Concepções e expectativas parentais sobre o filho com transtorno do espectro autista

Detalhes bibliográficos
Autor(a) principal: Feitosa, Giulliany Gonçalves
Data de Publicação: 2020
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca Digital de Teses e Dissertações da UFPB
Texto Completo: https://repositorio.ufpb.br/jspui/handle/123456789/18327
Resumo: The Autism Spectrum Disorder (ASD) is a disorder of the development that includes issues in the areas of socialization, communication and behaviour. The parents’ conceptions about autism influence how the care and the interactions with the children are performed, reflecting in the children’s development. This research aims to explore the parents’ conceptions and expectations about the children with ASD. The participants of this research are 30 parents of children up to five years old, diagnosed with ASD. The instrument used to gather the data are a form with the children’s and parent’s information and an interview. The data was gathered in two institutions: in a Child Psychosocial Care Center and in a Medical center, both located in Campina Grande, Paraiba. The analyse of the data was lightened by what Bardin proposed, and indicates that the parental conceptions about Autism are centered, specially, in not knowing how to define ASD and in define ASD based on characteristics and behaviours presented by the child. Otherwise, the parental expectations include the wish that the children develop in the areas affected by ASD, especially in the social and language area. Besides that, the parents also grow expectations that the children become independent and can, in the future, furnish their own needs. The results indicate that the parental conceptions and expectations about ASD are complex formed and relate with the family’s socioeconomics and psychosocial status, with the children’s characteristics, with the information received, with the parent’s understanding about the parental role and the strategies in action. The results of this research can help the elaboration of instructional material for the family and also be used as a guideline for the elaboration of strategies of action and orientation of health professionals and families of children with ASD.
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spelling Concepções e expectativas parentais sobre o filho com transtorno do espectro autistaAutismoFamíliaConcepçõesAutismFamilyConceptionsCNPQ::CIENCIAS HUMANAS::PSICOLOGIAThe Autism Spectrum Disorder (ASD) is a disorder of the development that includes issues in the areas of socialization, communication and behaviour. The parents’ conceptions about autism influence how the care and the interactions with the children are performed, reflecting in the children’s development. This research aims to explore the parents’ conceptions and expectations about the children with ASD. The participants of this research are 30 parents of children up to five years old, diagnosed with ASD. The instrument used to gather the data are a form with the children’s and parent’s information and an interview. The data was gathered in two institutions: in a Child Psychosocial Care Center and in a Medical center, both located in Campina Grande, Paraiba. The analyse of the data was lightened by what Bardin proposed, and indicates that the parental conceptions about Autism are centered, specially, in not knowing how to define ASD and in define ASD based on characteristics and behaviours presented by the child. Otherwise, the parental expectations include the wish that the children develop in the areas affected by ASD, especially in the social and language area. Besides that, the parents also grow expectations that the children become independent and can, in the future, furnish their own needs. The results indicate that the parental conceptions and expectations about ASD are complex formed and relate with the family’s socioeconomics and psychosocial status, with the children’s characteristics, with the information received, with the parent’s understanding about the parental role and the strategies in action. The results of this research can help the elaboration of instructional material for the family and also be used as a guideline for the elaboration of strategies of action and orientation of health professionals and families of children with ASD.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESO Transtorno do Espectro Autista (TEA) é um transtorno do desenvolvimento que envolve comprometimentos nas áreas de socialização, comunicação e comportamento. As concepções dos pais sobre o autismo influenciam as práticas de cuidado e as interações com a criança, de modo a refletir no desenvolvimento infantil. Este estudo tem como objetivo investigar as concepções e expectativas parentais sobre a criança com TEA. Os participantes deste estudo são 30 mães e pais de crianças, com até cinco anos de idade, diagnosticadas com TEA. Os instrumentos utilizados para a coleta de dados são uma ficha de dados da criança e do genitor e uma entrevista semiestruturada. A coleta de dados foi realizada em duas instituições: em um Centro de Atenção Psicossocial Infantil e em um Centro Médico, ambos localizados na cidade de Campina Grande, na Paraíba. A análise dos dados ocorreu à luz da análise do conteúdo proposta por Bardin, e indica que as concepções parentais sobre o autismo se centram, especialmente, em não saber definir o TEA e em definir o TEA a partir das características e comportamentos apresentados pela criança. Já as expectativas parentais versam sobre o desejo de que o filho obtenha maior desenvolvimento nas áreas comprometidas pelo TEA, especialmente na socialização e linguagem. Além disso, os pais também nutrem expectativas de que o filho venha a ser independente e possa, futuramente, suprir suas próprias necessidades. Os resultados indicam que as concepções e expectativas parentais sobre o TEA são construções complexas que se relacionam com os fatores socioeconômicos e psicossociais da família, com as características da criança e do transtorno, com as informações recebidas, com o entendimento dos pais sobre o papel parental e com suas estratégias de ação. Os resultados deste estudo fornecem subsídios para elaboração de possíveis materiais instrucionais para as famílias, além de servir como base para elaboração de estratégias de ação e orientação junto a profissionais da saúde e a famílias de crianças com TEA.Universidade Federal da ParaíbaBrasilPsicologia SocialPrograma de Pós-Graduação em Psicologia SocialUFPBSalomão, Nádia Maria Ribeirohttp://lattes.cnpq.br/3902826468687122Feitosa, Giulliany Gonçalves2020-11-01T23:20:08Z2020-04-132020-11-01T23:20:08Z2020-03-26info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesishttps://repositorio.ufpb.br/jspui/handle/123456789/18327porhttp://creativecommons.org/licenses/by-nd/3.0/br/info:eu-repo/semantics/openAccessreponame:Biblioteca Digital de Teses e Dissertações da UFPBinstname:Universidade Federal da Paraíba (UFPB)instacron:UFPB2021-09-14T13:30:25Zoai:repositorio.ufpb.br:123456789/18327Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufpb.br/PUBhttp://tede.biblioteca.ufpb.br:8080/oai/requestdiretoria@ufpb.br|| diretoria@ufpb.bropendoar:2021-09-14T13:30:25Biblioteca Digital de Teses e Dissertações da UFPB - Universidade Federal da Paraíba (UFPB)false
dc.title.none.fl_str_mv Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
title Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
spellingShingle Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
Feitosa, Giulliany Gonçalves
Autismo
Família
Concepções
Autism
Family
Conceptions
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
title_short Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
title_full Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
title_fullStr Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
title_full_unstemmed Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
title_sort Concepções e expectativas parentais sobre o filho com transtorno do espectro autista
author Feitosa, Giulliany Gonçalves
author_facet Feitosa, Giulliany Gonçalves
author_role author
dc.contributor.none.fl_str_mv Salomão, Nádia Maria Ribeiro
http://lattes.cnpq.br/3902826468687122
dc.contributor.author.fl_str_mv Feitosa, Giulliany Gonçalves
dc.subject.por.fl_str_mv Autismo
Família
Concepções
Autism
Family
Conceptions
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
topic Autismo
Família
Concepções
Autism
Family
Conceptions
CNPQ::CIENCIAS HUMANAS::PSICOLOGIA
description The Autism Spectrum Disorder (ASD) is a disorder of the development that includes issues in the areas of socialization, communication and behaviour. The parents’ conceptions about autism influence how the care and the interactions with the children are performed, reflecting in the children’s development. This research aims to explore the parents’ conceptions and expectations about the children with ASD. The participants of this research are 30 parents of children up to five years old, diagnosed with ASD. The instrument used to gather the data are a form with the children’s and parent’s information and an interview. The data was gathered in two institutions: in a Child Psychosocial Care Center and in a Medical center, both located in Campina Grande, Paraiba. The analyse of the data was lightened by what Bardin proposed, and indicates that the parental conceptions about Autism are centered, specially, in not knowing how to define ASD and in define ASD based on characteristics and behaviours presented by the child. Otherwise, the parental expectations include the wish that the children develop in the areas affected by ASD, especially in the social and language area. Besides that, the parents also grow expectations that the children become independent and can, in the future, furnish their own needs. The results indicate that the parental conceptions and expectations about ASD are complex formed and relate with the family’s socioeconomics and psychosocial status, with the children’s characteristics, with the information received, with the parent’s understanding about the parental role and the strategies in action. The results of this research can help the elaboration of instructional material for the family and also be used as a guideline for the elaboration of strategies of action and orientation of health professionals and families of children with ASD.
publishDate 2020
dc.date.none.fl_str_mv 2020-11-01T23:20:08Z
2020-04-13
2020-11-01T23:20:08Z
2020-03-26
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://repositorio.ufpb.br/jspui/handle/123456789/18327
url https://repositorio.ufpb.br/jspui/handle/123456789/18327
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv http://creativecommons.org/licenses/by-nd/3.0/br/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by-nd/3.0/br/
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Universidade Federal da Paraíba
Brasil
Psicologia Social
Programa de Pós-Graduação em Psicologia Social
UFPB
publisher.none.fl_str_mv Universidade Federal da Paraíba
Brasil
Psicologia Social
Programa de Pós-Graduação em Psicologia Social
UFPB
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reponame_str Biblioteca Digital de Teses e Dissertações da UFPB
collection Biblioteca Digital de Teses e Dissertações da UFPB
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