Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism

Detalhes bibliográficos
Autor(a) principal: Praça Brasil, Christina Cesar
Data de Publicação: 2023
Outros Autores: Neiva Veloso Brasileiro, Fabiana, Gabler, Felicia, de Sousa Nunes Queiroz, Francisca Francisete, Leorne Rocha de Pinho Pessoa, Yvna, Brandão, Mariana, Morais Brilhante, Aline Veras
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Brasileira em Promoção da Saúde
Texto Completo: https://ojs.unifor.br/RBPS/article/view/13678
Resumo: Autistic Spectrum Disorder (ASD) is a health condition whose care often requires multidisciplinary care and a well-established daily routine. Thus, social distance and isolation, changes and uncertainties associated with the COVID-19 pandemic affected the routines of children with ASD and their families. This research aimed to analyze the implications of social isolation resulting from the pandemic in families with children and adolescents with ASD. This is an analytical and cross-sectional study carried out from June to July 2020. The questionnaire with 31 questions was applied using the “Google form” tool, being answered by 90 parents of children and adolescents with ASD residing in the State of Ceará. The results showed that the main implications of isolation for these families can be grouped into three axes: family and therapeutic routine; behavioral aspects and associated conditions; and family relationships. The existence of significant changes in the family routine is highlighted, aggravating behavioral aspects and associated conditions. On the other hand, this period culminated in the strengthening of the family bond in some cases. The study reinforces the importance of public policies that establish parental support and training, without this culminating in a mere transfer of responsibility. A family unit guided by respect and acceptance, with emotionally and psychologically strengthened mothers, fathers and caregivers is an important factor in the development of people with ASD at any time, becoming crucial in periods with restricted social interaction, such as the pandemic period.
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spelling Implications of social isolation resulting from COVID-19 in families with children and adolescents with AutismImplicações do isolamento social da COVID-19 em famílias com crianças e adolescentes com AutismoTranstorno do Espectro Autista, COVID-19, Isolamento Social, Núcleo Familiar.Autistic Spectrum Disorder (ASD) is a health condition whose care often requires multidisciplinary care and a well-established daily routine. Thus, social distance and isolation, changes and uncertainties associated with the COVID-19 pandemic affected the routines of children with ASD and their families. This research aimed to analyze the implications of social isolation resulting from the pandemic in families with children and adolescents with ASD. This is an analytical and cross-sectional study carried out from June to July 2020. The questionnaire with 31 questions was applied using the “Google form” tool, being answered by 90 parents of children and adolescents with ASD residing in the State of Ceará. The results showed that the main implications of isolation for these families can be grouped into three axes: family and therapeutic routine; behavioral aspects and associated conditions; and family relationships. The existence of significant changes in the family routine is highlighted, aggravating behavioral aspects and associated conditions. On the other hand, this period culminated in the strengthening of the family bond in some cases. The study reinforces the importance of public policies that establish parental support and training, without this culminating in a mere transfer of responsibility. A family unit guided by respect and acceptance, with emotionally and psychologically strengthened mothers, fathers and caregivers is an important factor in the development of people with ASD at any time, becoming crucial in periods with restricted social interaction, such as the pandemic period.Objetivo: Analisar as implicações do isolamento social decorrente da pandemia em famílias com crianças e adolescentes com Transtorno do Espectro Autista. Método: Trata-se de um estudo analítico, quantitativo e transversal realizado de junho a julho de 2020. O questionário com 31 questões foi aplicado utilizando-se a ferramenta “Google formulário”, sendo respondido por 90 pais ou mães de crianças e adolescentes com Transtorno do Espectro Autista residentes no Estado do Ceará. Resultados: Demonstrou-se que as principais implicações do isolamento sobre essas famílias podem ser agrupadas em três eixos: rotina familiar e terapêutica; aspectos comportamentais e condições associadas; e relações familiares. Destaca-se a existência de mudanças significativas na rotina familiar deste público, agravando aspectos comportamentais e condições associadas. Por outro lado, o período de isolamento social culminou no fortalecimento do vínculo familiar em alguns casos. Conclusão: O estudo reforça a importância de políticas públicas que instituem apoio e capacitação parental, sem que isso culmine em mera transferência de responsabilidade. Uma unidade familiar norteada pelo respeito e acolhimento, com mães e pais emocionalmente fortalecidos é fator importante para a estimulação e o desenvolvimento de pessoas com Transtorno do Espectro Autista. As evidências podem favorecer e inspirar estratégias de estimulação e integração de crianças e adolescentes autistas e suas famílias, saindo dos espaços tradicionais para outras alternativas criativas identificadas durante a pandemia. Universidade de Fortaleza2023-08-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion"Peer-reviewed Article""Avaliado pelos pares""Avaliado pelos pares"application/pdfapplication/pdfhttps://ojs.unifor.br/RBPS/article/view/1367810.5020/18061230.2023.13678Brazilian Journal in Health Promotion; Vol. 36 (2023)Revista Brasileña en Promoción de la Salud; Vol. 36 (2023)Revista Brasileira em Promoção da Saúde; v. 36 (2023)1806-1230reponame:Revista Brasileira em Promoção da Saúdeinstname:Universidade de Fortaleza (Unifor)instacron:UFORporenghttps://ojs.unifor.br/RBPS/article/view/13678/7102https://ojs.unifor.br/RBPS/article/view/13678/7103Copyright (c) 2023 Revista Brasileira em Promoção da Saúdehttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessPraça Brasil, Christina Cesar Neiva Veloso Brasileiro, Fabiana Gabler, Feliciade Sousa Nunes Queiroz, Francisca Francisete Leorne Rocha de Pinho Pessoa, Yvna Brandão, Mariana Morais Brilhante, Aline Veras 2024-03-21T14:41:36Zoai:ojs.ojs.unifor.br:article/13678Revistahttps://periodicos.unifor.br/RBPS/oai1806-12301806-1222opendoar:2024-03-21T14:41:36Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)false
dc.title.none.fl_str_mv Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
Implicações do isolamento social da COVID-19 em famílias com crianças e adolescentes com Autismo
title Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
spellingShingle Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
Praça Brasil, Christina Cesar
Transtorno do Espectro Autista, COVID-19, Isolamento Social, Núcleo Familiar.
title_short Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
title_full Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
title_fullStr Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
title_full_unstemmed Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
title_sort Implications of social isolation resulting from COVID-19 in families with children and adolescents with Autism
author Praça Brasil, Christina Cesar
author_facet Praça Brasil, Christina Cesar
Neiva Veloso Brasileiro, Fabiana
Gabler, Felicia
de Sousa Nunes Queiroz, Francisca Francisete
Leorne Rocha de Pinho Pessoa, Yvna
Brandão, Mariana
Morais Brilhante, Aline Veras
author_role author
author2 Neiva Veloso Brasileiro, Fabiana
Gabler, Felicia
de Sousa Nunes Queiroz, Francisca Francisete
Leorne Rocha de Pinho Pessoa, Yvna
Brandão, Mariana
Morais Brilhante, Aline Veras
author2_role author
author
author
author
author
author
dc.contributor.author.fl_str_mv Praça Brasil, Christina Cesar
Neiva Veloso Brasileiro, Fabiana
Gabler, Felicia
de Sousa Nunes Queiroz, Francisca Francisete
Leorne Rocha de Pinho Pessoa, Yvna
Brandão, Mariana
Morais Brilhante, Aline Veras
dc.subject.por.fl_str_mv Transtorno do Espectro Autista, COVID-19, Isolamento Social, Núcleo Familiar.
topic Transtorno do Espectro Autista, COVID-19, Isolamento Social, Núcleo Familiar.
description Autistic Spectrum Disorder (ASD) is a health condition whose care often requires multidisciplinary care and a well-established daily routine. Thus, social distance and isolation, changes and uncertainties associated with the COVID-19 pandemic affected the routines of children with ASD and their families. This research aimed to analyze the implications of social isolation resulting from the pandemic in families with children and adolescents with ASD. This is an analytical and cross-sectional study carried out from June to July 2020. The questionnaire with 31 questions was applied using the “Google form” tool, being answered by 90 parents of children and adolescents with ASD residing in the State of Ceará. The results showed that the main implications of isolation for these families can be grouped into three axes: family and therapeutic routine; behavioral aspects and associated conditions; and family relationships. The existence of significant changes in the family routine is highlighted, aggravating behavioral aspects and associated conditions. On the other hand, this period culminated in the strengthening of the family bond in some cases. The study reinforces the importance of public policies that establish parental support and training, without this culminating in a mere transfer of responsibility. A family unit guided by respect and acceptance, with emotionally and psychologically strengthened mothers, fathers and caregivers is an important factor in the development of people with ASD at any time, becoming crucial in periods with restricted social interaction, such as the pandemic period.
publishDate 2023
dc.date.none.fl_str_mv 2023-08-04
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
"Peer-reviewed Article"
"Avaliado pelos pares"
"Avaliado pelos pares"
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://ojs.unifor.br/RBPS/article/view/13678
10.5020/18061230.2023.13678
url https://ojs.unifor.br/RBPS/article/view/13678
identifier_str_mv 10.5020/18061230.2023.13678
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://ojs.unifor.br/RBPS/article/view/13678/7102
https://ojs.unifor.br/RBPS/article/view/13678/7103
dc.rights.driver.fl_str_mv Copyright (c) 2023 Revista Brasileira em Promoção da Saúde
http://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Revista Brasileira em Promoção da Saúde
http://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade de Fortaleza
publisher.none.fl_str_mv Universidade de Fortaleza
dc.source.none.fl_str_mv Brazilian Journal in Health Promotion; Vol. 36 (2023)
Revista Brasileña en Promoción de la Salud; Vol. 36 (2023)
Revista Brasileira em Promoção da Saúde; v. 36 (2023)
1806-1230
reponame:Revista Brasileira em Promoção da Saúde
instname:Universidade de Fortaleza (Unifor)
instacron:UFOR
instname_str Universidade de Fortaleza (Unifor)
instacron_str UFOR
institution UFOR
reponame_str Revista Brasileira em Promoção da Saúde
collection Revista Brasileira em Promoção da Saúde
repository.name.fl_str_mv Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)
repository.mail.fl_str_mv
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