Participação da família no cuidado à criança com Paralisia Cerebral

• Autor(a) principal: Dantas, Meryeli Santos de Araújo
• Data de Publicação: 2009
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações da UFPB
• Texto Completo: https://repositorio.ufpb.br/jspui/handle/tede/5142
• topic: Paralisia Cerebral; Família; Cuidado da criança; Cerebral palsy; Family; Child care; CIENCIAS DA SAUDE::ENFERMAGEM

Introduction: Cerebral Palsy (CP) is a lesion that affects the central nervous system when it is immature, of a non progressive character and interfering in the global motor development. The classification is done by analyzing the quality of muscle tone, motor expression pattern, region of cerebral impairment and severity. For the family of a child with CP one of the most striking factors is the repercussion of the diagnosis in the family core. They go through the crisis of the loss of a perfect child, as well as the task of adjusting and accepting the child and his deficiency. Objective: comprehend the family perception about the care of the child with CP. Methodology: qualitative research of the exploratory-descriptive type. The subjects were family members of children with CP treated for more than six months in a Physiotherapy School Clinic of a private University of João Pessoa-PB, that accepted to participate in the research. The data collecting was conducted in the months of March and April of 2009, using as instrument the semi-structured interview that has guiding questions about the theme in study. For interpretation of the produced material the bases of thematic analysis was followed with the following steps: ordination, classification and the analysis itself. Results and Discussions: the participants in the study were 7 families, being 1 mother and 1 father, with age varying between 32 and 45 completed years, all married and being the majority high school degrees. The results showed that when pregnant the woman has in mind the picture of a child without abnormalities, and that the impact of the birth of a child without these characteristics brings a new reality to the whole family. The parents express feelings of guilt for thinking that they were not sufficiently competent to generate a child without deficiency; in the other hand, it was proved that it is very important to the reaction the moment and the way in which they received the information. The use of scientific language makes the understanding difficult and does not favor this process. After the diagnosis, the family lives with fear as to the motor development of their child, in parallel with the process of change in the dynamic and routine of daily life. So that the family can feel empowered and in conditions to deal with the deficiency it is important to strengthen their ties and have the support of its members in the care. Faith, hope in God and love for their child influence in the way with which they deal, react and seek to adapt in view of the adversities of the new care. The mothers reported that when the children begin to grow the difficulties in care increase and the forms of ergonomic adaptations are more inaccessible. Final Considerations: in light of the exposed we recognize the importance of an extended professional assistance that can deal not only with the child with CP, but intervene with the family to guarantee their well being and quality of life.