Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2020 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | por eng |
| Título da fonte: | Revista de Enfermagem da Universidade Federal de Santa Maria |
| DOI: | 10.5902/2179769242529 |
| Texto Completo: | http://periodicos.ufsm.br/reufsm/article/view/42529 |
Resumo: | Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management. |
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UFSM-12 |
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Revista de Enfermagem da Universidade Federal de Santa Maria |
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Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actionsGestão do cuidado à criança/adolescente com doença crônica: (des)articulação da rede e fragmentação das açõesGestão do cuidadoCriançaDoença CrônicaCuidado integral à saúdeSaúde da criançaDoença crônicaGestão em saúde.Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management.Objetivo: analisar a gestão do cuidado à criança/adolescente com doença crônica na rede de atenção à saúde, tendo como alicerce as experiências de famílias na busca pelo cuidado do(a) filho(a). Método: pesquisa qualitativa, realizada com dez familiares de crianças/adolescentes com doença crônica, residentes do município de João Pessoa, Paraíba, Brasil. Os dados foram coletados de novembro de 2017 a junho de 2018 por meio de entrevistas semiestruturadas e submetidos à análise temática indutiva. Resultados: a rede de atenção à saúde de crianças/adolescentes com doença crônica está desarticulada e as ações de cuidado fragmentadas; as famílias traçam seus próprios itinerários terapêuticos e não recebem apoio dos profissionais/serviços no manejo do cuidado. Conclusão: a desarticulação no planejamento das ações de cuidado nas redes de atenção à saúde, aliado ao atendimento pontual e descontínuo à criança/adolescente com doença crônica e sua família fragilizam e empobrecem a gestão do cuidado.Universidade Federal de Santa Maria2020-09-08info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdftext/htmltext/htmlhttp://periodicos.ufsm.br/reufsm/article/view/4252910.5902/2179769242529Revista de Enfermagem da UFSM; v. 10 (2020); e762179-7692reponame:Revista de Enfermagem da Universidade Federal de Santa Mariainstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporenghttp://periodicos.ufsm.br/reufsm/article/view/42529/pdfhttp://periodicos.ufsm.br/reufsm/article/view/42529/pdf_1http://periodicos.ufsm.br/reufsm/article/view/42529/htmlhttp://periodicos.ufsm.br/reufsm/article/view/42529/html_1Copyright (c) 2020 Revista de Enfermagem da UFSMinfo:eu-repo/semantics/openAccessSilva, Bruna Gabrielle de AraújoMachado, Amanda NarcisoNóbrega, Vanessa Medeiros daOliveira, Renata CardosoVaz, Elenice Maria CecchettiCollet, Neusa2021-04-19T19:54:28Zoai:ojs.pkp.sfu.ca:article/42529Revistahttps://periodicos.ufsm.br/reufsmPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/reufsm/oaicentraldeperiodicos@ufsm.br||reufsm@gmail.com2179-76922179-7692opendoar:2021-04-19T19:54:28Revista de Enfermagem da Universidade Federal de Santa Maria - Universidade Federal de Santa Maria (UFSM)false |
| dc.title.none.fl_str_mv |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions Gestão do cuidado à criança/adolescente com doença crônica: (des)articulação da rede e fragmentação das ações |
| title |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| spellingShingle |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions Silva, Bruna Gabrielle de Araújo Gestão do cuidado Criança Doença Crônica Cuidado integral à saúde Saúde da criança Doença crônica Gestão em saúde. Silva, Bruna Gabrielle de Araújo Gestão do cuidado Criança Doença Crônica Cuidado integral à saúde Saúde da criança Doença crônica Gestão em saúde. |
| title_short |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| title_full |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| title_fullStr |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| title_full_unstemmed |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| title_sort |
Management of care for children/adolescents with chronic diseases: (dis)articulation of the network and fragmentation of the actions |
| author |
Silva, Bruna Gabrielle de Araújo |
| author_facet |
Silva, Bruna Gabrielle de Araújo Silva, Bruna Gabrielle de Araújo Machado, Amanda Narciso Nóbrega, Vanessa Medeiros da Oliveira, Renata Cardoso Vaz, Elenice Maria Cecchetti Collet, Neusa Machado, Amanda Narciso Nóbrega, Vanessa Medeiros da Oliveira, Renata Cardoso Vaz, Elenice Maria Cecchetti Collet, Neusa |
| author_role |
author |
| author2 |
Machado, Amanda Narciso Nóbrega, Vanessa Medeiros da Oliveira, Renata Cardoso Vaz, Elenice Maria Cecchetti Collet, Neusa |
| author2_role |
author author author author author |
| dc.contributor.author.fl_str_mv |
Silva, Bruna Gabrielle de Araújo Machado, Amanda Narciso Nóbrega, Vanessa Medeiros da Oliveira, Renata Cardoso Vaz, Elenice Maria Cecchetti Collet, Neusa |
| dc.subject.por.fl_str_mv |
Gestão do cuidado Criança Doença Crônica Cuidado integral à saúde Saúde da criança Doença crônica Gestão em saúde. |
| topic |
Gestão do cuidado Criança Doença Crônica Cuidado integral à saúde Saúde da criança Doença crônica Gestão em saúde. |
| description |
Objective: to analyze the management of care for children/adolescents with chronic diseases in the health care network, based on the experiences of families in the search for the care of their child. Method: a qualitative research, carried out with ten relatives of children/adolescents with chronic diseases, residents of the city of João Pessoa, Paraiba, Brazil. Data was collected from November 2017 to June 2018 through semi-structured interviews and submitted to inductive thematic analysis. Results: the health care network for children/adolescents with chronic diseases is disjointed and the care actions fragmented; families design their own therapeutic itineraries and do not receive support from e professionals/services in care management. Conclusion: disarticulation in the planning of care actions in health care networks, combined with punctual and discontinuous care for children/adolescents with chronic diseases and their family weaken and impoverish care management. |
| publishDate |
2020 |
| dc.date.none.fl_str_mv |
2020-09-08 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/reufsm/article/view/42529 10.5902/2179769242529 |
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http://periodicos.ufsm.br/reufsm/article/view/42529 |
| identifier_str_mv |
10.5902/2179769242529 |
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por eng |
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por eng |
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http://periodicos.ufsm.br/reufsm/article/view/42529/pdf http://periodicos.ufsm.br/reufsm/article/view/42529/pdf_1 http://periodicos.ufsm.br/reufsm/article/view/42529/html http://periodicos.ufsm.br/reufsm/article/view/42529/html_1 |
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Copyright (c) 2020 Revista de Enfermagem da UFSM info:eu-repo/semantics/openAccess |
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Copyright (c) 2020 Revista de Enfermagem da UFSM |
| eu_rights_str_mv |
openAccess |
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application/pdf application/pdf text/html text/html |
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Universidade Federal de Santa Maria |
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Universidade Federal de Santa Maria |
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Revista de Enfermagem da UFSM; v. 10 (2020); e76 2179-7692 reponame:Revista de Enfermagem da Universidade Federal de Santa Maria instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
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Universidade Federal de Santa Maria (UFSM) |
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UFSM |
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UFSM |
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Revista de Enfermagem da Universidade Federal de Santa Maria |
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Revista de Enfermagem da Universidade Federal de Santa Maria |
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Revista de Enfermagem da Universidade Federal de Santa Maria - Universidade Federal de Santa Maria (UFSM) |
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centraldeperiodicos@ufsm.br||reufsm@gmail.com |
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1822181549378895872 |
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10.5902/2179769242529 |