Congenital syndrome by Zika virus
Mental health
topic Mães
Síndrome congênita pelo Zika vírus
Saúde mental
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
Mothers
Congenital syndrome by Zika virus
Mental health
description In 2015, an epidemic of cases of children born with microcephaly occurred in Brazil. In Mato Grosso, 69 cases were confirmed, which represents 2.32% of the cases in Brazil, whose total was 2,969 confirmed cases between epidemiological weeks 45/2015 and 40/2019 (Ministry of Health, 2019). The increase in the number of Zika virus infections was significant and the impacts arising from this event need to be understood. The syndrome has also become known as microcephaly, although this manifestation is not indispensable for the confirmation of the diagnosis, it is one of the striking predicates of the syndrome. The present work aimed to understand the subjective experience of mothers assisted in a Rehabilitation Specialized Center (CER lll), in Cuiabá, facing the experience of having a child with Congenital Syndrome by Zika Virus. It is a phenomenological research, a study of what is lived, ideal for understanding singular experiences, where there is the intention to know the perceptions that people elaborate about the lived experience. The data were accessed through the Experiential Interview, a methodological proposal that emphasizes affective and emotional aspects, following the assumptions of the Person-Centered Approach (PCA), the understanding of the experiences shared by the mothers of children with SCZ was based on the PCA. The main results were that mothers considered as good those experiences that allowed them to experience their feelings and needs being accepted by the medical team, family and friends. Having access to therapies, financial resources, leisure and selfcare practices were pointed out as significant in the association with mental health. The coronavirus pandemic impacted on the subtraction of therapies, by the closing of day-care centers that made it difficult to be linked to paid work, when the mother did not have a support network to share the care for the child. Finally, the possibility of facing the death of the child allowed a re-signification of the way of living, supporting the search for emotionally meaningful experiences. It is hoped that the results can contribute to the understanding of maternal mental health and enable proposals for psychosocial intervention for this population.
publishDate 2021
dc.date.none.fl_str_mv 2021-12-06
2021-09-20
2023-02-06T17:41:42Z
2023-02-06T17:41:42Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv PAULA, Janaine Silvestre de. Mães de crianças com síndrome congênita pelo Zika vírus: saúde mental e experiências compartilhadas. 2021. 94 f. Dissertação (Mestrado em Psicologia) - Universidade Federal de Mato Grosso, Instituto de Educação, Cuiabá, 2021.
http://ri.ufmt.br/handle/1/3772
identifier_str_mv PAULA, Janaine Silvestre de. Mães de crianças com síndrome congênita pelo Zika vírus: saúde mental e experiências compartilhadas. 2021. 94 f. Dissertação (Mestrado em Psicologia) - Universidade Federal de Mato Grosso, Instituto de Educação, Cuiabá, 2021.
url http://ri.ufmt.br/handle/1/3772
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Universidade Federal de Mato Grosso
Brasil
Instituto de Educação (IE)
UFMT CUC - Cuiabá
Programa de Pós-Graduação em Psicologia
publisher.none.fl_str_mv Universidade Federal de Mato Grosso
Brasil
Instituto de Educação (IE)
UFMT CUC - Cuiabá
Programa de Pós-Graduação em Psicologia
dc.source.none.fl_str_mv reponame:Repositório Institucional da UFMT
instname:Universidade Federal de Mato Grosso (UFMT)
instacron:UFMT
instname_str Universidade Federal de Mato Grosso (UFMT)
instacron_str UFMT
institution UFMT
reponame_str Repositório Institucional da UFMT
collection Repositório Institucional da UFMT
repository.name.fl_str_mv Repositório Institucional da UFMT - Universidade Federal de Mato Grosso (UFMT)
repository.mail.fl_str_mv jordanbiblio@gmail.com
_version_ 1804648521888956416