Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UFRN |
Texto Completo: | https://repositorio.ufrn.br/handle/123456789/54841 https://doi.org/10.1155/2021/8817491 |
Resumo: | Caring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situation, and Internet interventions hold considerable promise for meeting these needs. Virtual communities of practice (VCoPs) are Internet frameworks to share knowledge where members collaborate and achieve a sense of trust in the community. This paper seeks to evaluate the impact of participating in a VCoP (developed through an App) on the QoL of caregivers to people with Alzheimer’s. Results show QoL before and after the intervention changed significantly. The impact of VCoP on caregivers’ overall QoL is moderated by age and relation with the person with Alzheimer’s, specifically those over 65, and spouses. VCoPs allow interaction and knowledge sharing among caregivers which provide them mainly with information and support from peers helping them to meet their needs. Furthermore, caregivers’ QoL did not decrease when their relative deteriorated functionally, which could be due to the participation in VCoP. Although we found significant pre- and post differences in caregivers’ health literacy, we must report the ambiguous result that this variable only impacts on QoL’s physical domain. Participants also reported that they had a positive experience because the App was perceived to be a useful tool, because they could manage their own participation and they met peers and felt less lonely. Results suggest that participation in a VCoP impacts positively on caregivers’ QoL |
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Souza, Dyego Leandro Bezerra deMas, Montse RomeroAribau, Anna RamonCox, Andrew M.Zúñiga, Beni Gómezhttps://orcid.org/0000-0001-8426-31202023-09-14T16:23:19Z2023-09-14T16:23:19Z2021SOUZA, Dyego Leandro Bezerra de; ROMERO-MAS, Montse; RAMON-ARIBAU, Anna; COX, Andrew M.; GÓMEZ-ZðÑIGA, Beni.Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study. International Journal Of Alzheimer'S Disease, [S.L.], v. 2021, p. 1-10, 5 abr. 2021. Hindawi Limited. http://dx.doi.org/10.1155/2021/8817491. Disponível em: https://www.hindawi.com/journals/ijad/2021/8817491/. Acesso em: 05 set. 2023.https://repositorio.ufrn.br/handle/123456789/54841https://doi.org/10.1155/2021/8817491International Journal Of Alzheimer'S Diseasehttps://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessquality of life of familyalzheimervirtual communitiesImproving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental studyinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleCaring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situation, and Internet interventions hold considerable promise for meeting these needs. Virtual communities of practice (VCoPs) are Internet frameworks to share knowledge where members collaborate and achieve a sense of trust in the community. This paper seeks to evaluate the impact of participating in a VCoP (developed through an App) on the QoL of caregivers to people with Alzheimer’s. Results show QoL before and after the intervention changed significantly. The impact of VCoP on caregivers’ overall QoL is moderated by age and relation with the person with Alzheimer’s, specifically those over 65, and spouses. VCoPs allow interaction and knowledge sharing among caregivers which provide them mainly with information and support from peers helping them to meet their needs. Furthermore, caregivers’ QoL did not decrease when their relative deteriorated functionally, which could be due to the participation in VCoP. Although we found significant pre- and post differences in caregivers’ health literacy, we must report the ambiguous result that this variable only impacts on QoL’s physical domain. Participants also reported that they had a positive experience because the App was perceived to be a useful tool, because they could manage their own participation and they met peers and felt less lonely. Results suggest that participation in a VCoP impacts positively on caregivers’ QoLengreponame:Repositório Institucional da UFRNinstname:Universidade Federal do Rio Grande do Norte (UFRN)instacron:UFRNORIGINALImprovingQualityLife_Souza_2021.pdfImprovingQualityLife_Souza_2021.pdfapplication/pdf777077https://repositorio.ufrn.br/bitstream/123456789/54841/1/ImprovingQualityLife_Souza_2021.pdf19eaa5daca384d055ea3d1f34b0b96f4MD51LICENSElicense.txtlicense.txttext/plain; charset=utf-81484https://repositorio.ufrn.br/bitstream/123456789/54841/2/license.txte9597aa2854d128fd968be5edc8a28d9MD52123456789/548412023-09-14 13:23:42.021oai:https://repositorio.ufrn.br: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Repositório de PublicaçõesPUBhttp://repositorio.ufrn.br/oai/opendoar:2023-09-14T16:23:42Repositório Institucional da UFRN - Universidade Federal do Rio Grande do Norte (UFRN)false |
dc.title.pt_BR.fl_str_mv |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
title |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
spellingShingle |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study Souza, Dyego Leandro Bezerra de quality of life of family alzheimer virtual communities |
title_short |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
title_full |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
title_fullStr |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
title_full_unstemmed |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
title_sort |
Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study |
author |
Souza, Dyego Leandro Bezerra de |
author_facet |
Souza, Dyego Leandro Bezerra de Mas, Montse Romero Aribau, Anna Ramon Cox, Andrew M. Zúñiga, Beni Gómez |
author_role |
author |
author2 |
Mas, Montse Romero Aribau, Anna Ramon Cox, Andrew M. Zúñiga, Beni Gómez |
author2_role |
author author author author |
dc.contributor.authorID.pt_BR.fl_str_mv |
https://orcid.org/0000-0001-8426-3120 |
dc.contributor.author.fl_str_mv |
Souza, Dyego Leandro Bezerra de Mas, Montse Romero Aribau, Anna Ramon Cox, Andrew M. Zúñiga, Beni Gómez |
dc.subject.por.fl_str_mv |
quality of life of family alzheimer virtual communities |
topic |
quality of life of family alzheimer virtual communities |
description |
Caring for a person with dementia burdens family caregivers, and there is a close negative relationship between this burden and their quality of life (QoL). Research suggests that caregivers’ main needs are information and training about the disease and support from others experiencing the same situation, and Internet interventions hold considerable promise for meeting these needs. Virtual communities of practice (VCoPs) are Internet frameworks to share knowledge where members collaborate and achieve a sense of trust in the community. This paper seeks to evaluate the impact of participating in a VCoP (developed through an App) on the QoL of caregivers to people with Alzheimer’s. Results show QoL before and after the intervention changed significantly. The impact of VCoP on caregivers’ overall QoL is moderated by age and relation with the person with Alzheimer’s, specifically those over 65, and spouses. VCoPs allow interaction and knowledge sharing among caregivers which provide them mainly with information and support from peers helping them to meet their needs. Furthermore, caregivers’ QoL did not decrease when their relative deteriorated functionally, which could be due to the participation in VCoP. Although we found significant pre- and post differences in caregivers’ health literacy, we must report the ambiguous result that this variable only impacts on QoL’s physical domain. Participants also reported that they had a positive experience because the App was perceived to be a useful tool, because they could manage their own participation and they met peers and felt less lonely. Results suggest that participation in a VCoP impacts positively on caregivers’ QoL |
publishDate |
2021 |
dc.date.issued.fl_str_mv |
2021 |
dc.date.accessioned.fl_str_mv |
2023-09-14T16:23:19Z |
dc.date.available.fl_str_mv |
2023-09-14T16:23:19Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
SOUZA, Dyego Leandro Bezerra de; ROMERO-MAS, Montse; RAMON-ARIBAU, Anna; COX, Andrew M.; GÓMEZ-ZðÑIGA, Beni.Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study. International Journal Of Alzheimer'S Disease, [S.L.], v. 2021, p. 1-10, 5 abr. 2021. Hindawi Limited. http://dx.doi.org/10.1155/2021/8817491. Disponível em: https://www.hindawi.com/journals/ijad/2021/8817491/. Acesso em: 05 set. 2023. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufrn.br/handle/123456789/54841 |
dc.identifier.doi.none.fl_str_mv |
https://doi.org/10.1155/2021/8817491 |
identifier_str_mv |
SOUZA, Dyego Leandro Bezerra de; ROMERO-MAS, Montse; RAMON-ARIBAU, Anna; COX, Andrew M.; GÓMEZ-ZðÑIGA, Beni.Improving the quality of life of family caregivers of people with alzheimer’s disease through virtual communities of practice: a quasiexperimental study. International Journal Of Alzheimer'S Disease, [S.L.], v. 2021, p. 1-10, 5 abr. 2021. Hindawi Limited. http://dx.doi.org/10.1155/2021/8817491. Disponível em: https://www.hindawi.com/journals/ijad/2021/8817491/. Acesso em: 05 set. 2023. |
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https://repositorio.ufrn.br/handle/123456789/54841 https://doi.org/10.1155/2021/8817491 |
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eng |
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eng |
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https://creativecommons.org/licenses/by/4.0/ |
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International Journal Of Alzheimer'S Disease |
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International Journal Of Alzheimer'S Disease |
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