Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30

Detalhes bibliográficos
Autor(a) principal: Moretti, Gustavo de Souza
Data de Publicação: 2012
Outros Autores: Moreira, Kamaia de Andrade, Pereira, Suelen Rodrigues
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira em Promoção da Saúde
Texto Completo: https://ojs.unifor.br/RBPS/article/view/2207
Resumo: Objective: To assess the quality of life of caregivers of children with cerebral palsy attended in the Association of Parents and Friends of Exceptional Children (APAE), in Rio Branco-AC, in South Western Amazon, Brazil. Methods: This qualitative and exploratory study was held at an APAE facility in Rio Branco-AC with twelve caregivers. The study included caregivers of children with clinical diagnosis of cerebral palsy confirmed by medical report. Data collection was performed from September to October 2010 with a semi-structured interview, using a socioeconomic file and a questionnaire consisting of questions based on the World Health Organization Quality of Life-100 instrument, all interviews being audio-recorded and verbatim transcribed for further analysis and interpretation. Results: The results indicate that the psychological health and level of independence are the most compromised, considering that the caregivers dedicate their lives for taking care of the children since their birth, what leads them to be overloaded, not only physically but also psychologically, due to the impairment of the child. Conclusion: The quality of life of caregivers of children with cerebral palsy can be seen as unsatisfactory, especially regarding psychological aspects and level of independence.
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spelling Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30Qualidade de vida dos cuidadores de crianças com paralisia cerebral da Amazônia Sul ocidental - doi: 10.5020/18061230.2012.p30CaregiversCerebral PalsyQuality of Life.CuidadoresParalisia CerebralQualidade de VidaObjective: To assess the quality of life of caregivers of children with cerebral palsy attended in the Association of Parents and Friends of Exceptional Children (APAE), in Rio Branco-AC, in South Western Amazon, Brazil. Methods: This qualitative and exploratory study was held at an APAE facility in Rio Branco-AC with twelve caregivers. The study included caregivers of children with clinical diagnosis of cerebral palsy confirmed by medical report. Data collection was performed from September to October 2010 with a semi-structured interview, using a socioeconomic file and a questionnaire consisting of questions based on the World Health Organization Quality of Life-100 instrument, all interviews being audio-recorded and verbatim transcribed for further analysis and interpretation. Results: The results indicate that the psychological health and level of independence are the most compromised, considering that the caregivers dedicate their lives for taking care of the children since their birth, what leads them to be overloaded, not only physically but also psychologically, due to the impairment of the child. Conclusion: The quality of life of caregivers of children with cerebral palsy can be seen as unsatisfactory, especially regarding psychological aspects and level of independence.Avaliar a qualidade de vida dos cuidadores de crianças com paralisia cerebral atendidas na Associação dos Pais e Amigos dos Excepcionais (APAE) de Rio Branco-AC, na Amazônia Sul Ocidental, Brasil. Métodos: O estudo é de natureza qualitativa e exploratória, realizado na APAE de Rio Branco-AC, com 12 (doze) cuidadores, no qual entrevistaramse os cuidadores das crianças com diagnóstico clínico confirmado de paralisia cerebral, através de laudo médico. A coleta de dados, realizada no período de setembro a outubro de 2010, por meio de entrevista semiestruturada, utilizou ficha socioeconômica e questionário composto por questões baseadas no instrumento World Health Organization Quality of Life- 100, sendo todas as entrevistas gravadas em áudio e transcritas na íntegra, para posterior análise e interpretação. Resultados: Os domínios psicológicos e nível de independência são os mais comprometidos, tendo em vista que desde o nascimento das crianças, os cuidadores passam a viver em função das mesmas, fazendo com que encontrem-se sobrecarregados, não só fisicamente, como também psicologicamente, devido às condições limitantes da criança. Conclusão: A qualidade de vida dos cuidadores pode ser compreendida como insatisfatória, principalmente quando relacionada ao domínio psicológico e nível de independência.Universidade de Fortaleza2012-03-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion"Peer-reviewed Article""Avaliado pelos pares""Avaliado pelos pares"application/pdfhttps://ojs.unifor.br/RBPS/article/view/220710.5020/2207Brazilian Journal in Health Promotion; Vol. 25 No. 1 (2012); 30-36Revista Brasileña en Promoción de la Salud; Vol. 25 Núm. 1 (2012); 30-36Revista Brasileira em Promoção da Saúde; v. 25 n. 1 (2012); 30-361806-1230reponame:Revista Brasileira em Promoção da Saúdeinstname:Universidade de Fortaleza (Unifor)instacron:UFORporhttps://ojs.unifor.br/RBPS/article/view/2207/2408Moretti, Gustavo de SouzaMoreira, Kamaia de AndradePereira, Suelen Rodriguesinfo:eu-repo/semantics/openAccess2022-02-16T11:19:47Zoai:ojs.ojs.unifor.br:article/2207Revistahttps://periodicos.unifor.br/RBPS/oai1806-12301806-1222opendoar:2022-02-16T11:19:47Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)false
dc.title.none.fl_str_mv Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
Qualidade de vida dos cuidadores de crianças com paralisia cerebral da Amazônia Sul ocidental - doi: 10.5020/18061230.2012.p30
title Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
spellingShingle Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
Moretti, Gustavo de Souza
Caregivers
Cerebral Palsy
Quality of Life.
Cuidadores
Paralisia Cerebral
Qualidade de Vida
title_short Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
title_full Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
title_fullStr Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
title_full_unstemmed Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
title_sort Quality of life of caregivers of children with cerebral palsy of South Western Amazonia - doi: 10.5020/18061230.2012.p30
author Moretti, Gustavo de Souza
author_facet Moretti, Gustavo de Souza
Moreira, Kamaia de Andrade
Pereira, Suelen Rodrigues
author_role author
author2 Moreira, Kamaia de Andrade
Pereira, Suelen Rodrigues
author2_role author
author
dc.contributor.author.fl_str_mv Moretti, Gustavo de Souza
Moreira, Kamaia de Andrade
Pereira, Suelen Rodrigues
dc.subject.por.fl_str_mv Caregivers
Cerebral Palsy
Quality of Life.
Cuidadores
Paralisia Cerebral
Qualidade de Vida
topic Caregivers
Cerebral Palsy
Quality of Life.
Cuidadores
Paralisia Cerebral
Qualidade de Vida
description Objective: To assess the quality of life of caregivers of children with cerebral palsy attended in the Association of Parents and Friends of Exceptional Children (APAE), in Rio Branco-AC, in South Western Amazon, Brazil. Methods: This qualitative and exploratory study was held at an APAE facility in Rio Branco-AC with twelve caregivers. The study included caregivers of children with clinical diagnosis of cerebral palsy confirmed by medical report. Data collection was performed from September to October 2010 with a semi-structured interview, using a socioeconomic file and a questionnaire consisting of questions based on the World Health Organization Quality of Life-100 instrument, all interviews being audio-recorded and verbatim transcribed for further analysis and interpretation. Results: The results indicate that the psychological health and level of independence are the most compromised, considering that the caregivers dedicate their lives for taking care of the children since their birth, what leads them to be overloaded, not only physically but also psychologically, due to the impairment of the child. Conclusion: The quality of life of caregivers of children with cerebral palsy can be seen as unsatisfactory, especially regarding psychological aspects and level of independence.
publishDate 2012
dc.date.none.fl_str_mv 2012-03-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
"Peer-reviewed Article"
"Avaliado pelos pares"
"Avaliado pelos pares"
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://ojs.unifor.br/RBPS/article/view/2207
10.5020/2207
url https://ojs.unifor.br/RBPS/article/view/2207
identifier_str_mv 10.5020/2207
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://ojs.unifor.br/RBPS/article/view/2207/2408
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de Fortaleza
publisher.none.fl_str_mv Universidade de Fortaleza
dc.source.none.fl_str_mv Brazilian Journal in Health Promotion; Vol. 25 No. 1 (2012); 30-36
Revista Brasileña en Promoción de la Salud; Vol. 25 Núm. 1 (2012); 30-36
Revista Brasileira em Promoção da Saúde; v. 25 n. 1 (2012); 30-36
1806-1230
reponame:Revista Brasileira em Promoção da Saúde
instname:Universidade de Fortaleza (Unifor)
instacron:UFOR
instname_str Universidade de Fortaleza (Unifor)
instacron_str UFOR
institution UFOR
reponame_str Revista Brasileira em Promoção da Saúde
collection Revista Brasileira em Promoção da Saúde
repository.name.fl_str_mv Revista Brasileira em Promoção da Saúde - Universidade de Fortaleza (Unifor)
repository.mail.fl_str_mv
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