AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP

Detalhes bibliográficos
Autor(a) principal: Cardoso, Mayara Fernanda
Data de Publicação: 2015
Outros Autores: Françozo, Maria de Fátima de Campos
Tipo de documento: Artigo
Idioma: por
Título da fonte: Saúde (Santa Maria)
Texto Completo: https://periodicos.ufsm.br/revistasaude/article/view/15338
Resumo: Autism is a disorder that presents massive developmental prejudices, affecting drastically the family’s environment. There are many studies about the influences of autism in the parents and autistic children relationship but there are not many references related to the siblings. This study aimed to comprehend the living experience of autistics siblings. A qualitative methodology was carried out using semi-structured interviews as a tool to collect data. The participants were five youngsters of autistics siblings. Content analysis was used to discuss the data.  The knowledge about the autistic disorder; relationship, feelings and worries related to the sibling with autism; and the changes on family life were the main themes analyzed. The results showed that the participants were not aware of the autistic sibling´s condition because there was not enough information for them. Significantly changes had occurred in the family´s routine, the siblings were not able to do some activities due the autistic sibling condition. They suffer discrimination concerning the autistic sibling. Most participants worried about the responsibility for the autistic in the future. It is crucial to develop policies aiming to help the autistic siblings.   Descriptors: Autistic Disorder; Siblings; Family Relations.
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spelling AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIPJOVENS IRMÃOS DE AUTISTAS: EXPECTATIVAS, SENTIMENTOS E CONVÍVIOAutism is a disorder that presents massive developmental prejudices, affecting drastically the family’s environment. There are many studies about the influences of autism in the parents and autistic children relationship but there are not many references related to the siblings. This study aimed to comprehend the living experience of autistics siblings. A qualitative methodology was carried out using semi-structured interviews as a tool to collect data. The participants were five youngsters of autistics siblings. Content analysis was used to discuss the data.  The knowledge about the autistic disorder; relationship, feelings and worries related to the sibling with autism; and the changes on family life were the main themes analyzed. The results showed that the participants were not aware of the autistic sibling´s condition because there was not enough information for them. Significantly changes had occurred in the family´s routine, the siblings were not able to do some activities due the autistic sibling condition. They suffer discrimination concerning the autistic sibling. Most participants worried about the responsibility for the autistic in the future. It is crucial to develop policies aiming to help the autistic siblings.   Descriptors: Autistic Disorder; Siblings; Family Relations.O autismo é um transtorno que apresenta grandes prejuízos desenvolvimentais, e, desta forma influencia de forma impactante a família . Poucos estudos abordam a influência na relação dos autistas com seus irmãos. Este estudo objetivou compreender a vivência de jovens irmãos de autistas. Tratou-se de uma pesquisa qualitativa, com o uso de entrevista semiestruturada. Os participantes foram cinco jovens irmãos de autistas. A técnica de análise temática foi usada para categorização e discussão. As categorias identificadas foram: conhecimento sobre o autismo; relacionamento, sentimentos e preocupações em relação ao irmão com autismo; mudanças na vida familiar. Os resultados revelaram explicação insuficiente para os irmãos sobre o autismo e mudanças significativas na vida familiar.  Os participantes relataram deixar de realizar atividades sociais e vivenciar situações de preconceito, sendo uma preocupação, a necessidade de se responsabilizar pelo irmão no futuro. É fundamental o desenvolvimento de políticas voltadas para os irmãos de autistas. Descritores: Transtorno Autístico; Irmãos; Relações Familiares.      Universidade Federal de Santa Maria2015-12-22info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.ufsm.br/revistasaude/article/view/1533810.5902/2236583415338Saúde (Santa Maria); Revista Saúde (Santa Maria), Vol.41, n.2, Jul./Dez. 2015; 87-98Saúde (Santa Maria); Revista Saúde (Santa Maria), Vol.41, n.2, Jul./Dez. 2015; 87-982236-58340103-4499reponame:Saúde (Santa Maria)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttps://periodicos.ufsm.br/revistasaude/article/view/15338/pdf_1Cardoso, Mayara FernandaFrançozo, Maria de Fátima de Camposinfo:eu-repo/semantics/openAccess2016-06-22T17:23:32Zoai:ojs.pkp.sfu.ca:article/15338Revistahttps://periodicos.ufsm.br/revistasaudePUBhttps://periodicos.ufsm.br/revistasaude/oairevistasaude.ufsm@gmail.com || amanda.revsaude@gmail.com || beatriz.revsaude@gmail.com2236-58342236-5834opendoar:2016-06-22T17:23:32Saúde (Santa Maria) - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
JOVENS IRMÃOS DE AUTISTAS: EXPECTATIVAS, SENTIMENTOS E CONVÍVIO
title AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
spellingShingle AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
Cardoso, Mayara Fernanda
title_short AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
title_full AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
title_fullStr AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
title_full_unstemmed AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
title_sort AUTISTIC SIBLINGS: EXPECTATIONS, FEELINGS AND ACQUAINTANCESHIP
author Cardoso, Mayara Fernanda
author_facet Cardoso, Mayara Fernanda
Françozo, Maria de Fátima de Campos
author_role author
author2 Françozo, Maria de Fátima de Campos
author2_role author
dc.contributor.author.fl_str_mv Cardoso, Mayara Fernanda
Françozo, Maria de Fátima de Campos
description Autism is a disorder that presents massive developmental prejudices, affecting drastically the family’s environment. There are many studies about the influences of autism in the parents and autistic children relationship but there are not many references related to the siblings. This study aimed to comprehend the living experience of autistics siblings. A qualitative methodology was carried out using semi-structured interviews as a tool to collect data. The participants were five youngsters of autistics siblings. Content analysis was used to discuss the data.  The knowledge about the autistic disorder; relationship, feelings and worries related to the sibling with autism; and the changes on family life were the main themes analyzed. The results showed that the participants were not aware of the autistic sibling´s condition because there was not enough information for them. Significantly changes had occurred in the family´s routine, the siblings were not able to do some activities due the autistic sibling condition. They suffer discrimination concerning the autistic sibling. Most participants worried about the responsibility for the autistic in the future. It is crucial to develop policies aiming to help the autistic siblings.   Descriptors: Autistic Disorder; Siblings; Family Relations.
publishDate 2015
dc.date.none.fl_str_mv 2015-12-22
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.ufsm.br/revistasaude/article/view/15338
10.5902/2236583415338
url https://periodicos.ufsm.br/revistasaude/article/view/15338
identifier_str_mv 10.5902/2236583415338
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.ufsm.br/revistasaude/article/view/15338/pdf_1
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
publisher.none.fl_str_mv Universidade Federal de Santa Maria
dc.source.none.fl_str_mv Saúde (Santa Maria); Revista Saúde (Santa Maria), Vol.41, n.2, Jul./Dez. 2015; 87-98
Saúde (Santa Maria); Revista Saúde (Santa Maria), Vol.41, n.2, Jul./Dez. 2015; 87-98
2236-5834
0103-4499
reponame:Saúde (Santa Maria)
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
instacron_str UFSM
institution UFSM
reponame_str Saúde (Santa Maria)
collection Saúde (Santa Maria)
repository.name.fl_str_mv Saúde (Santa Maria) - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv revistasaude.ufsm@gmail.com || amanda.revsaude@gmail.com || beatriz.revsaude@gmail.com
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