IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Cogitare Enfermagem (Online) |
Texto Completo: | https://revistas.ufpr.br/cogitare/article/view/51589 |
Resumo: | Objective: to describe the impacts of caring for children and adolescents with cancer on the lives of caregivers. Method: Descriptivestudy with a qualitative approach conducted from May to June 2015. Fifteen (15) caregivers of children and adolescents from an institution thatprovides support to children with cancer in a municipality in the southern region of Bahia. The data were collected through semi-structuredinterviews and analyzed according to the technique of content analysis, thematic modality. Results: Changes in family routine and financialproblems were identified as negative aspects faced by caregivers, and the support obtained was identified as a positive aspect. The main feelingsexperienced by them were discouragement, sadness, loss, revolt, victory, death and faith. Conclusion: It can be concluded that follow up by amultidisciplinary team is necessary to provide emotional support to caregivers, in order to prepare them to cope with the stressful events associatedwith the care process. |
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Cogitare Enfermagem (Online) |
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IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERSREPERCUSIONES EN LA VIDA DE CUIDADORES DE NIÑOS Y ADOLESCENTES CON ENFERMEDAD ONCOLÓGICAREPERCUSSÕES NA VIDA DE CUIDADORES DE CRIANÇAS E ADOLESCENTES COM DOENÇA ONCOLÓGICANeoplasias; Caregivers; Children; Adolescents.Neoplasias; Cuidadores; Niños; Adolescentes.Saúde Pública; Oncologia.Neoplasias; Cuidadores; Crianças; Adolescentes.Objective: to describe the impacts of caring for children and adolescents with cancer on the lives of caregivers. Method: Descriptivestudy with a qualitative approach conducted from May to June 2015. Fifteen (15) caregivers of children and adolescents from an institution thatprovides support to children with cancer in a municipality in the southern region of Bahia. The data were collected through semi-structuredinterviews and analyzed according to the technique of content analysis, thematic modality. Results: Changes in family routine and financialproblems were identified as negative aspects faced by caregivers, and the support obtained was identified as a positive aspect. The main feelingsexperienced by them were discouragement, sadness, loss, revolt, victory, death and faith. Conclusion: It can be concluded that follow up by amultidisciplinary team is necessary to provide emotional support to caregivers, in order to prepare them to cope with the stressful events associatedwith the care process.Objetivo: descrever as repercussões que ocorreram na vida de cuidadores de crianças e adolescentes comdoença oncológica. Método: estudo descritivo com abordagem qualitativa, realizado entre maio e junho de 2015,com 15 cuidadores de crianças e adolescentes, em uma instituição de apoio a crianças com câncer de um municípioda região sul da Bahia. Os dados foram coletados através de entrevistas semiestruturadas e analisados conforme atécnica de análise de conteúdo, modalidade temática. Resultados: identificou-se como dificuldades para as cuidadorasas mudanças da rotina familiar e os problemas financeiros, e como facilidade o apoio encontrado. Os principaissentimentos vivenciados pelas mesmas foram desânimo, tristeza, perda, revolta, vitória, morte e fé. Conclusão: dessaforma, faz-se necessário acompanhamento com equipe multidisciplinar, a fim de fornecer o suporte emocional para ascuidadoras poderem vivenciar as repercussões que o processo de cuidar lhes impõe.Objetivo: describir las repercusiones que ocurrieron en la vida de cuidadores de niños y adolescentes con enfermedad oncológica.Método: estudio descriptivo con abordaje cualitativo, hecho entre mayo y junio de 2015, con 15 cuidadores de niños y adolescentes, en unainstitución de apoyo a niños con cáncer de un municipio de la región sur de Bahia. Se obtuvieron los datos por medio de entrevistas semiestructuradas y se los analizaron conforme la técnica de análisis de contenido, modalidad temática. Resultados: se identificaron como dificultadespara las cuidadoras los cambios de la rutina familiar y los problemas financieros, y como facilidad el apoyo encontrado. Los principalessentimientos presentes fueron desánimo, tristeza, pérdida, indignación, vitoria, muerte y fe. Conclusión: es necesario acompañamiento con elequipo multidisciplinar, con fines de fornecer el suporte emocional para que las cuidadoras puedan vivir las repercusiones que el proceso decuidar les impone.Universidade Federal do ParanáOliveira, Juliana da SilvaCunha, Danielle de OliveiraSantos, Charles SouzaMorais, Roberta Laíse Gomes Leite2018-05-23info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionPequisa qualitativaapplication/pdfapplication/pdfhttps://revistas.ufpr.br/cogitare/article/view/5158910.5380/ce.v23i2.51589Cogitare Enfermagem; v. 23, n. 2 (2018)Cogitare Enfermagem; v. 23, n. 2 (2018)Cogitare Enfermagem; v. 23, n. 2 (2018)2176-91331414-853610.5380/ce.v23i2reponame:Cogitare Enfermagem (Online)instname:Universidade Federal do Paraná (UFPR)instacron:UFPRporenghttps://revistas.ufpr.br/cogitare/article/view/51589/pdfhttps://revistas.ufpr.br/cogitare/article/view/51589/pdf_1https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/28188https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/28189https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/30295Direitos autorais 2018 Cogitare Enfermageminfo:eu-repo/semantics/openAccess2021-12-07T20:19:01Zoai:revistas.ufpr.br:article/51589Revistahttps://revistas.ufpr.br/cogitare/indexPUBhttps://revistas.ufpr.br/cogitare/oaicogitare@ufpr.br2176-91331414-8536opendoar:2021-12-07T20:19:01Cogitare Enfermagem (Online) - Universidade Federal do Paraná (UFPR)false |
dc.title.none.fl_str_mv |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS REPERCUSIONES EN LA VIDA DE CUIDADORES DE NIÑOS Y ADOLESCENTES CON ENFERMEDAD ONCOLÓGICA REPERCUSSÕES NA VIDA DE CUIDADORES DE CRIANÇAS E ADOLESCENTES COM DOENÇA ONCOLÓGICA |
title |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
spellingShingle |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS Oliveira, Juliana da Silva Neoplasias; Caregivers; Children; Adolescents. Neoplasias; Cuidadores; Niños; Adolescentes. Saúde Pública; Oncologia. Neoplasias; Cuidadores; Crianças; Adolescentes. |
title_short |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
title_full |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
title_fullStr |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
title_full_unstemmed |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
title_sort |
IMPACT OF CARING FOR CHILDREN AND ADOLESCENTS WITH CANCER ON THE QUALITY OF LIFE OF CAREGIVERS |
author |
Oliveira, Juliana da Silva |
author_facet |
Oliveira, Juliana da Silva Cunha, Danielle de Oliveira Santos, Charles Souza Morais, Roberta Laíse Gomes Leite |
author_role |
author |
author2 |
Cunha, Danielle de Oliveira Santos, Charles Souza Morais, Roberta Laíse Gomes Leite |
author2_role |
author author author |
dc.contributor.none.fl_str_mv |
|
dc.contributor.author.fl_str_mv |
Oliveira, Juliana da Silva Cunha, Danielle de Oliveira Santos, Charles Souza Morais, Roberta Laíse Gomes Leite |
dc.subject.none.fl_str_mv |
|
dc.subject.por.fl_str_mv |
Neoplasias; Caregivers; Children; Adolescents. Neoplasias; Cuidadores; Niños; Adolescentes. Saúde Pública; Oncologia. Neoplasias; Cuidadores; Crianças; Adolescentes. |
topic |
Neoplasias; Caregivers; Children; Adolescents. Neoplasias; Cuidadores; Niños; Adolescentes. Saúde Pública; Oncologia. Neoplasias; Cuidadores; Crianças; Adolescentes. |
description |
Objective: to describe the impacts of caring for children and adolescents with cancer on the lives of caregivers. Method: Descriptivestudy with a qualitative approach conducted from May to June 2015. Fifteen (15) caregivers of children and adolescents from an institution thatprovides support to children with cancer in a municipality in the southern region of Bahia. The data were collected through semi-structuredinterviews and analyzed according to the technique of content analysis, thematic modality. Results: Changes in family routine and financialproblems were identified as negative aspects faced by caregivers, and the support obtained was identified as a positive aspect. The main feelingsexperienced by them were discouragement, sadness, loss, revolt, victory, death and faith. Conclusion: It can be concluded that follow up by amultidisciplinary team is necessary to provide emotional support to caregivers, in order to prepare them to cope with the stressful events associatedwith the care process. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-05-23 |
dc.type.none.fl_str_mv |
|
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Pequisa qualitativa |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://revistas.ufpr.br/cogitare/article/view/51589 10.5380/ce.v23i2.51589 |
url |
https://revistas.ufpr.br/cogitare/article/view/51589 |
identifier_str_mv |
10.5380/ce.v23i2.51589 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://revistas.ufpr.br/cogitare/article/view/51589/pdf https://revistas.ufpr.br/cogitare/article/view/51589/pdf_1 https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/28188 https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/28189 https://revistas.ufpr.br/cogitare/article/downloadSuppFile/51589/30295 |
dc.rights.driver.fl_str_mv |
Direitos autorais 2018 Cogitare Enfermagem info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Direitos autorais 2018 Cogitare Enfermagem |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal do Paraná |
publisher.none.fl_str_mv |
Universidade Federal do Paraná |
dc.source.none.fl_str_mv |
Cogitare Enfermagem; v. 23, n. 2 (2018) Cogitare Enfermagem; v. 23, n. 2 (2018) Cogitare Enfermagem; v. 23, n. 2 (2018) 2176-9133 1414-8536 10.5380/ce.v23i2 reponame:Cogitare Enfermagem (Online) instname:Universidade Federal do Paraná (UFPR) instacron:UFPR |
instname_str |
Universidade Federal do Paraná (UFPR) |
instacron_str |
UFPR |
institution |
UFPR |
reponame_str |
Cogitare Enfermagem (Online) |
collection |
Cogitare Enfermagem (Online) |
repository.name.fl_str_mv |
Cogitare Enfermagem (Online) - Universidade Federal do Paraná (UFPR) |
repository.mail.fl_str_mv |
cogitare@ufpr.br |
_version_ |
1797068301311934464 |