AÇÕES EDUCATIVAS DA EQUIPE DE SAÚDE À FAMÍLIA DA CRIANÇA COM CÂNCER E O CUIDADO PRESTADO NO ECOSSISTEMA DOMICILIAR: PERCEPÇÕES DA FAMÍLIA

• Autor(a) principal: Bick, Miguel Armando
• Data de Publicação: 2017
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Repositório Institucional Universidade Franciscana
• Texto Completo: http://www.tede.universidadefranciscana.edu.br:8080/handle/UFN-BDTD/649
• topic: Criança; Neoplasias; Cuidado domiciliar; ações educativas; ecossistema domiciliar.; Child; Neoplasms; Home care; Educational actions; Home Ecosystem.; Saúde Materno Infantil

Objective: To elaborate the situational diagnosis, to deepen the knowledge about the educational actions offered to the family by the multiprofessional team during the period of hospitalization for the treatment of childhood cancer, to carry out the care of the child in the home ecosystem. The literature review was able to support the research, addressing the themes: Childhood cancer; The family of the child with cancer and the home ecosystem and educational health actions given to the family to care in the home ecosystem of the child with cancer. Methodology: This is a field research of the exploratory descriptive type, with a qualitative approach, which proved to be effective in all stages of the methodological path. The participants' search occurred in the hospitalization unit of children and adolescents with cancer at the Santa Maria University Hospital, located in the state of Rio Grande do Sul, Brazil. In the selection of the survey participants the inclusion criteria were adopted: to be family caregiver (parent or legal guardian) of children diagnosed and treated for cancer; Residing in municipalities in the state of Rio Grande do Sul. The following were excluded from the study: relatives of children not diagnosed with malignant neoplasm; children hospitalized with relapses; children in palliative care; and those residing in other states of the country. After the selection of the participants, the individual invitation to participate of the research was carried out, through the presentation of the Informed Consent Form, the research objectives, the verification of the possibility of conducting the research in the home environment and the authorization to record the interview in audio system. Only after acceptance to participate and signing the Consent and Informed, in two copies (one for the participant and one for the principal investigator) was scheduled, with the family, the date and time for the home interview, which was always performed after discharge of the child. After these steps, we set out to organize a home visit to families in the interior of Rio Grande do Sul to collect the data at the participants' residence, conducted in the months of March to August 2017. Data collection, in order to support the research question, assumptions, goals and key aspects of the literature review was conducted through semi-structured interviews and non-participant observation. For the analysis and interpretation of the data was used the method of Content Analysis in the modality of thematic analysis following the steps of Minayo. Results: The participants of this study were 14 family caregivers of children and adolescents with cancer. The results were discussed through two scientific papers. The first article entitled: Repercussions of childhood cancer in the family context evidenced the need to maintain research that focuses on this population, translating the results of these to practice, expanding knowledge and humanizing care by health professionals. The second article titled: Educational Actions to the Family of Children with Cancer for Home Care indicated the weaknesses in the guidelines on home care for families of children with cancer. It points out the need for health professionals play the role of health education during hospitalization of children with cancer and thus strengthen families for home care, impacting positively on the health of children with cancer. Product: The results of this research pointed out the need for informative material capable of assisting in home care, reducing the doubts that arise in the 9 post-hospital discharge. In this way, it was decided to develop a booklet, due to its easy handling, low cost and possible effectiveness. It includes important information to be observed in the care of children with cancer in the home, fosters understanding, and eliminates or lessens doubts and provides support in the realization of care. Thus, the final product of this dissertation consists of a booklet that contemplates the main guidelines capable of assisting family caregivers when providing care to the child and / or adolescent in cancer treatment in the home ecosystem.